Advance Care Planning Among Older People From Moroccon Origin in Belgium

NCT04335214 | Completed

• 1 other identifier: B670201942542
• Study Type: interventional
• Target: 35
• Locations: 1 country
• Sites: 1

Brief Summary

Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails. Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care. The moroccan ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from moroccon origin are lacking. The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from moroccan origin in Belgium. Semi-structured interviews (in the native moroccan/arabic language) will be used.

Conditions

Advance Care Planning; Ethnic Minorities; Moroccans; Advance Medical Directives; Muslims; Living Will

Outcome Measures

Primary Outcomes (1)

• Knowledge, experiences, views, preferences, barriers and facilitators about advance care planning from older people from moroccon origin in Belgium

  This is a qualitative study. We've developed a semi-structured interview guide with the folowing questions: What do you know in relation to advance care planning? Have you yourself ever thought or looked up about your future healthcare? What do you think about advance care planning now for future? What are the advantages and disadvantages? In your opinion, what makes it easier or harder to talk about advance care planning?

  18 months

Study Arms (1)

Interview

OTHER

One to one interview with older people from moroccon origin in Belgium

Other: one to one interview

Interventions

one to one interview OTHER

one to one interviews with older people from moroccon origin in Belgium

Interview

Eligibility Criteria

• Age: 65 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Older Adult (65+)

You may qualify if:

• People with Moroccan origin who live in Belgium and are older than 65 years and who have also given informed consent to participate in this qualitative interview study

You may not qualify if:

• Patients who are terminal ill which means having a life-limiting disease with irreversible decline and who are actively dying (actively dying is related to patients with days of survival). (41)
• people who have cognitive impairment

Sponsors & Collaborators

• Universitair Ziekenhuis Brussel: lead

Study Sites (1)

Faculteit Geneeskunde en Farmacie

Brussels, 1090, Belgium

Location

Related Publications (1)

• Demirkapu H, Hajji R, Chater B, De Maesschalck S, Van den Block L, De Vleminck A, Devroey D. Advance care planning among older adults of Moroccan origin: An interview-based study. Patient Educ Couns. 2023 Aug;113:107794. doi: 10.1016/j.pec.2023.107794. Epub 2023 May 13.

  PMID: 37196404 DERIVED

Study Officials

• Hakki Demirkapu

  Vrije Universiteit Brussel

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: interventional
• Phase: not applicable
• Allocation: NA
• Masking: NONE
• Purpose: OTHER
• Intervention Model: SINGLE GROUP
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Model Details: one to one interviews

Study Record Dates

• First Submitted: April 2, 2020
• First Posted: April 6, 2020
• Study Start: April 1, 2020
• Primary Completion: December 1, 2022
• Study Completion: March 3, 2023
• Last Updated: May 11, 2023

Record last verified: 2022-05

Data Sharing

• IPD Sharing: Will not share

Locations

BE (1)