Interviews With Older People From Turkish Origin in Belgium About Advance Care Planning

NCT03930823 | Completed

• 1 other identifier: ACP-TR-1-2018
• Study Type: interventional
• Target: 51
• Locations: 1 country
• Sites: 1

Brief Summary

Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails. Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care. The Turkish ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from Turkish origin are lacking. The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from Turkish origin in Belgium. Semi-structured interviews (in the native Turkish language) will be used.

Conditions

Advance Care Planning; Ethnic Minorities; Turkish Origin; Advance Medical Directives; Muslims; Living Will

Outcome Measures

Primary Outcomes (5)

• Knowledge about advance care planning from older people from Turkish origin in Belgium

  This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you know in relation to advance care planning?

  9 months

• Experiences about advance care planning from older people from Turkish origin in Belgium

  This is a qualitative study. We developed a semi-structured interview guide with the following questions:Have you yourself ever thought about your future healthcare? Have you yourself ever looked up something about that?

  9 months

• Views/preferences about advance care planning from older people from Turkish origin in Belgium

  This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you think about discussing advance care planning now for the future? Even if you do not have such a serious illness at the moment, what are the advantages and disadvantages about discussing your wishes for the future, now?

  9 months

• Attitudes about advance care planning from older people from Turkish origin in Belgium

  This is a qualitative study. We developed a semi-structured interview guide with the following questions: Before you got severe illness, do you wish to discuss to someone your future wishes in advance? Why? Do you wish to give authority on your behalf to someone? Why?

  9 months

• Barriers and facilitators for advance care planning from older people from Turkish origin in Belgium

  This is a qualitative study. We developed a semi-structured interview guide with the following questions: In your opinion, what makes it easier or what would make it easier to talk about advance care planning? In your opinion, what makes it harder to talk about advance care planning?

  9 months

Study Arms (1)

Interview

OTHER

One to one interviews with older people from Turkish origin in Belgium

Other: Interview

Interventions

Interview OTHER

One to one interview

Interview

Eligibility Criteria

• Age: 65 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Older Adult (65+)

You may qualify if:

• People:
• with Turkish origin who live in Belgium and are older than 65 years
• who have also given informed consent to participate in this qualitative interview study

You may not qualify if:

• Patients who are terminal ill which means having a life-limiting disease with irreversible decline and who are actively dying (actively dying is related to patients with days of survival). (41)
• Having cognitive impairment

Sponsors & Collaborators

• Universitair Ziekenhuis Brussel: lead

Study Sites (1)

Faculteit Geneeskunde en Farmacie

Brussels, 1090, Belgium

Location

MeSH Terms

Interventions

Interviews as Topic

Intervention Hierarchy (Ancestors)

Data Collection; Epidemiologic Methods; Investigative Techniques; Health Care Evaluation Mechanisms; Quality of Health Care; Health Care Quality, Access, and Evaluation; Public Health; Environment and Public Health

Study Officials

• Hakki Demirkapu, MD

  Vrije Universiteit Brussel

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: interventional
• Phase: not applicable
• Allocation: NA
• Masking: NONE
• Purpose: OTHER
• Intervention Model: SINGLE GROUP
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Model Details: One to one Interviews

Study Record Dates

• First Submitted: April 17, 2019
• First Posted: April 29, 2019
• Study Start: March 18, 2019
• Primary Completion: December 31, 2022
• Study Completion: March 31, 2023
• Last Updated: May 11, 2023

Record last verified: 2022-05

Data Sharing

• IPD Sharing: Will not share

Locations

BE (1)