NCT01047072

Brief Summary

The purpose of the study is to see how well reduced intensity conditioning followed by a stem cell transplant from a donor (allogeneic) works in treating patients with severe systemic sclerosis. In an allogeneic stem cell transplant procedure, stem cells are taken from a healthy donor and transplanted into the patient. Stem cells can be donated by a family member or an unrelated donor who is a complete tissue type match.

Trial Health

35
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Geographic Reach
1 country

1 active site

Status
withdrawn

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

January 11, 2010

Completed
1 day until next milestone

First Posted

Study publicly available on registry

January 12, 2010

Completed
7.6 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 1, 2017

Completed
Last Updated

October 31, 2012

Status Verified

October 1, 2012

First QC Date

January 11, 2010

Last Update Submit

October 29, 2012

Conditions

Keywords

Scleroderma, systemic sclerosis, allogeneic hematopoietic stem cell transplantation

Outcome Measures

Primary Outcomes (1)

  • Event-free survival

    2 years

Secondary Outcomes (11)

  • Event-free survival

    5 years

  • Overall survival

    2 years

  • Overall survival

    5 years

  • Time to progression

    2 years

  • Time to progression

    5 years

  • +6 more secondary outcomes

Study Arms (2)

Arm I (transplant)

EXPERIMENTAL

Patients receive fludarabine IV on days -4 to -2. Patients undergo total-body irradiation on day 0. Patients then undergo peripheral blood stem cell transplantation on day 0. Patients receive GVHD prophylaxis comprising tacrolimus PO twice daily on days -3 to 180 and taper and mycophenolate mofetil PO three times daily on days 0-28 and then twice daily until day 180 and taper.

Drug: fludarabine phosphateRadiation: total-body irradiationDrug: tacrolimusDrug: mycophenolate mofetilProcedure: nonmyeloablative allogeneic hematopoietic stem cell transplantationProcedure: peripheral blood stem cell transplantation

Arm II (nontransplant)

ACTIVE COMPARATOR

Patients receive mycophenolate mofetil PO twice daily for 16 months, rituximab IV on days 1 and 15 and then repeated at 6 months, and cyclophosphamide IV at 28-32 day intervals or orally once daily for 16 months.

Drug: mycophenolate mofetilBiological: rituximabDrug: cyclophosphamide

Interventions

Given IV

Also known as: 2-F-ara-AMP, Beneflur, Fludara
Arm I (transplant)

Undergo total-body irradiation

Also known as: TBI
Arm I (transplant)

Given orally

Also known as: FK 506, Prograf
Arm I (transplant)

Given orally

Also known as: Cellcept, MMF
Arm I (transplant)Arm II (nontransplant)
rituximabBIOLOGICAL

Given IV

Also known as: IDEC-C2B8, IDEC-C2B8 monoclonal antibody, Mabthera, MOAB IDEC-C2B8, Rituxan
Arm II (nontransplant)

Given orally

Also known as: CPM, CTX, Cytoxan, Endoxan, Endoxana
Arm II (nontransplant)

Undergo transplantation

Arm I (transplant)

Undergo transplantation

Also known as: PBPC transplantation, PBSC transplantation, peripheral blood progenitor cell transplantation, transplantation, peripheral blood stem cell
Arm I (transplant)

Eligibility Criteria

Age18 Years - 65 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Patients with severe SSc as defined by the American College of Rheumatology and at high-risk for a fatal outcome based on the following prognostic factors from groups 1-5:
  • Group 1: Patients with 1) both a. and b. below; and 2) at least one of c., d. or e:
  • a. Diffuse cutaneous scleroderma with skin score of \>= 16 (modified Rodnan skin scale)
  • b. Duration of systemic sclerosis =\< 5 years from the onset of first non-Raynaud's symptom
  • c. Presence of interstitial lung disease with FVC or DLCOcorr =\< 70% of predicted and evidence of alveolitis (abnormal bronchoalveolar lavage \[BAL\] or high resolution chest computed tomography \[CT\] scan)
  • d. Left heart failure with left ventricular ejection Fraction (LVEF) \< 50% or pericardial effusion (mild-moderate) or 2nd or 3rd Atrial-Ventricular (AV) block; Myocardial disease not secondary to SSc must be excluded by a cardiologist
  • e. History of SSc-related renal disease that is not active at the time of screening; History of scleroderma hypertensive renal crisis is included in this criterion
  • Group 2: Patients will have progressive pulmonary disease as the primary indication for transplant as defined by a decrease in the FVC or DLCO by 15 percent or greater in the previous 12-month period. In addition, patients may have either less skin involvement than group 1 (mRSS \< 16) if they have a history of diffuse cutaneous disease and the FVC or DLCOcorr is \< 70% or both FVC and DLCOcorr \>= 70% if they have diffuse cutaneous disease (mRSS \> 16) at screening for the study; Patients must also have evidence of alveolitis as defined by abnormal chest CT or BAL
  • Group 3: Have progressive active SSc after prior autologous HCT based on the presence of progressive pulmonary disease; This will be defined by a decrease in the FVC since prior autologous transplant by 10 percent or greater, or DLCO since prior autologous transplant by 15 percent or greater in addition to evidence of alveolitis as defined by chest CT changes or BAL; If patients had prior autologous HCT on the SCOT clinical trial, they must have failed based on the defined study endpoints and be approved by the protocol principal investigator (PI)
  • Group 5: Diffuse scleroderma with disease duration =\< 2 years since development of first sign of skin thickening plus modified Rodnan skin score \>= 25 plus ESR \> 25 mm/1st hour and/or Hb \< 11 g/dL not explained by causes other than active scleroderma.
  • Unless patients have a DLCOcorr less than 45%, patients must have failed either oral or intravenous cyclophosphamide regimen defined as:
  • IV cyclophosphamide administration for \> 6 months or a total cumulative IV dose of 6 g/m\^2, or
  • oral cyclophosphamide administration for \> 6 months regardless of dose, or
  • combination of oral and IV cyclophosphamide for \> 6 months independent of dose
  • Patient must have a sibling who is a) HLA-identical and b) could serve as a donor of a peripheral blood stem cell graft to be placed on the transplant arm or an unrelated donor matched at HLA-A, B, C, DRB1 and DQB1. Patients without an HLA-identical sibling or an HLA-matched unrelated donor that meet the above criteria will be placed on the non-transplant arm
  • +6 more criteria

You may not qualify if:

  • Eligible for the NIH-sponsored randomized clinical trial (SCOT)
  • Fertile men or women unwilling to use contraceptive techniques during and for 12 months or until immunosuppression is discontinued following transplantation
  • Evidence of ongoing active infection
  • Pregnancy
  • Subjects with pulmonary, cardiac, hepatic, or renal impairment that would limit their ability to receive therapy and compromise their survival. This includes but is not restricted to, subjects with any of the following:
  • Severe pulmonary dysfunction defined as:
  • A hemoglobin corrected DLCOcorr \< 30% or FVC \< 40% of predicted; or
  • O2 saturation \< 92% at rest without supplemental oxygen; or
  • PO2 \< 70 mmHg or pCO2 \> 50 mmHg without supplemental oxygen
  • Significant uncontrolled pulmonary hypertension defined as:
  • Pulmonary artery peak systolic pressure \> 45 mmHg by echocardiogram and mean pulmonary artery pressure by right heart catheterization exceeding 32 mmHg at rest or 42 mm Hg during exercise; or
  • New York Heart Association (NYHA)/World Health Organization (WHO) classification for pulmonary hypertension, Class III or IV
  • Cardiac: Uncontrolled clinically significant arrhythmias; clinical evidence of significant cardiac disease (NYHA Class III or IV); LVEF \< 40% by echocardiogram
  • Significant renal pathology, defined as:
  • Estimated CrCl \< 60 mL/min (using Cockcroft-Gault formula based on actual body weight) or serum creatinine \> 2.0 mg/dL OR
  • +13 more criteria

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Fred Hutchinson Cancer Research Center/University of Washington Cancer Consortium

Seattle, Washington, 98109, United States

Location

MeSH Terms

Conditions

Scleroderma, SystemicScleroderma, Diffuse

Interventions

fludarabine phosphateWhole-Body IrradiationTacrolimusMycophenolic AcidRituximabCyclophosphamidePeripheral Blood Stem Cell Transplantation

Condition Hierarchy (Ancestors)

Connective Tissue DiseasesSkin and Connective Tissue DiseasesSkin Diseases

Intervention Hierarchy (Ancestors)

RadiotherapyTherapeuticsInvestigative TechniquesMacrolidesLactonesOrganic ChemicalsCaproatesAcids, AcyclicCarboxylic AcidsFatty AcidsLipidsAntibodies, Monoclonal, Murine-DerivedAntibodies, MonoclonalAntibodiesImmunoglobulinsImmunoproteinsBlood ProteinsProteinsAmino Acids, Peptides, and ProteinsSerum GlobulinsGlobulinsPhosphoramide MustardsNitrogen Mustard CompoundsMustard CompoundsHydrocarbons, HalogenatedHydrocarbonsPhosphoramidesOrganophosphorus CompoundsHematopoietic Stem Cell TransplantationStem Cell TransplantationCell TransplantationCell- and Tissue-Based TherapyBiological TherapyTransplantationSurgical Procedures, Operative

Study Officials

  • George Georges

    Fred Hutchinson Cancer Research Center/University of Washington Cancer Consortium

    PRINCIPAL INVESTIGATOR
0

Study Design

Study Type
interventional
Phase
phase 2
Allocation
NON RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER

Study Record Dates

First Submitted

January 11, 2010

First Posted

January 12, 2010

Primary Completion

September 1, 2017

Last Updated

October 31, 2012

Record last verified: 2012-10

Locations