NCT01659658

Brief Summary

The purpose of this study is to provide continued access of ixazomib and/or other study medications and to continue collecting relevant safety data to monitor participant's safety, determine whether dexamethasone plus IXAZOMIB improves hematologic response, 2-year vital organ (that is, heart or kidney) deterioration and mortality rate versus a physician's choice of a chemotherapy regimen in participants diagnosed with relapsed or refractory systemic light chain (AL) amyloidosis.

Trial Health

68
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
177

participants targeted

Target at P25-P50 for phase_3

Timeline
Completed

Started Dec 2012

Longer than P75 for phase_3

Geographic Reach
15 countries

66 active sites

Status
terminated

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

August 2, 2012

Completed
6 days until next milestone

First Posted

Study publicly available on registry

August 8, 2012

Completed
5 months until next milestone

Study Start

First participant enrolled

December 26, 2012

Completed
9.5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

July 11, 2022

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

July 11, 2022

Completed
1.2 years until next milestone

Results Posted

Study results publicly available

September 21, 2023

Completed
Last Updated

September 2, 2025

Status Verified

August 1, 2025

Enrollment Period

9.5 years

First QC Date

August 2, 2012

Results QC Date

July 10, 2023

Last Update Submit

August 28, 2025

Conditions

Keywords

MLN9708AmyloidosisLight ChainIXAZOMIBTourmaline AL1Drug Therapy

Outcome Measures

Primary Outcomes (2)

  • Percentage of Participants With Overall Hematologic Response

    Overall hematologic response was defined as the percentage of participants with complete response (CR), very good partial response (VGPR) and partial response (PR) based on central laboratory results and the 2010 International Society of Amyloidosis (ISA) Consensus Criteria as assessed by an adjudication committee. CR: Complete disappearance of M-protein from serum and urine on immunofixation, and normalization of free light chain (FLC) ratio. VGPR: differential free light chain (difference between involved and uninvolved FLC levels; dFLC) \< 40 mg/L. PR: ≥50% reduction in dFLC. Percentages were rounded off to the nearest decimal.

    From first dose of study drug until discontinuation of study drug due to disease progression or unacceptable toxicity, or death whichever occurs first (up to 115 months)

  • 2-Year Vital Organ (Heart or Kidney) Deterioration and Mortality Rate

    Cardiac (Heart) deterioration was defined as the need for hospitalization for heart failure. Kidney deterioration was defined as progression to end-stage renal disease (ESRD) with the need for maintenance dialysis or renal transplantation. Vital organ deterioration was evaluated by an adjudication committee. Percentages were rounded off to the nearest decimal. As prespecified in the protocol, data was planned to be collected and analyzed in a combined way for non-ixazomib arm groups in this outcome measure.

    Up to 2 years

Secondary Outcomes (19)

  • Percentage of Participants With Complete Hematologic Response

    From first dose of study drug until discontinuation of study drug due to disease progression or unacceptable toxicity, or death whichever occurs first (up to 115 months)

  • Overall Survival

    From first dose of study drug until discontinuation of study drug due to disease progression or unacceptable toxicity, or death whichever occurs first (up to 115 months)

  • Progression Free Survival (PFS)

    From first dose of study drug until discontinuation of study drug due to disease progression or unacceptable toxicity, or death whichever occurs first (up to 115 months)

  • Hematologic Disease Progression Free Survival

    From first dose of study drug until discontinuation of study drug due to disease progression or unacceptable toxicity, or death whichever occurs first (up to 115 months)

  • Time to Vital Organ (Heart or Kidney) Deterioration and Mortality Rate

    From randomization to time of vital organ deterioration or death (up to 115 months)

  • +14 more secondary outcomes

Study Arms (5)

Arm A: Ixazomib + Dexamethasone

EXPERIMENTAL

Ixazomib 4 mg, capsules, orally, once on Days 1, 8, and 15 and dexamethasone 20 mg, orally, once weekly on Days 1, 8, 15, and 22 of each 28-day cycle for up to a maximum of 95.2 months. Dexamethasone was increased up to 40 mg/day after 4 weeks, if tolerated.

Drug: IXAZOMIBDrug: Dexamethasone

Arm B: Dexamethasone + Melphalan

ACTIVE COMPARATOR

Participants received dexamethasone 20 mg, orally, and melphalan 0.22 mg/kg, orally once on Days 1 through 4 of each 28-day cycle, for up to a maximum of 72.4 months.

Drug: DexamethasoneDrug: Melphalan

Arm B: Dexamethasone + Cyclophosphamide

ACTIVE COMPARATOR

Participants received dexamethasone 20 mg, orally, once weekly on Days 1, 8, 15, and 22, and cyclophosphamide 500 mg, orally, on Days 1, 8 and 15 of each 28-day cycle for up to a maximum of 72.4 months.

Drug: DexamethasoneDrug: Cyclophosphamide

Arm B: Dexamethasone + Thalidomide

ACTIVE COMPARATOR

Participants received dexamethasone 20 mg, orally, once weekly on Days 1, 8, 15 and 22 of each 28-day cycle, and thalidomide daily at a starting dose of 50 mg and increased, as tolerated, to a maximum of 200 mg, orally for up to a maximum of 72.4 months.

Drug: DexamethasoneDrug: Thalidomide

Arm B: Dexamethasone + Lenalidomide

ACTIVE COMPARATOR

Participants received dexamethasone 20 mg, orally, once weekly on Days 1, 8, 15 and 22 of each 28-day cycle and lenalidomide 15 mg, orally, once on Days 1 through 21 every 28 days for up to a maximum of 72.4 months.

Drug: DexamethasoneDrug: Lenalidomide

Interventions

IXAZOMIB capsules

Also known as: MLN9708
Arm A: Ixazomib + Dexamethasone

Dexamethasone tablets

Arm A: Ixazomib + DexamethasoneArm B: Dexamethasone + CyclophosphamideArm B: Dexamethasone + LenalidomideArm B: Dexamethasone + MelphalanArm B: Dexamethasone + Thalidomide

Melphalan tablets

Arm B: Dexamethasone + Melphalan

Cyclophosphamide tablets

Arm B: Dexamethasone + Cyclophosphamide

Thalidomide capsules

Arm B: Dexamethasone + Thalidomide

Lenalidomide capsules

Arm B: Dexamethasone + Lenalidomide

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Male or female participants 18 years or older.
  • Biopsy-proven diagnosis of primary systemic light chain amyloidosis (AL amyloidosis) according to the following standard criteria:
  • Histochemical diagnosis of amyloidosis, as based on tissue specimens with Congo red staining with exhibition of an apple-green birefringence
  • If clinical and laboratory parameters insufficient to establish AL amyloidosis or in cases of doubt, amyloid typing may be necessary.
  • Measurable disease as defined by serum differential free light chain concentration (dFLC, difference between amyloid forming \[involved\] and nonamyloid forming \[uninvolved\] free light chain \[FLC\]) ≥ 50 mg/L.
  • Objective, measurable major (cardiac or renal) organ amyloid involvement as defined as follows (amyloid involvement of at least 1 required):
  • Cardiac involvement is defined as the presence of a mean left ventricular wall thickness on echocardiogram greater than 12 mm in the absence of other potential causes of left ventricular hypertrophy (controlled hypertension is allowed) with a noncardiac biopsy showing amyloid, or a positive cardiac biopsy in the presence of clinical or laboratory evidence of involvement. If there is isolated cardiac involvement, then typing of amyloid deposits is recommended.
  • Renal involvement is defined as proteinuria (predominantly albumin) \>0.5 g/day in a 24-hour urine collection.
  • Note: Amyloid involvement of other organ systems is allowed, but not required.
  • Must be relapsed or refractory after 1 or 2 prior therapies. For this protocol, relapsed is defined as progressive disease (PD) documented more than 60 days after last dose; refractory is defined as documented absence of hematologic response or hematologic progression on or within 60 days after last dose of prior therapy.
  • Participant must not have been previously treated with proteasome inhibitors. (The sponsor reserves the right to open the study to proteasome inhibitor-exposed participants in the future, at some time point after the first interim analysis (IA). In that case, the participant may not be refractory to proteasome inhibitor therapy.)
  • Given that the physician may select from an offered list of regimens to treat a specific participant, the participant may be refractory to an agent/s listed within the list of offered treatment choices
  • Must have recovered (ie, ≤ Grade 1 toxicity or participant's baseline status) from the reversible effects of prior therapy
  • If a participant has received a transplant as his/her first-line therapy, he/she must be at least 3 months post transplantation and recovered from the side effects of the stem cell transplant.
  • Must meet criteria for 1 of the following AL Amyloidosis Risk Stages (as defined by N-terminal proBNP \[NT-proBNP\] cut-off of \< 332 pg/mL and troponin T cut-off of 0.035 ng/mL as thresholds):
  • +20 more criteria

You may not qualify if:

  • Amyloidosis due to mutations of the transthyretin gene or presence of other non-AL amyloidosis.
  • Female participants who are lactating, breast feeding, or pregnant.
  • Medically documented cardiac syncope, uncompensated New York Heart Association (NYHA) Class 3 or 4 congestive heart failure, myocardial infarction within the previous 6 months, unstable angina pectoris, clinically significant repetitive ventricular arrhythmias despite antiarrhythmic treatment, or severe orthostatic hypotension or clinically important autonomic disease.
  • Clinically overt multiple myeloma, according to the International Myeloma Working Group (IMWG) criteria with at least 1 of the following:
  • Bone lesions
  • Hypercalcemia, defined as a calcium of \> 11 mg/dL
  • Inability to swallow oral medication, inability or unwillingness to comply with the drug administration requirements, or gastrointestinal (GI) procedure that could interfere with the oral absorption or tolerance of treatment.
  • Requirement for other concomitant chemotherapy, immunotherapy, radiotherapy, or any ancillary therapy considered to be investigational or which would be considered as a treatment of AL amyloidosis. However, participants may be on chronic steroids (maximum dose 20 mg/day prednisone or equivalent) if they are being given for disorders other than amyloidosis (eg, adrenal insufficiency, rheumatoid arthritis, etc.).
  • Comorbid systemic illnesses or other severe concurrent disease which, in the judgment of the investigator, would make the participant inappropriate for entry into this study or interfere significantly with the proper assessment of safety and toxicity of the prescribed regimens.
  • Ongoing or active infection, known human immunodeficiency virus (HIV) positive, active hepatitis B or C infection.
  • Psychiatric illness/social situations that would limit compliance with study requirements.
  • Known allergy to boron, MLN9708, any of the study treatments, their analogues, or excipients.
  • Systemic treatment with strong CYP3A inducers (rifampin, rifapentine, rifabutin, carbamazepine, phenytoin, phenobarbital), or use of Ginkgo biloba or St. John's wort within 14 days before the first dose of study treatment.
  • Diagnosed or treated for another malignancy within 3 years (or 5 years for participants in France) before study enrollment or previously diagnosed with another malignancy and have any evidence of residual disease. Participants with nonmelanoma skin cancer or carcinoma in situ of any type are not excluded if they have undergone complete resection.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (66)

Cedars Sinai Medical Center

Los Angeles, California, 90048, United States

Location

University of Chicago

Chicago, Illinois, 60637, United States

Location

Indiana University School of Medicine

Indianapolis, Indiana, 46202, United States

Location

Tufts Medical Center

Boston, Massachusetts, 00211, United States

Location

Boston Medical Center

Boston, Massachusetts, 02118, United States

Location

Karmanos Cancer Institute

Detroit, Michigan, 48201, United States

Location

Mayo Clinic

Rochester, Minnesota, 05590, United States

Location

Washington University

St Louis, Missouri, 63110, United States

Location

Columbia University Medical Center

New York, New York, 10032, United States

Location

Memorial Sloan Kettering Cancer Center

New York, New York, 10065, United States

Location

University of Cincinnati

Cincinnati, Ohio, 45267, United States

Location

Cleveland Clinic

Cleveland, Ohio, 44195, United States

Location

Vanderbilt University Medical Center

Nashville, Tennessee, 37232, United States

Location

University of Texas Southwestern Medical Center

Dallas, Texas, 75390, United States

Location

Froedtert and The Medical College of Wisconsin

Milwaukee, Wisconsin, 53226, United States

Location

Westmead Hospital

Westmead, New South Wales, 214, Australia

Location

Princess Alexandra Hospital

Woolloongabba, Queensland, 4102, Australia

Location

Box Hill Hospital

Box Hill, Victoria, 3128, Australia

Location

Sir Charles Gairdner Hospital

Nedlands, Western Australia, 6009, Australia

Location

Centro de Pesquisas Oncologicas

FlorianĂ³polis, Santa Catarina, 88034-000, Brazil

Location

Hospital Universitario Clementino Fraga Filho (UFRJ)

Rio de Janeiro, 21941-913, Brazil

Location

Irmandade Da Santa Casa de Misericordia de Sao Paulo

SĂ£o Paulo, 01223-001, Brazil

Location

Hospital Israelita Albert Einstein

SĂ£o Paulo, 05652-900, Brazil

Location

Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo

SĂ£o Paulo, 5403000, Brazil

Location

Tom Baker Cancer Centre

Calgary, Alberta, T2N 4N2, Canada

Location

Cross Cancer Institute

Edmonton, Alberta, T6G 1Z, Canada

Location

Vancouver General Hospital

Vancouver, British Columbia, V5Z 1M, Canada

Location

Princess Margaret Hospital

Toronto, Ontario, M5G2M9, Canada

Location

Fakultni nemocnice Ostrava

Ostrava, Moravskoslezsk Kraj, 708 52, Czechia

Location

Vseobecna fakultni nemocnice v Praze

Prague, Praha, Hlavni Mesto, 128 08, Czechia

Location

Arhus Universitetshospital Arhus Sygehus

Aahus, 800, Denmark

Location

Rigshospitalet

Copenhagen, 2100, Denmark

Location

Hotel Dieu

Nantes, Loire-Atlantique, 44093, France

Location

Hopital Claude Huriez

Lille, 5903, France

Location

Centre Hospitalier et Universitaire de Limoges

Limoges, 87042, France

Location

Hopital Saint Louis

Paris, 75010, France

Location

Hopital de Rangueil

Toulouse, 31059, France

Location

Charite - Universitatsmedizin Berlin

Berlin, 12200, Germany

Location

Universitatsklinikum Hamburg Eppendorf

Hamburg, 20246, Germany

Location

Universitat Heidelberg

Heidelberg, 69120, Germany

Location

University General Hospital of Patras

PĂ¡trai, Achaia, 26500, Greece

Location

Alexandra Hospital

Athens, 11528, Greece

Location

Rambam Health Corporation

Haifa, 31096, Israel

Location

Hadasit Medical Research Services and Development Ltd

Jerusalem, 911, Israel

Location

Meir Medical Center

Kfar Saba, 44281, Israel

Location

Rabin Medical Center - PPDS

Petah Tikva, 49100, Israel

Location

Chaim Sheba Medical Center

Ramat Gan, 52621, Israel

Location

Institute of Hematology "Seragnoli" University of Bologna

Bologna, 40138, Italy

Location

Fondazione IRCCS Policlinico San Matteo di Pavia

Pavia, 2710, Italy

Location

VU Medisch Centrum

Amsterdam, North Holland, 1081 HV, Netherlands

Location

Maastricht University Medical Center

AZ Maastricht, 620, Netherlands

Location

Universitair Medisch Centrum Utrecht

Utrecht, 3508, Netherlands

Location

Gachon University Gil Medical Center

Incheon, 405-760, South Korea

Location

Seoul National University Hospital

Seoul, 110744, South Korea

Location

Severance Hospital at Yonsei University Health System - PPDS

Seoul, 120-752, South Korea

Location

Samsung Medical Center - PPDS

Seoul, 135-710, South Korea

Location

The Catholic University of Korea, Seoul St Mary's Hospital

Seoul, 137-70, South Korea

Location

Clinica Universidad de Navarra

Pamplona, Navarre, 31008, Spain

Location

Hospital Clinic de Barcelona

Barcelona, 8036, Spain

Location

Hospital Universitario de La Princesa

Madrid, 28006, Spain

Location

Hospital Universitario Puerta de Hierro - Majadahonda

Majadahonda, 28222, Spain

Location

Hospital Universitario de Salamanca

Salamanca, 37007, Spain

Location

Queen Elizabeth Hospital

Birmingham, B152TH, United Kingdom

Location

Royal Free and University College Medical School

London, NW3 2P, United Kingdom

Location

Manchester Royal Infirmary

Manchester, MI3 9WL, United Kingdom

Location

Oxford University Hospitals NHS Trust

Oxford, OX3 7L, United Kingdom

Location

Related Publications (2)

  • Sanchorawala V, Wechalekar AD, Kim K, Schonland SO, Landau HJ, Kwok F, Suzuki K, Dispenzieri A, Merlini G, Comenzo RL, Cherepanov D, Hayden VC, Kumar A, Labotka R, Faller DV, Kastritis E. Quality of life and symptoms among patients with relapsed/refractory AL amyloidosis treated with ixazomib-dexamethasone versus physician's choice. Am J Hematol. 2023 May;98(5):720-729. doi: 10.1002/ajh.26866. Epub 2023 Feb 14.

  • Sanchorawala V, Palladini G, Kukreti V, Zonder JA, Cohen AD, Seldin DC, Dispenzieri A, Jaccard A, Schonland SO, Berg D, Yang H, Gupta N, Hui AM, Comenzo RL, Merlini G. A phase 1/2 study of the oral proteasome inhibitor ixazomib in relapsed or refractory AL amyloidosis. Blood. 2017 Aug 3;130(5):597-605. doi: 10.1182/blood-2017-03-771220. Epub 2017 May 26.

Related Links

MeSH Terms

Conditions

RecurrenceAmyloidosis

Interventions

ixazomibDexamethasoneMelphalanCyclophosphamideThalidomideLenalidomide

Condition Hierarchy (Ancestors)

Disease AttributesPathologic ProcessesPathological Conditions, Signs and SymptomsProteostasis DeficienciesMetabolic DiseasesNutritional and Metabolic Diseases

Intervention Hierarchy (Ancestors)

PregnadienetriolsPregnadienesPregnanesSteroidsFused-Ring CompoundsPolycyclic CompoundsSteroids, FluorinatedNitrogen Mustard CompoundsMustard CompoundsHydrocarbons, HalogenatedHydrocarbonsOrganic ChemicalsPhenylalanineAmino Acids, AromaticAmino Acids, CyclicAmino AcidsAmino Acids, Peptides, and ProteinsPhosphoramide MustardsPhosphoramidesOrganophosphorus CompoundsPhthalimidesPhthalic AcidsAcids, CarbocyclicCarboxylic AcidsPiperidonesPiperidinesHeterocyclic Compounds, 1-RingHeterocyclic CompoundsIsoindolesHeterocyclic Compounds, 2-RingHeterocyclic Compounds, Fused-Ring

Results Point of Contact

Title
Study Director
Organization
Takeda

Study Officials

  • Medical Director

    Takeda

    STUDY DIRECTOR

Publication Agreements

PI is Sponsor Employee
No
Restriction Type
OTHER
Restrictive Agreement
Yes

Study Design

Study Type
interventional
Phase
phase 3
Allocation
RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

August 2, 2012

First Posted

August 8, 2012

Study Start

December 26, 2012

Primary Completion

July 11, 2022

Study Completion

July 11, 2022

Last Updated

September 2, 2025

Results First Posted

September 21, 2023

Record last verified: 2025-08

Data Sharing

IPD Sharing
Will share

Takeda provides access to the de-identified individual participant data (IPD) for eligible studies to aid qualified researchers in addressing legitimate scientific objectives (Takeda's data sharing commitment is available on https://clinicaltrials.takeda.com/takedas-commitment?commitment=5). These IPDs will be provided in a secure research environment following approval of a data sharing request, and under the terms of a data sharing agreement.

Shared Documents
STUDY PROTOCOL, SAP, ICF, CSR
Access Criteria
IPD from eligible studies will be shared with qualified researchers according to the criteria and process described on https://vivli.org/ourmember/takeda/. For approved requests, the researchers will be provided access to anonymized data (to respect patient privacy in line with applicable laws and regulations) and with information necessary to address the research objectives under the terms of a data sharing agreement.
More information

Locations