NCT05573893

Brief Summary

This is a prospective non-interventional, multicenter study observing patient reported outcomes as well as real-world efficacy and safety of trastuzumab deruxtecan (T-DXd) in patients with documented Human epidermal growth factor receptor 2 (HER2)-positive, HER2-low or HER2-ultralow unresectable or metastatic breast cancer (BC) receiving T-DXd in line with the applicable summary of product characteristics (SmPC) within routine clinical practice in Germany. In addition, patients will be informed about use of digital healthcare application (DiGA).

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
800

participants targeted

Target at P75+ for all trials

Timeline
69mo left

Started Sep 2023

Longer than P75 for all trials

Geographic Reach
1 country

107 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress32%
Sep 2023Dec 2031

First Submitted

Initial submission to the registry

September 29, 2022

Completed
11 days until next milestone

First Posted

Study publicly available on registry

October 10, 2022

Completed
11 months until next milestone

Study Start

First participant enrolled

September 12, 2023

Completed
8.3 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 31, 2031

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 31, 2031

Last Updated

February 27, 2026

Status Verified

February 1, 2026

Enrollment Period

8.3 years

First QC Date

September 29, 2022

Last Update Submit

February 25, 2026

Conditions

Keywords

Trastuzumab-Deruxtecan,Human epidermal growth factor receptor 2 Positive Breast Cancer,Human epidermal growth factor receptor 2 Low Breast Cancer,Human epidermal growth factor receptor 2 Ultralow Breast Cancer,

Outcome Measures

Primary Outcomes (1)

  • Real-world Time To Next Treatment (rwTTNT1)

    rwTTNT1 is defined as the time from T-DXd initiation to initiation of subsequent therapy

    From first dose of T-DXd until initiation of subsequent therapy or death of any cause, whichever came first, assessed up to 60 months

Secondary Outcomes (2)

  • Change in HRQoL based on FACT-B questionnaire at 6 months after baseline

    6 months

  • Change in HRQoL based on FACT-G questionnaire at 6 months after baseline

    6 months

Other Outcomes (12)

  • Change in HRQoL based on FACT-B questionnaire compared to baseline over time

    Patient questionnaires will be collected at time points synchronised with clinic visits during study, assessed up to 60 months

  • Change in HRQoL based on EQ-5D questionnaire compared to baseline over time

    Patient questionnaires will be collected at time points synchronised with clinic visits during study, assessed up to 60 months

  • Real-world Overall Response Rate (rwORR)

    From first dose of T-DXd until end of T-DXd treatment or death of any cause, whichever came first (investigator-assessed according to clinical routine), assessed up to 60 months

  • +9 more other outcomes

Study Arms (2)

Cohort 1

Cohort 1 containing patients with documented HER2-positive unresectable or metastatic BC receiving T-DXd treatment in line with the applicable summary of product characteristics (SmPC) within routine clinical practice.

Cohort 2

Cohort 2 containing patients with documented HER2-low or HER2-ultralow unresectable or metastatic BC receiving T-DXd treatment in line with the applicable summary of product characteristics (SmPC) within routine clinical practice.

Eligibility Criteria

Age18 Years - 130 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Patients with documented Human epidermal growth factor receptor 2 (HER2)-positive, HER2-low or HER2-ultralow unresectable or metastatic breast cancer (BC) receiving T-DXd in line with the applicable summary of product characteristics (SmPC) within routine clinical practice may participate in this NIS.

You may qualify if:

  • Adults ≥ 18 years old
  • Patients (irrespective of sex and gender) with pathologically documented breast cancer that:
  • is unresectable or metastatic
  • has confirmed HER2+, HER2-low or HER2-ultralow tumor status by local pathology
  • was previously treated with one or more anti-HER2 directed therapy if the tumor is HER2+ OR
  • was previously treated with at least one endocrine therapy in the metastatic setting and is not considered suitable for endocrine therapy as the next line of treatment if the tumor is HR+, HER2-low or HER2-ultralow OR
  • was previously treated with prior chemotherapy in the metastatic setting or developed disease recurrence during or within 6 months of completing adjuvant chemotherapy if the tumor is HER2-low.
  • Has documented radiologic progression (during or after most recent treatment)
  • Patient is eligible for T-DXd treatment in line with the specifications mentioned in the ENHERTU® SmPC and is scheduled for T-DXd treatment \*
  • Patient is able to read and understand either German or English
  • Signed written informed consent
  • The prescription of the medicinal product is clearly separated from the decision to include the patient in this NIS.

You may not qualify if:

  • Start of T-DXd treatment for more than 30 days before enrolment (eCRF registration date)
  • Known hypersensitivity to T-DXd or any of the excipients of the drug
  • Pregnancy or breast feeding
  • Current or planned participation in an interventional clinical trial
  • Current or planned systemic treatment of any tumor other than unresectable or metastatic BC
  • Patients who have never received any T-DXd dose will be discontinued from the study and will be considered as a late screening failure, no further documentation besides reason and date of discontinuation is needed.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (107)

Research Site

Amberg, 92224, Germany

WITHDRAWN

Research Site

Ansbach, 91522, Germany

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Apolda, 99510, Germany

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Aschaffenburg, 63739, Germany

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Augsburg, 86150, Germany

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Augsburg, 86156, Germany

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Bad Reichenhall, 83435, Germany

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Baden-Baden, 76532, Germany

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Balingen, 72336, Germany

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Bamberg, 96049, Germany

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Berlin, 10117, Germany

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Berlin, 10367, Germany

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Berlin, 10715, Germany

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Berlin, 12623, Germany

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Berlin, 13125, Germany

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Bielefeld, 33604, Germany

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Bonn, 53111, Germany

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Brandenburg, 14770, Germany

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Braunschweig, 38100, Germany

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Bremen, 28209, Germany

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Bremerhaven, 27574, Germany

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Coburg, 96450, Germany

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Dessau, 6847, Germany

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Donauwörth, 86609, Germany

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Dortmund, 44137, Germany

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Dresden, 1127, Germany

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Dresden, 1307, Germany

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Düsseldorf, 40235, Germany

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Eggenfelden, 84307, Germany

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Erfurt, 99085, Germany

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Essen, 45147, Germany

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Filderstadt - Bonlanden, 70794, Germany

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Frankfurt, 60389, Germany

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Freudenstadt, 72250, Germany

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Fürstenfeldbruck, 82256, Germany

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Fürstenwalde, 15517, Germany

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Gerlingen, 70839, Germany

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Giessen, 35392, Germany

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Halle, 6110, Germany

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Hamburg, 20259, Germany

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Hamburg, 21073, Germany

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Hanover, 30161, Germany

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Hanover, 30449, Germany

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Heidenheim, 89522, Germany

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Heilbronn, 74078, Germany

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Hildesheim, 31134, Germany

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Homburg/Saar, 66421, Germany

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Jena, 7747, Germany

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Kaiserslautern, 67655, Germany

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Karlsruhe, 76135, Germany

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Kassel, 34117, Germany

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Kassel, 34125, Germany

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Kempten, 87439, Germany

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Kiel, 24116, Germany

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Krefeld, 47805, Germany

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Kulmbach, 95326, Germany

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Landshut, 84036, Germany

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Leer, 26789, Germany

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Leipzig, 4103, Germany

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Loerrach, 79539, Germany

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Lübeck, 23562, Germany

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Lüneburg, 21339, Germany

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Magdeburg, 39130, Germany

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Mainz, 55131, Germany

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Marburg, 35037, Germany

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Memmingen, 87700, Germany

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Mönchengladbach, 41061, Germany

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Mutlangen, 73557, Germany

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Mühlhausen, 99974, Germany

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München, 80638, Germany

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München, 80639, Germany

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München, 81377, Germany

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Neumarkt, 92318, Germany

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Neustadt am Rübenberge, 31535, Germany

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Nordhausen, 99734, Germany

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Nuremberg, 90419, Germany

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Oldenburg, 26121, Germany

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Oranienburg, 16515, Germany

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Potsdam, 14467, Germany

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Recklinghausen, 45659, Germany

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Regensburg, 93053, Germany

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Rosenheim, 83022, Germany

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Rotenburg (Wümme), 27356, Germany

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Saalfeld, 7318, Germany

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Saarbrücken, 66113, Germany

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Salzwedel, 29410, Germany

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Schwäbisch Hall, 74523, Germany

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Siegen, 57072, Germany

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Singen, 78224, Germany

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Solingen, 42653, Germany

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Stade, 21680, Germany

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Stuttgart, 70199, Germany

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Torgau, 4860, Germany

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Troisdorf, 53840, Germany

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Ulm, 89073, Germany

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Walsrode, 29664, Germany

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Weiden, 92637, Germany

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Weinheim, 69469, Germany

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Weißenfels, 6667, Germany

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Westerstede, 26655, Germany

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Wiesbaden, 65199, Germany

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Winnenden, 71364, Germany

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Witten, 58452, Germany

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Wolfsburg, 38440, Germany

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Wuppertal, 42283, Germany

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Würzburg, 97080, Germany

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Zittau, 02763, Germany

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MeSH Terms

Conditions

Breast NeoplasmsNeoplasm Metastasis

Condition Hierarchy (Ancestors)

Neoplasms by SiteNeoplasmsBreast DiseasesSkin DiseasesSkin and Connective Tissue DiseasesNeoplastic ProcessesPathologic ProcessesPathological Conditions, Signs and Symptoms

Central Study Contacts

AstraZeneca Clinical Study Information Center

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

September 29, 2022

First Posted

October 10, 2022

Study Start

September 12, 2023

Primary Completion (Estimated)

December 31, 2031

Study Completion (Estimated)

December 31, 2031

Last Updated

February 27, 2026

Record last verified: 2026-02

Data Sharing

IPD Sharing
Will share

Qualified researchers can request access to anonymized individual patient-level data from AstraZeneca group of companies sponsored clinical trials via the request portal. All request will be evaluated as per the AZ disclosure commitment: https://astrazenecagrouptrials.pharmacm.com/ST/Submission/Disclosure. Yes, indicates that AZ are accepting requests for IPD, but this does not mean all requests will be shared.

Time Frame
AstraZeneca will meet or exceed data availability as per the commitments made to the EFPIA Pharma Data Sharing Principles. For details of our timelines, please rerefer to our disclosure commitment at https://astrazenecagrouptrials.pharmacm.com/ST/Submission/Disclosure.
Access Criteria
When a request has been approved AstraZeneca will provide access to the deidentified individual patient-level data in an approved sponsored tool. Signed Data Sharing Agreement (non-negotiable contract for data accessors) must be in place before accessing requested information. Additionally, all users will need to accept the terms and conditions of the SAS MSE to gain access. For additional details, please review the Disclosure Statements at https://astrazenecagrouptrials.pharmacm.com/ST/Submission/Disclosure
More information

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