NCT06146738

Brief Summary

There is no consensus on the optimal treatment of patients with high-grade glioma, especially when patients have limited functioning performance at presentation (KPS ≤70). Therefore, there are varied practice patterns around pursuing biopsy, resection, or palliation (best supportive care). This study aims to characterize the impact of palliative care versus biopsy versus resection on survival and quality of life in these patients. Also, it will aim to determine if there is a subset of patients that benefit the most from resection or biopsy, for which outcome, and how they could be identified preoperatively. This study is an international, multicenter, prospective, 3-arm cohort study of observational nature. Consecutive HGG patients will be treated with palliative care, biopsy, or resection at a 1:3:3 ratio. Primary endpoints are: 1) overall survival, and 2) quality of life at 6 weeks, 3 months and 6 months after initial presentation based on the EQ-5D, EORTC QLQ C30 and EORTC BN 20 questionnaires. Total duration of the study is 5 years. Patient inclusion is 4 years, follow-up is 1 year.

Trial Health

83
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,015

participants targeted

Target at P75+ for all trials

Timeline
32mo left

Started Jan 2023

Longer than P75 for all trials

Geographic Reach
5 countries

8 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress56%
Jan 2023Jan 2029

Study Start

First participant enrolled

January 1, 2023

Completed
11 months until next milestone

First Submitted

Initial submission to the registry

November 18, 2023

Completed
9 days until next milestone

First Posted

Study publicly available on registry

November 27, 2023

Completed
4.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

January 1, 2028

Expected
1 year until next milestone

Study Completion

Last participant's last visit for all outcomes

January 1, 2029

Last Updated

November 27, 2023

Status Verified

November 1, 2023

Enrollment Period

5 years

First QC Date

November 18, 2023

Last Update Submit

November 18, 2023

Conditions

Keywords

Palliative careBest supportive careBiopsyResectionQuality of lifeSurvivalGlioblastoma

Outcome Measures

Primary Outcomes (4)

  • Overall survival

    Time from diagnosis to death from any cause

    Up to 5 years postoperatively

  • Quality of life at 3 months (EORTC QLQ C30)

    Quality of life as assessed by the EORTC QLQ C30 questionnaire

    3 months postoperatively

  • Quality of life at 3 months (EORTC QLQ BN20)

    Quality of life as assessed by the EORTC QLQ BN20 questionnaire

    3 months postoperatively

  • Quality of life at 3 months (EQ-5D)

    Quality of life as assessed by the EQ-5D questionnaire

    3 months postoperatively

Secondary Outcomes (6)

  • Quality of life at 6 weeks (EORTC QLQ C30)

    6 weeks postoperatively

  • Quality of life at 6 weeks (EORTC QLQ BN20)

    6 weeks postoperatively

  • Quality of life at 6 weeks (EQ-5D)

    6 weeks postoperatively

  • Quality of life at 6 months (EORTC QLQ C30)

    6 months postoperatively

  • Quality of life at 6 months (EORTC QLQ BN20)

    6 months postoperatively

  • +1 more secondary outcomes

Study Arms (3)

Palliative Care

Best supportive care without surgical intervention

Behavioral: Palliative Care

Tumor biopsy

Tumor biopsy

Procedure: Tumor biopsy

Tumor resection

Maximal safe resection of the tumor

Procedure: Tumor resection

Interventions

Palliative CareBEHAVIORAL

Best supportive care without surgical intervention

Also known as: Best Supportive Care
Palliative Care
Tumor biopsyPROCEDURE

Tumor biopsy

Tumor biopsy

Maximal safe resection of the tumor

Tumor resection

Eligibility Criteria

Age18 Years - 90 Years
Sexall
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Patients will be recruited from the neurosurgical or neurological outpatient clinic or through referral from general hospitals of the participating neurosurgical hospitals, located in Europe and the United States. The study is carried out by centers from the ENCRAM Consortium.

You may qualify if:

  • Age ≥18 years and ≤90 years
  • Tumor diagnosed as HGG (WHO grade III/IV) on MRI as assessed by the neurosurgeon
  • Written informed consent

You may not qualify if:

  • Tumors of the cerebellum, brainstem or midline
  • Inability to give written informed consent
  • Secondary high-grade glioma due to malignant transformation from low-grade glioma
  • Second primary malignancy within the past 5 years with the exception of adequately treated in situ carcinoma of any organ or basal cell carcinoma of the skin

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (8)

University of California, San Francisco

San Francisco, California, 94143, United States

RECRUITING

Massachusetts General Hospital

Boston, Massachusetts, 02114, United States

RECRUITING

University Hospital Leuven

Leuven, Belgium

RECRUITING

Technical University Munich

Munich, Bavaria, 74076, Germany

NOT YET RECRUITING

University Hospital Heidelberg

Heidelberg, Germany

RECRUITING

Erasmus Medical Center

Rotterdam, South Holland, 3015 GD, Netherlands

RECRUITING

Haaglanden Medical Centre

The Hague, South Holland, 2512 VA, Netherlands

RECRUITING

Inselspital Universitätsspital Bern

Bern, 3010, Switzerland

NOT YET RECRUITING

MeSH Terms

Conditions

Glioblastoma

Interventions

Palliative CareTransurethral Resection of Bladder

Condition Hierarchy (Ancestors)

AstrocytomaGliomaNeoplasms, NeuroepithelialNeuroectodermal TumorsNeoplasms, Germ Cell and EmbryonalNeoplasms by Histologic TypeNeoplasmsNeoplasms, Glandular and EpithelialNeoplasms, Nerve Tissue

Intervention Hierarchy (Ancestors)

Patient CareTherapeuticsHealth ServicesHealth Care Facilities Workforce and ServicesUrologic Surgical ProceduresUrogenital Surgical ProceduresSurgical Procedures, Operative

Study Officials

  • Jasper Gerritsen, MD PhD

    Erasmus Medical Center

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Jasper Gerritsen, MD PhD

CONTACT

Arnaud Vincent, MD PhD

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR INVESTIGATOR
PI Title
Jasper K.W. Gerritsen MD PhD

Study Record Dates

First Submitted

November 18, 2023

First Posted

November 27, 2023

Study Start

January 1, 2023

Primary Completion (Estimated)

January 1, 2028

Study Completion (Estimated)

January 1, 2029

Last Updated

November 27, 2023

Record last verified: 2023-11

Locations