Caring for the Sexual Health and Wellbeing of Cancer Survivors and Their Intimate Partners: An Anonymous Survey
An Anonymous Survey Investigating Care for the Sexual Health of Cancer Survivors and Their Intimate Partners, as Provided by the United Kingdom Hospital Cancer Team
1 other identifier
observational
169
1 country
1
Brief Summary
The aim of this survey study is to provide broad information as reported by cancer survivors and their intimate partners about both their sexual health and their experiences of care from the United Kingdom hospital cancer team, including their perspectives on factors that may hinder or help care. This information will be analysed and used to inform the questions asked in a separate, subsequent, qualitative study.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P50-P75 for all trials
Started Aug 2022
Shorter than P25 for all trials
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
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Study Timeline
Key milestones and dates
Study Start
First participant enrolled
August 23, 2022
CompletedPrimary Completion
Last participant's last visit for primary outcome
September 30, 2022
CompletedStudy Completion
Last participant's last visit for all outcomes
September 30, 2022
CompletedFirst Submitted
Initial submission to the registry
August 3, 2023
CompletedFirst Posted
Study publicly available on registry
October 10, 2023
CompletedOctober 10, 2023
October 1, 2023
1 month
August 3, 2023
October 6, 2023
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Number of participants who had a sexual health discussion(s) with the hospital cancer team at any point during cancer care
Sexual health discussion:19 examples of the sort of topics that may have been discussed in relation to sexual health
Up to 10 years prior to completing survey (discussion(s) about sexual health could have occurred at any point during cancer care)
Secondary Outcomes (4)
Number of participants with specific levels of impact on their sex lives by cancer and its treatments
From each individual participants' cancer diagnosis/cancer treatment until the date that they completed the survey
Survey questionnaire to measure the nature and prevalence of care for sexual health that cancer survivors and their intimate partners self-report experiencing from the UK hospital cancer team.
Participants can report care received from prior to their cancer treatment through to their follow-up care (last 10 years only)
Survey questionnaire to measure the nature and prevalence of the perceived barriers to and facilitators for care for sexual health as received by cancer survivors and their intimate partners when provided by the UK hospital cancer team.
Participants can report their perceptions from diagnosis through to their follow-up care (last 10 years only)
Survey questionnaire to measure to what extent groups of cancer survivors and their intimate partners with differing characteristics receive differing care for their sexual health from the UK hospital cancer team.
Participants diagnosed with cancer in the previous 10 years.
Study Arms (2)
People with Cancer
No intervention
Partners of People with Cancer
No intervention
Interventions
Eligibility Criteria
People with cancer or the partners of people with cancer
You may qualify if:
- Cancer survivors diagnosed with any type of cancer at age 18 years or over
- A partner of someone diagnosed with any type of cancer at age 18 years or over
- Cancer diagnosis must be no more than 10 years ago
- Cancer survivors or their partners who experienced treatment and follow up care in the United Kingdom
You may not qualify if:
- Cancer survivors who were diagnosed with cancer below the age of 18 years
- Partners of cancer survivors who were diagnosed with cancer below the age of 18 years
- Cancer diagnosis was more than 10 years ago
- Cancer survivors/partners of survivors where the cancer treatment and follow up was not in the United Kingdom
- Previous completion of the survey
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (1)
Bournemouth University
Bournemouth, Dorset, BH8 8AJ, United Kingdom
Related Publications (1)
Sheppard S, Culliford D, Glen T, Lee S, Sheppard ZA, Porter S. Care for sexual health in oncology survey: a regression analysis of variables associated with the likelihood of people with cancer having a sexual health discussion with the hospital cancer team. Eur J Oncol Nurs. 2025 Oct;78:102977. doi: 10.1016/j.ejon.2025.102977. Epub 2025 Sep 1.
PMID: 40967121DERIVED
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Sam Porter, PhD, RN
Bournemouth University
Study Design
- Study Type
- observational
- Observational Model
- OTHER
- Time Perspective
- CROSS SECTIONAL
- Sponsor Type
- OTHER
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
August 3, 2023
First Posted
October 10, 2023
Study Start
August 23, 2022
Primary Completion
September 30, 2022
Study Completion
September 30, 2022
Last Updated
October 10, 2023
Record last verified: 2023-10
Data Sharing
- IPD Sharing
- Will not share
Participant information sheet stated that information would not be made publicly available via a data sharing repository. This approach was taken due to the sensitive nature of the topic and was anticipated to provide reassurance and potentially improve recruitment.