Perspectives of Family Carers of Older People From Turkish and Moroccan Origin in Belgium on Advance Care Planning

NCT05241301 | Completed

• 1 other identifier: ACP2021M&T
• Study Type: interventional
• Target: 25
• Locations: 1 country
• Sites: 1

Brief Summary

In this study, we will explore the perspective of family carers of older adults from Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP), more specifically concerning their knowledge about ACP, their experiences with and their points of view on ACP for their family member and their own preferences regarding how to be involved in the process of ACP for their relatives.

Conditions

Advance Care Planning; Ethnic Minorities; Family Caregivers

Outcome Measures

Primary Outcomes (1)

• Knowledge of family carers of older adults from Turkish and Moroccan origin about advance care planning

  This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you ever heard of advance care planning? Does that term mean anything to you? What do you know about communicating wishes in advance to family members or doctor and notice this?

  12 months

Secondary Outcomes (1)

• Experiences of family carers of older adults from Turkish and Moroccan origin have with engaging in the process of ACP for their relatives

  12 months

Other Outcomes (2)

• Family carers from Turkish and Moroccan origin views regarding their relatives engaging in the process of ACP?

  12 months

• How do family carers of older adults with Turkish and Moroccan origin prefer to engage in the process of ACP for their relatives?

  12 months

Study Arms (1)

One to one interviews with family carers of older people from Turkish and Moroccan origin

OTHER

one to one interviews

Other: one to one interviews

Interventions

one to one interviews OTHER

one to one interviews to explore the perspective of family carers of older adults of Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP)

One to one interviews with family carers of older people from Turkish and Moroccan origin

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)

You may qualify if:

• Family carers of older adults with a Turkish or a Moroccan origin who have participated in our previous studies with NCT03930823 and NCT04335214, as identified by the older adults as the most significant family carer. Older adults in our previous studies were men and women, all 65 years and older and living in Flanders and Brussels.
• and who live in Belgium and are 18 years or older and fluent in French or Dutch language.
• and who have also given informed consent to participate in this qualitative interview study

You may not qualify if:

• None

Sponsors & Collaborators

• Universitair Ziekenhuis Brussel: lead

Study Sites (1)

Faculteit Geneeskunde en Farmacie

Brussels, 1090, Belgium

Location

Related Publications (1)

• Demirkapu H, Edally W, De Vleminck A, Van den Block L, De Maesschalck S, Devroey D. Views on advance care planning of family members of older adults with Turkish and Moroccan backgrounds: An exploratory interview study. Palliat Med. 2024 Oct;38(9):1000-1009. doi: 10.1177/02692163241261207. Epub 2024 Jun 25.

  PMID: 38916263 DERIVED

Study Officials

• Hakki Demirkapu, MD

  Vrije Universiteit Brussel

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: interventional
• Phase: not applicable
• Allocation: NA
• Masking: NONE
• Purpose: OTHER
• Intervention Model: SINGLE GROUP
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Model Details: one to one interviews

Study Record Dates

• First Submitted: February 4, 2022
• First Posted: February 15, 2022
• Study Start: March 15, 2022
• Primary Completion: December 31, 2022
• Study Completion: May 1, 2023
• Last Updated: May 11, 2023

Record last verified: 2022-05

Data Sharing

• IPD Sharing: Will not share

Locations

BE (1)