Turkish Version of The Measure of Processes of Care (MPOC)

NCT03508583 | Unknown

• 1 other identifier: 46418926
• Study Type: observational
• Target: 300
• Locations: 0 countries
• Sites: N/A

Brief Summary

Family-centred care (FCS) is considered the best practice in providing rehabilitation to children with disabilities and special needs. Family-centred care has been described as a partnership approach to healthcare decision making. As a philosophy of healthcare, today many multidisciplinary healthcare facilities have organized their services according to a family-centred approach. TheMeasure of Processes of Care (MPOC) is the most widely used instrument to assess parents' self-reported experiences of family-centred behaviours of rehabilitation services providers. The aim of this study is to translate the scale to Turkish and to determine validity and reliability of The Measure of Processes of Care (MPOC 56- 20- SP)

Conditions

Cerebral Palsy; Muscular Dystrophies; Autism Spectrum Disorder; Traumatic Brain Injury; Down Syndrome; Disability, Developmental; Disability Physical

Keywords

mpoc; Validity and Reliability

Outcome Measures

Primary Outcomes (3)

• The Measure of Processes of Care (MPOC- 56)

  Assessing of the participation level of children. The Measure of processes of care-56 (MPOC 56) will be applied for once for 300 participants. The MPOC consists of 56 questions, which are related to important aspects of care that are closely related with satisfaction of parents. The 56 items are divided into five factorially defined subscales: Enabling and Partnership (EP), ProvidingGeneral Information (PGI), Providing Specific Informationabout the Child (PSI), Coordinated and Comprehensive Care(CCC) and Respectful and Supportive Care (RS). The items are answered on a seven-point scale ranging from 7 ('to a very greatextent') to 1 ('not at all'), with a 0 for 'Not applicable'. A higherscore reflects a more favourable judgement of the care process.

  MPOC 56 was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale.

• The Measure of Processes of Care 20 (MPOC- 20)

  The measure of processes of care consists of 20 questions, which are related to important aspects of care that are closely related with satisfaction of parents. The 20 items are divided into five factorially defined subscales: Enabling and Partnership (EP), ProvidingGeneral Information (PGI), Providing Specific Informationabout the Child (PSI), Coordinated and Comprehensive Care(CCC) and Respectful and Supportive Care (RS). The items are answered on a seven-point scale ranging from 7 ('to a very greatextent') to 1 ('not at all'), with a 0 for 'Not applicable'. A higherscore reflects a more favourable judgement of the care process.

  MPOC 20 was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale.

• The Measure of Processes of Care for services providers (MPOC- SP)

  Self-assessment tool for pediatric service providers that measures the extent to which the services they provide are family-centred. The Measure of Processes of Care for Service Providers consists of 27 items categorized into four scales: (1) Showing Interpersonal Sensitivity (SIS), (2) Providing General Information (PGI), (3) Communicating Specific Information about the Child (CSI), and (4) Treating People Respectfully (TPR), .All response options are labelled, ranging from 1 ('never') to 7 ('to a great extent'). A higherscore reflects a more favourable judgement of the care process.

  MPOC SP was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale.

Secondary Outcomes (1)

• Child Health Questionnaire - Parent Form 50

  At baseline]

Study Arms (1)

Participation

Parents will complete the The Measure of Processes of Care 56- 20 (MPOC 56-20) questionary Service providers will complete The Measure of Processes of Care for Service Providers (MPOC-SP)

Other: Participation

Interventions

Participation OTHER

The mpoc 56 and mpoc 20 will be field-tested with a sample of 300 parents of children with disabilities residing in the Turkey. Professionals working with children with disabilities will be assessed with MPOC SP questionnaires

Participation

Eligibility Criteria

• Age: 5 Years - 25 Years
• Sex: all
• Age Groups: Child (0-17), Adult (18-64)
• Sampling Method: Probability Sample

Study Population

The subjects will be recruited from children who lives in Turkey and, attend special education centers and hospitals.

You may qualify if:

• To be diagnosed as disabilities and special needs
• Pediatric service providers who agree to participate to study

You may not qualify if:

• Children whose family didn't accept to participate to study

Sponsors & Collaborators

• Hacettepe University: lead

Related Publications (3)

• Dyke P, Buttigieg P, Blackmore AM, Ghose A. Use of the measure of process of care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child Care Health Dev. 2006 Mar;32(2):167-76. doi: 10.1111/j.1365-2214.2006.00604.x.

  PMID: 16441851 BACKGROUND

• Hagen AK, Bjorbaekmo WS. Parents evaluation of the processes of care in child rehabilitation: a reliability study of the Norwegian translation of MPOC-20. Child Care Health Dev. 2012 Jan;38(1):48-53. doi: 10.1111/j.1365-2214.2010.01192.x. Epub 2010 Dec 28.

  PMID: 21198778 BACKGROUND

• Bjerre IM, Larsson M, Franzon AM, Nilsson MS, Stromberg G, Westbom LM. Measure of Processes of Care (MPOC) applied to measure parent's perception of the habilitation process in Sweden. Child Care Health Dev. 2004 Mar;30(2):123-30. doi: 10.1111/j.1365-2214.2003.00403.x.

  PMID: 14961865 BACKGROUND

MeSH Terms

Conditions

Cerebral Palsy; Muscular Dystrophies; Autism Spectrum Disorder; Brain Injuries, Traumatic; Down Syndrome; Developmental Disabilities

Condition Hierarchy (Ancestors)

Brain Damage, Chronic; Brain Diseases; Central Nervous System Diseases; Nervous System Diseases; Muscular Disorders, Atrophic; Muscular Diseases; Musculoskeletal Diseases; Neuromuscular Diseases; Genetic Diseases, Inborn; Congenital, Hereditary, and Neonatal Diseases and Abnormalities; Child Development Disorders, Pervasive; Neurodevelopmental Disorders; Mental Disorders; Brain Injuries; Craniocerebral Trauma; Trauma, Nervous System; Wounds and Injuries; Intellectual Disability; Neurobehavioral Manifestations; Neurologic Manifestations; Abnormalities, Multiple; Congenital Abnormalities; Chromosome Disorders

Study Officials

• Mintaze Kerem Günel, prof.dr

  Hacettepe University

  STUDY CHAIR

Central Study Contacts

Duygu Türker, PhD, pt

CONTACT

+905304602723; duyguturker@yahoo.com

Cemil Özal, MSc, pt

CONTACT

+905376054373; cemilozal@hotmail.com

Study Design

• Study Type: observational
• Observational Model: CASE ONLY
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Principal Investigator

Study Record Dates

• First Submitted: April 7, 2018
• First Posted: April 26, 2018
• Study Start: May 1, 2018
• Primary Completion: June 1, 2018
• Study Completion: August 1, 2019
• Last Updated: April 27, 2018

Record last verified: 2018-04