NCT03263169|Unknown
Community-based Personalized Care and QOL
A Pragmatic Trial to Evaluate the Impact of Community-based Personalized Care on Quality of Life in Older and Disabled Adults
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A Pragmatic Trial to Evaluate the Impact of Community-based Personalized Care on Quality of Life in Older and Disabled Adults
Sponsor study identifier
observational
1,100
1 country
1
Study Start
July 1, 2017
Actual (reported)Primary Completion
September 30, 2018
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Study Completion
September 30, 2018
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
A pragmatic randomized trial to evaluate the impact of an integrated patient experience and outcome measurement system supported by citizens, caregivers and community through eHealth technology. The primary research question is: What is the effectiveness of the WECCC approach on quality of life in people aged 65 and older or who self-identify as disabled compared to people not receiving the Health TAPESTRY program?
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
September 30, 2018
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
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Some registry-reported names shown below are not yet linked in this graph.
Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
July 1, 2017
Actual (reported)August 21, 2017
Actual (reported)August 28, 2017
Actual (reported)September 30, 2018
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
September 30, 2018
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Quality of Life
McGill QoL - patient and family
Baseline and then monthly for 24 months
Perceived health
EQ-5D-5L - patient
Baseline and then monthly for 24 months
Caregiver Burden 1
Baseline and then monthly for 24 months
Caregiver Burden 2
Baseline and then monthly for 24 months
Patient experience
Baseline and then monthly for 24 months
Family experience
Baseline and then monthly for 24 months
Symptom management 1
Baseline and then monthly for 24 months
Completion of baseline measures then enrolled in a community-based personalized care intervention that consists of four core elements: volunteer support, interprofessional care, technology, social network linkage
Completion of baseline measures with six-month delayed community-based personalized care intervention: volunteer support, interprofessional care, technology, social network linkage
volunteer support, health technology, interprofessional care, social network linkage
Registry-reported names are shown in full. Names without a link have not yet been matched to a Syfrah profile.
Seniors who identify with having a functional disability or serious chronic disease; and informal caregivers. Many patients within this broad target population will be at risk of worsening quality of life or escalating health care utilization now or in the future due to aging, disease progression, or unmet health, social or economic needs.
Windsor-Essex Compassionate Care Community Program Management Office
Windsor, Ontario, N8T 1B5, Canada
Michelle Howard, PhD
McMaster University
Lisa Dolovich, PhD
McMaster University
Kathryn Pfaff, PhD
University of Windsor
First Submitted
August 21, 2017
First Posted
August 28, 2017
Study Start
July 1, 2017
Actual (reported)Primary Completion
September 30, 2018
Estimated (date passed)Implementing Shared Decision Making in Interprofessional Home Care Teams
Contact the study team to confirm eligibility.
This estimate has passed. The registry has not confirmed an actual date for this milestone.
Study Completion
September 30, 2018
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Last Updated
August 28, 2017
Record last verified: 2017-08
Download the complete ClinicalTrials.gov record imported by Syfrah, including fields not shown in this page. The registry may contain a newer revision.
Source: ClinicalTrials.gov.
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