NCT00000623|Completed
Thalassemia (Cooley's Anemia) Clinical Research Network (TCRN)
Thalassemia Clinical Research Network (TCRN)
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Thalassemia Clinical Research Network (TCRN)
Sponsor study identifier
Secondary identifiers
observational
1,000
2 countries
5
Study Start
July 2000
Date type not reportedThis date has not been verified as actual or estimated.
Primary Completion
Not reported
Date not reportedStudy Completion
July 2006
Actual (reported)The purpose of the TCRN is to accelerate research in the management of thalassemia, standardize existing treatments, and evaluate new ones in a network of clinical centers in North America. The emphasis will be on clinical trials that help identify optimal therapy. Therapeutic trials may involve investigational drugs, drugs already approved but not currently used, and drugs currently used.
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
July 2006
Actual (reported)Click on a node to explore related trials.
Some registry-reported names shown below are not yet linked in this graph.
Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
October 27, 1999
Actual (reported)October 28, 1999
Actual (reported)July 2000
Date type not reportedThis date has not been verified as actual or estimated.
July 2006
Actual (reported)Vary by protocol
Contact the study team to discuss eligibility requirements. They can help determine if this study is right for you.
Children's Hospital Oakland
Oakland, California, 94609, United States
Children's Hospital
Boston, Massachusetts, 02115, United States
Weill Medical College of Cornell University
New York, New York, 10021, United States
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
Toronto General Hospital
Toronto, Ontario, M5G 2C4, Canada
Cunningham MJ, Macklin EA, Neufeld EJ, Cohen AR; Thalassemia Clinical Research Network. Complications of beta-thalassemia major in North America. Blood. 2004 Jul 1;104(1):34-9. doi: 10.1182/blood-2003-09-3167. Epub 2004 Feb 26.
Alan R. Cohen, MD
Children's Hospital of Philadelphia
Patricia J. Giardina, MD
Weill Medical College of Cornell University
Ellis J. Neufeld, MD, PhD
Children's Hospital Medical Center, Cincinnati
Nancy F. Olivieri, MD
Toronto General Hospital
First Submitted
October 27, 1999
First Posted
October 28, 1999
Study Start
July 2000
Date type not reportedThis date has not been verified as actual or estimated.
Study Completion
July 2006
Actual (reported)Assessment of Pain in People With Thalassemia Who Are Treated With Regular Blood Transfusions
Registry-reported names are shown in full. Names without a link have not yet been matched to a Syfrah profile.
Elliott P. Vichinsky, MD
UCSF Benioff Children's Hospital Oakland
Sonja McKinlay, PhD
New England Research Institutes, Inc.
Last Updated
March 4, 2014
Record last verified: 2006-07
Download the complete ClinicalTrials.gov record imported by Syfrah, including fields not shown in this page. The registry may contain a newer revision.
Source: ClinicalTrials.gov.
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