NCT01321346

Brief Summary

This study is for patients with relapsed or refractory Acute Lymphoblastic Leukemia (ALL), Acute Myelogenous Leukemia (AML), Hodgkin's Disease (HD) or Non-Hodgkin's Lymphoma (NHL). Panobinostat is a new drug that is considered investigational because it has not been approved in the United States by the Food and Drug Administration (FDA), or in any other country. Panobinostat is a histone deacetylase inhibitor (HDACi) and interferes with gene expression found in cells causing them to stop growing or die. Panobinostat has been used in several hundred adults who had leukemia, HD, NHL and other solid tumors. Panobinostat has not been given to children. This is a phase I study. In a phase I study, drugs are tested to the highest dose that can be safely given. Drugs are given at gradually increasing dosages until there are unacceptable side effects. The goal of the Phase I study is to find out the dose of panobinostat that can be safely given to children with relapsed ALL, AML, HD and NHL.

Trial Health

80
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
30

participants targeted

Target at P25-P50 for phase_1

Geographic Reach
1 country

20 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

March 1, 2011

Completed
20 days until next milestone

First Submitted

Initial submission to the registry

March 21, 2011

Completed
2 days until next milestone

First Posted

Study publicly available on registry

March 23, 2011

Completed
4.5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

October 1, 2015

Completed
Last Updated

November 24, 2015

Status Verified

November 1, 2015

Enrollment Period

4.6 years

First QC Date

March 21, 2011

Last Update Submit

November 20, 2015

Conditions

Keywords

RelapseLymphoblasticLeukemiaPanobinostatLBH589RefractoryHodgkin'sNon-Hodgkin's LymphomaLymphomaMyelogenousAcuteChildhoodPediatricALLAMLNHLHD

Outcome Measures

Primary Outcomes (2)

  • To find the highest dose of oral panobinostat that can be given to patients with relapsed AML, HD or NHL without causing severe side effects.

    8 weeks

  • To learn what kind of side effects panobinostat can cause when taken by children with relapsed ALL, AML, HD or NHL.

    8 weeks

Secondary Outcomes (3)

  • To determine whether panobinostat is a beneficial treatment for ALL, AML, HD or NHL.

    8 weeks

  • To test the amount of panobinostat in the patient's blood and spinal fluid after taking panobinostat.

    3 years

  • To test samples of cancer cells to see if they have chemicals that affect the way panobinostat works.

    3 years

Study Arms (2)

Leukemia Patients

EXPERIMENTAL

Patients with ALL and AML will be treated in one arm of the study.

Drug: PanobinostatDrug: Cytarabine

Lymphoma Patients

EXPERIMENTAL

Patients with NHL or HD will be treated in one arm of the study.

Drug: Panobinostat

Interventions

Dose will be assigned at study entry. Patients will take panobinostat orally 3 times a week given on a Monday, Wednesday, Friday schedule, every week. One course is 28 days (4 weeks). Patients will get 2 courses and may receive up to 8 courses total.

Also known as: LBH589
Leukemia Patients

All patients will receive 70 mg of intrathecal cytarabine on day "0" of course 1. The day "0" dose must be given at least 24 hours prior to initiation of panobinostat. Omit the day "0" dose of intrathecal cytarabine if the patient received intrathecal therapy within 72 hours of treatment. All patients will receive 70 mg of intrathecal cytarabine on day "29" of course 1-8 in conjunction with their disease evaluation.

Also known as: Ara-C, cytosine arabinoside, Cytosar
Leukemia Patients

Eligibility Criteria

Age8 Years - 21 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64)

You may qualify if:

  • Patients must be ≤ 21 years of age at the time of enrollment.
  • Patients must have one of the following:
  • Patient must have relapsed/refractory acute myelogenous leukemia (AML) with ≥ 5% blast in the bone marrow or biopsy confirmed chloroma. Patient may have CNS 1, 2 or 3 disease. Isolated CNS relapse is not eligible.
  • Patient must have relapsed/refractory acute lymphoblastic leukemia (ALL) with ≥ 5 blasts in the bone marrow or biopsy confirmed extramedullary disease. Patient may have CNS 1, 2 or 3 disease. Isolated CNS relapse is not eligible.
  • Patient must have relapsed or refractory non-Hodgkin's lymphoma (NHL) or Hodgkin's disease. Patients must have CNS 1 disease. Patient must have histologic verification of disease at original diagnosis. Patient must have measurable disease documented by clinical or radiographic criteria or bone marrow disease present at study entry.
  • Karnofsky \> 50% for patients \> 16 years of age and Lansky \> 50% for patients less than or equal to 16 years of age. (See Appendix I for Performance Scales).
  • Patient must have a life expectancy of 8 weeks.
  • PRIOR THERAPY Patients must have fully recovered from the acute toxic effects of all prior chemotherapy, immunotherapy, or radiotherapy prior to entering this study.
  • Patients with AML must have had at least 2 prior therapeutic attempts including frontline induction.
  • Patients with ALL must have had at least 3 prior therapeutic attempts including frontline induction.
  • Radiotherapy: At least 28 days must have elapsed since and radiation therapy.
  • Hematopoietic Stem Cell Transplant:
  • Patients who have had previous allogeneic HSCT must have grade I or less of Graft-versus-Host Disease (GVHD) and have not received immunosuppressive medication for at least 90 days.
  • Hematopoietic grow factors: It must have been at least 7 days since the completion of therapy with GCSF or other growth factors at the time of enrollment. It must have been at least 14 days since the completion of therapy with pegfilgrastim (Neulasta®).
  • Biologic/Immunologic (anti-neoplastic) therapy: It must be at least 28 days since the completion of therapy with a biologic/immunologic agent such as a monoclonal antibody prior to study enrollment and at least 28 days since non-study chemotherapy has been administered, excluding CNS directed therapy as described in Section 4.1.
  • +13 more criteria

You may not qualify if:

  • Patients will be excluded if they are unable to swallow capsules whole.
  • Patients will be excluded if they have received previous therapy with HDAC, DAC, HSP90 inhibitors or valproic acid anticancer therapy. Valproic acid therapy is not allowed for any reason while on this study.
  • AML patients who are candidates for allogeneic stem cell transplant are excluded.
  • Patients will be excluded if they have a systemic fungal, bacterial, viral or other infection that is exhibiting ongoing signs/symptoms related to the infection without improvement despite appropriate antibiotics or other treatment.
  • Gastrointestinal Function
  • Impairment of GI function or GI disease that may significantly alter the absorption of panobinostat.
  • Patients with diarrhea \> CTCAE grade 2.
  • Patients will be excluded if there is a plan to administer non-protocol chemotherapy, radiation therapy, or immunotherapy during the study period, excluding CNS directed therapy upfront for AML patients and continuing for CNS positive patients as described in Section 4.1. Cyto-reduction with hydroxyurea can be initiated and continued for up to 24 hours prior to the start or protocol therapy.
  • Patients will be excluded if they have significant concurrent disease, illness, psychiatric disorder or social issue that would compromise patient safety or compliance, interfere with consent, study participation, follow up, or interpretation of study results.
  • Patients with known positivity for human immunodeficiency virus (HIV) or hepatitis C; baseline testing for HIV and hepatitis C is not required.
  • Patients will be excluded if these meet any of the following:
  • History or presence of sustained ventricular tachyarrhythmia. (Patients with a history of atrial arrhythmia are eligible but should be discussed with the study chair prior to enrollment).
  • Any history of ventricular fibrillation or torsade de pointes.
  • Bradycardia defined as HR\< 50 bpm. Patients with pacemakers are eligible if HR ≥ 50 bpm.
  • Screening ECG with a QTc \> 450 msec.
  • +5 more criteria

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (20)

Childrens Hospital Los Angeles

Los Angeles, California, 90027, United States

Location

UCSF School of Medicine

San Francisco, California, 94143-0106, United States

Location

Children's National Medical Center

Washington D.C., District of Columbia, United States

Location

University of Miami Cancer Center

Miami, Florida, 33136, United States

Location

Children's Healthcare of Atlanta, Emory University

Atlanta, Georgia, United States

Location

Lurie Children's Hospital

Chicago, Illinois, United States

Location

Dana Farber

Boston, Massachusetts, United States

Location

C.S. Mott Children's Hospital

Ann Arbor, Michigan, 48109-0914, United States

Location

Childrens Hospital & Clinics of Minnesota

Minneapolis, Minnesota, 55404-4597, United States

Location

New York University Medical Center

New York, New York, 10016, United States

Location

Children's Hospital New York-Presbyterian

New York, New York, 10032, United States

Location

Levine Children's Hospital at Carolinas Medical Center

Charlotte, North Carolina, 28203, United States

Location

Rainbow Babies

Cleveland, Ohio, United States

Location

Nationwide Childrens Hospital

Columbus, Ohio, United States

Location

Oregon Health and Science University

Portland, Oregon, United States

Location

St. Jude

Memphis, Tennessee, 38105-3678, United States

Location

Vanderbilt Children's Hospital

Nashville, Tennessee, United States

Location

Primary Children's

Salt Lake City, Utah, United States

Location

Seattle Children's Hospital

Seattle, Washington, 98105, United States

Location

Medical College of Wisconsin

Milwaukee, Wisconsin, United States

Location

Related Publications (1)

  • Goldberg J, Sulis ML, Bender J, Jeha S, Gardner R, Pollard J, Aquino V, Laetsch T, Winick N, Fu C, Marcus L, Sun W, Verma A, Burke M, Ho P, Manley T, Mody R, Tcheng W, Thomson B, Park J, Sposto R, Messinger Y, Hijiya N, Gaynon P, Barredo J. A phase I study of panobinostat in children with relapsed and refractory hematologic malignancies. Pediatr Hematol Oncol. 2020 Sep;37(6):465-474. doi: 10.1080/08880018.2020.1752869. Epub 2020 Apr 27.

Related Links

MeSH Terms

Conditions

Precursor Cell Lymphoblastic Leukemia-LymphomaLeukemia, MyeloidHodgkin DiseaseLymphoma, Non-HodgkinRecurrenceLeukemiaLymphoma

Interventions

PanobinostatCytarabine

Condition Hierarchy (Ancestors)

Leukemia, LymphoidNeoplasms by Histologic TypeNeoplasmsHematologic DiseasesHemic and Lymphatic DiseasesLymphoproliferative DisordersLymphatic DiseasesImmunoproliferative DisordersImmune System DiseasesDisease AttributesPathologic ProcessesPathological Conditions, Signs and Symptoms

Intervention Hierarchy (Ancestors)

Hydroxamic AcidsHydroxylaminesAminesOrganic ChemicalsHydroxy AcidsCarboxylic AcidsIndolesHeterocyclic Compounds, 2-RingHeterocyclic Compounds, Fused-RingHeterocyclic CompoundsCytidinePyrimidine NucleosidesPyrimidinesHeterocyclic Compounds, 1-RingArabinonucleosidesNucleosidesNucleic Acids, Nucleotides, and Nucleosides

Study Officials

  • Julio Barredo, MD

    University of Miami

    STUDY CHAIR

Study Design

Study Type
interventional
Phase
phase 1
Allocation
NON RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
SINGLE GROUP
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

March 21, 2011

First Posted

March 23, 2011

Study Start

March 1, 2011

Primary Completion

October 1, 2015

Last Updated

November 24, 2015

Record last verified: 2015-11

Locations