NCT03091127

Brief Summary

With the recent addition of carfilzomib as a treatment option for multiple myeloma, no data is available yet on how the drug is being used outside of the clinical trial setting. This study will therefore provide essential data to demonstrate the real world utilization of carfilzomib in routine clinical practice, including dosage, administration schedule, regimen, duration of treatment and reason for discontinuation in Europe.

Trial Health

98
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Strong global presence with extensive site network
Enrollment
705

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Mar 2017

Typical duration for all trials

Geographic Reach
11 countries

114 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

January 30, 2017

Completed
1 month until next milestone

Study Start

First participant enrolled

March 14, 2017

Completed
13 days until next milestone

First Posted

Study publicly available on registry

March 27, 2017

Completed
3 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

March 17, 2020

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

March 17, 2020

Completed
Last Updated

December 12, 2022

Status Verified

December 1, 2022

Enrollment Period

3 years

First QC Date

January 30, 2017

Last Update Submit

December 8, 2022

Conditions

Outcome Measures

Primary Outcomes (14)

  • Carfilzomib starting dose

    Carfilzomib dose at first administration

    18 months

  • Carfilzomib dose

    Carfilzomib dose at subsequent administrations

    18 months

  • Carfilzomib dose modification

    Modification includes change in dose level, dose interruption, and dose delays

    18 months

  • Time to carfilzomib dose modification

    At least one carfilzomib dose modification, escalation or reduction

    18 months

  • Reason for dose modification

    Reason for dose modification or delay

    18 months

  • Number of cycles started

    Number of carfilzomib treatment cycles started throughout study period

    18 months

  • Carfilzomib regimen

    Treatment combination

    18 months

  • Carfilzomib dosing frequency

    Number of administrations per cycle

    18 months

  • Carfilzomib dosing schedule

    Timing of carfilzomib administration within treatment cycle

    18 months

  • Carfilzomib duration of treatment

    Duration of carfilzomib treatment

    18 months

  • Starting dose of concomitant anti-myeloma agents

    Dose of combination agents (e.g. lenalidomide or dexamethasone) at baseline

    18 months

  • Dose modification for concomitant anti-myeloma agents

    Modification includes change in dose level, dose interruption, and dose delays

    18 months

  • Reason for frequency modification

    At least 1 change in frequency of carfilzomib administration.

    18 months

  • Reason for change in frequency of concomitant multiple myeloma therapies

    Reason for change in frequency of administration.

    18 months

Secondary Outcomes (36)

  • International Staging System (ISS) score and revised ISS stage at diagnosis and carfilzomib regimen initation

    18 months

  • Eastern Cooperative Oncology Group (ECOG) performance status

    18 months

  • Cytogenetic risk profile at diagnosis

    18 months

  • Presence of CRAB features (i.e. hypercalcemia, renal insufficiency, anemia and/or bone pain)

    18 months

  • Presence of comorbidities

    18 months

  • +31 more secondary outcomes

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodProbability Sample
Study Population

Patients with Multiple Myeloma

You may qualify if:

  • Age 18 years or older at the time of carfilzomib initiation
  • At least one prior line of MM treatment has been received
  • Carfilzomib treatment has been initiated per routine practice and is currently ongoing
  • At least one administration of carfilzomib in a combination regimen (ie, not monotherapy) has been received
  • Provided written informed consent prior to abstraction of any data, in countries where written informed consent is required.
  • Subjects who previously completed treatment with carfilzomib in a clinical trial, a compassionate use program or through routine practice, are eligible to take part in the study.
  • Subjects who receive radiotherapy concurrently with carfilzomib treatment are also eligible to take part in the study.
  • Subjects who initiate carfilzomib treatment on a combination regimen, subsequently discontinue all concomitant medications but remain on carfilzomib monotherapy in later cycles, remain eligible for participation in the study.
  • Subjects who are also enrolled in other observational studies in which standard of care is not altered are eligible to take part in the study,

You may not qualify if:

  • Subjects who are enrolled in a carfilzomib clinical trial will not be eligible to additionally take part in this observational study.
  • Subjects who are receiving carfilzomib treatment within a compassionate use program will not be eligible to take part in this observational study. If a subject who has enrolled into this observational study, also enrolls in a clinical trial in which MM treatment and/or disease management is protocol-specified, the subject becomes ineligible and the subject's data will be censored from the time the subject enrolled the clinical trial.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (114)

Krankenhaus Sankt Josef Braunau

Braunau am Inn, 5280, Austria

Location

Medizinische Universitaet Innsbruck

Innsbruck, 6020, Austria

Location

Landeskrankenhaus Hochsteiermark

Leoben, 8700, Austria

Location

Ordensklinikum Linz Elisabethinen

Linz, 4020, Austria

Location

Landeskrankenhaus Rankweil

Rankweil, 6830, Austria

Location

Landeskrankenhaus Salzburg

Salzburg, 5020, Austria

Location

Kardinal Schwarzenbergsches Krankenhaus

Schwarzach im Pongau, 5620, Austria

Location

Landeskrankenhaus Steyr

Steyr, 4400, Austria

Location

Universitaetsklinikum Allgemeines Krankenhaus Wien

Vienna, 1090, Austria

Location

Landesklinikum Waidhofen an der Ybbs

Waidhofen an der Ybbs, 3340, Austria

Location

Klinikum Wels - Grieskirchen GmbH

Wels, 4600, Austria

Location

Krankenhaus Wiener Neustadt

Wiener Neustadt, 2700, Austria

Location

Imelda Ziekenhuis Vzw

Bonheiden, 2820, Belgium

Location

Hopital Delta

Brussels, 1160, Belgium

Location

Universitair Ziekenhuis Antwerpen

Edegem, 2650, Belgium

Location

Algemeen Ziekenhuis Sint-Dimpna

Geel, 2440, Belgium

Location

Algemeen Ziekenhuis Sint Lucas

Ghent, 9000, Belgium

Location

Centres Hospitaliers Jolimont - Hopital de Jolimont

Haine Saint Paul - La Louviere, 7100, Belgium

Location

Jan Yperman Ziekenhuis

Ieper, 8900, Belgium

Location

Centre Hospitalier Regional de la Citadelle

Liège, 4000, Belgium

Location

Centre Hospitalier Universitaire de Liege - Sart Tilman

Liège, 4000, Belgium

Location

Algemeen Ziekenhuis Nikolaas Campus Sint-Niklaas

Sint-Niklaas, 9100, Belgium

Location

Centre Hospitalier Wallonie Picarde - site imc

Tournai, 7500, Belgium

Location

Centre Hospitalier Regional Verviers

Verviers, 4800, Belgium

Location

University Multiprofile Hospital for Active Treatment Alexandrovska

Sofia, 1431, Bulgaria

Location

University Multiprofile Hospital for Active Treatment Sveti Ivan Rilski EAD

Sofia, 1431, Bulgaria

Location

Military Medical Academy Multiprofile Hospital for Active Treatment - Sofia

Sofia, 1606, Bulgaria

Location

Specialized Hospital for Active Treatment of Hematology Diseases EAD

Sofia, 1756, Bulgaria

Location

Fakultni nemocnice Hradec Kralove

Hradec Králové, 500 05, Czechia

Location

Fakultni nemocnice Olomouc

Olomouc, 775 20, Czechia

Location

Fakultni nemocnice Plzen

Pilsen, 304 60, Czechia

Location

Vseobecna fakultni nemocnice v Praze

Prague, 128 08, Czechia

Location

Centre Hospitalier Rene Dubos

Amiens, 80054, France

Location

Centre Hospitalier Henri Duffaut

Avignon, 84902, France

Location

Centre Hospitalier de la Cote Basque

Bayonne, 64109, France

Location

Hopital Henri Mondor

Créteil, 94010, France

Location

Centre Hospitalier Universitaire de Grenoble

Grenoble, 38043, France

Location

Centre Hospitalier Regional Universitaire de Limoges - Hopital Dupuytren

Limoges, 87042, France

Location

Centre Hospitalier Universitaire de Montpellier - Hopital Saint Eloi

Montpellier, 34295, France

Location

Groupe Hospitalo Universitaire de Nimes - Hopital Caremeau

Nîmes, 30029, France

Location

Hopital Pitie-Salpetriere

Paris, 75013, France

Location

Hôpital Cochin

Paris, 75014, France

Location

Groupe Hospitalier Necker - Enfants Malades

Paris, 75015, France

Location

Centre Hospitalier Universitaire de Poitiers - Hopital la Miletrie

Poitiers, 86021, France

Location

Centre Hospitalier Universitaire de Reims - Hopital Robert Debre

Reims, 51056, France

Location

Centre Hospitalier de Saint Quentin

Saint-Quentin, 02321, France

Location

Clinique Sainte Anne

Strasbourg, 67000, France

Location

University General Hospital of Evros-Alexandroupolis District

Alexandroupoli, 68100, Greece

Location

General Hospital Evangelismos

Athens, 10676, Greece

Location

Errikos Dunant Hospital Center

Athens, 11526, Greece

Location

General Hospital of Athens Georgios Gennimatas

Athens, 11527, Greece

Location

General Hospital of Athens Laiko

Athens, 11527, Greece

Location

Laikon University Hospital

Athens, 11527, Greece

Location

University of Athens School of Medicine Alexandra Hospital

Athens, 11528, Greece

Location

University General Hospital Attikon

Athens, 12462, Greece

Location

Metropolitan General

Athens, 15562, Greece

Location

Metropolitan Hospital

Athens, 18547, Greece

Location

University Hospital of Heraklion

Heraklion, 71110, Greece

Location

University Hospital of Larissa

Larissa, 41110, Greece

Location

General Hospital of Patras Agios Andreas

Pátrai, 26335, Greece

Location

General University Hospital of Patras Panagia i Voithia

Pátrai, 26504, Greece

Location

Special Anticancer Hospital of Piraeus Metaxa

Piraeus, 18537, Greece

Location

Theagenion Cancer Hospital of Thessaloniki

Thessaloniki, 54007, Greece

Location

General Hospital of Thessaloniki Georgios Papanikolaou

Thessaloniki, 57010, Greece

Location

Rabin Medical Center - Beilinson Hospital

Petah Tikva, 4941492, Israel

Location

Tel Aviv Sourasky Medical Center

Tel Aviv, 6423906, Israel

Location

Azienda Ospedaliera Santi Antonio e Biagio e Cesare Arrigo

Alessandria, 15121, Italy

Location

Azienda Unita Sanitaria Locale Toscana Centro

Bagno A Ripoli (FI), 50012, Italy

Location

Ospedale Monsignor Raffaele Dimiccoli

Barletta, 76121, Italy

Location

Azienda Ospedaliera G Rummo

Benevento, 82100, Italy

Location

Azienda Socio Sanitaria Territoriale Papa Giovanni XXIII

Bergamo, 24127, Italy

Location

Presidio Ospedaliero Di Summa Perrino

Brindisi, 72100, Italy

Location

Azienda Ospedaliera Brotzu Presidio Ospedaliero A Businco Centro di Riferimento Oncologico Regionale

Cagliari, 09121, Italy

Location

Azienda Ospedaliera Santa Croce e Carle

Cuneo, 12100, Italy

Location

Azienda Ospedaliera di Alessandro Manzoni Lecco

Lecco, 23900, Italy

Location

Spedali Riuniti di Livorno

Livorno, 57123, Italy

Location

Azienda Ospedaliera Papardo

Messina, 98158, Italy

Location

IRCCS Istituto Europeo di Oncologia

Milan, 20141, Italy

Location

Azienda Ospedaliera di Padova

Padua, 35128, Italy

Location

Presidio Ospedaliero Andrea Tortora

Pagani (SA), 84016, Italy

Location

Azienda Ospedaliera Ospedali Riuniti Villa Sofia Cervello

Palermo, 90146, Italy

Location

Azienda Ospedaliera di Perugia Ospedale Santa Maria della Misericordia

Perugia, 06156, Italy

Location

Ospedale Civile Spirito Santo

Pescara, 65124, Italy

Location

Azienda Ospedaliera San Carlo

Potenza, 85100, Italy

Location

Grande Ospedale Metropolitano Bianchi Melacrino Morelli

Reggio Calabria, 89124, Italy

Location

Azienda Unita Sanitaria Locale Istituto di Ricovero di Reggio Emilia Arcispedale Santa Maria Nuova

Reggio Emilia, 42100, Italy

Location

Fondazione Policlinico Tor Vergata

Roma, 00133, Italy

Location

Ospedale Sant Eugenio

Roma, 00144, Italy

Location

Azienda Ospedaliera Policlinico Umberto I

Roma, 00161, Italy

Location

Azienda Ospedaliera Sant Andrea

Roma, 00189, Italy

Location

Azienda Ospedaliera Universitaria Ospedale San Giovanni di Dio e Ruggi D Aragona

Salerno, 84131, Italy

Location

Presidio Ospedaliero San Giuseppe Moscati

Taranto, 74123, Italy

Location

Azienda Ospedaliera Citta della Salute e della Scienza di Torino Ospedale Molinette

Torino, 10126, Italy

Location

Azienda Ospedaliero Universitaria Integrata di Udine

Udine, 33100, Italy

Location

Azienda Ospedaliera Universitaria Integrata di Verona Ospedale G B Rossi Borgo Roma

Verona, 37134, Italy

Location

Rode Kruis Ziekenhuis

Beverwijk, 1942 LE, Netherlands

Location

Amphia Ziekenhuis, locatie Langendijk

Breda, 4819 EV, Netherlands

Location

Sint Antonius Ziekenhuis, locatie Nieuwegein

Nieuwegein, 3435 CM, Netherlands

Location

Franciscus Vlietland

Schiedam, 3118 JH, Netherlands

Location

HagaZiekenhuis, locatie Leyweg

The Hague, 2545 CH, Netherlands

Location

VieCuri Medisch Centrum

Venlo, 5912 BL, Netherlands

Location

Oslo Universitetssykehus HF

Oslo, 0372, Norway

Location

Spitalul Judetean de Urgenta Dr Constantin Opris Baia Mare

Baia Mare, 430031, Romania

Location

Policlinica de Diagnostic Rapid

Brasov, 500152, Romania

Location

Spitalul Universitar de Urgenta Militar Central "Dr. Carola Davila"

Bucharest, 010825, Romania

Location

Spitalul Clinic Colentina

Bucharest, 020125, Romania

Location

Fundeni Clinical Institute

Bucharest, 022328, Romania

Location

Coltea Clinical Hospital

Bucharest, 030171, Romania

Location

Profesor Dr Ion Chiricuta Institut of Oncology

Cluj-Napoca, 400124, Romania

Location

Spitalul Clinic Municipal Filantropia Craiova

Craiova, 200143, Romania

Location

Iasi Regional Oncology Institute

Iași, 700483, Romania

Location

Spitalul Clinic Dr Gavril Curteanu Oradea

Oradea, 410469, Romania

Location

Targu-Mures County Emergency Clinical Hospital

Târgu Mureş, 540136, Romania

Location

SC Oncomed SRL

Timișoara, 300239, Romania

Location

Related Publications (2)

  • Leleu X, Katodritou E, Kuehr T, Terpos E, Caers J, Zambello R, Brescianini A, Liang T, Wetten S, Badelita SN. Real-world use of carfilzomib combined with lenalidomide and dexamethasone in patients with multiple myeloma in Europe and Israel. EJHaem. 2022 Nov 6;4(1):174-183. doi: 10.1002/jha2.595. eCollection 2023 Feb.

    PMID: 36819146BACKGROUND
  • Terpos E, Zambello R, Leleu X, Kuehr T, Badelita SN, Katodritou E, Brescianini A, Liang T, Wetten S, Caers J. Real-World Use and Effectiveness of Carfilzomib Plus Dexamethasone in Relapsed/Refractory Multiple Myeloma in Europe. Cancers (Basel). 2022 Oct 28;14(21):5311. doi: 10.3390/cancers14215311.

    PMID: 36358731BACKGROUND

Related Links

MeSH Terms

Conditions

Multiple Myeloma

Condition Hierarchy (Ancestors)

Neoplasms, Plasma CellNeoplasms by Histologic TypeNeoplasmsHemostatic DisordersVascular DiseasesCardiovascular DiseasesParaproteinemiasBlood Protein DisordersHematologic DiseasesHemic and Lymphatic DiseasesHemorrhagic DisordersLymphoproliferative DisordersImmunoproliferative DisordersImmune System Diseases

Study Officials

  • MD

    Amgen

    STUDY DIRECTOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
OTHER
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

January 30, 2017

First Posted

March 27, 2017

Study Start

March 14, 2017

Primary Completion

March 17, 2020

Study Completion

March 17, 2020

Last Updated

December 12, 2022

Record last verified: 2022-12

Data Sharing

IPD Sharing
Will share

De-identified individual patient data for variables necessary to address the specific research question in an approved data sharing request

Shared Documents
STUDY PROTOCOL, SAP, ICF, CSR
Time Frame
Data sharing requests relating to this study will be considered beginning 18 months after the study has ended and either 1) the product and indication (or other new use) have been granted marketing authorization in both the US and Europe or 2) clinical development for the product and/or indication discontinues and the data will not be submitted to regulatory authorities. There is no end date for eligibility to submit a data sharing request for this study.
Access Criteria
Qualified researchers may submit a request containing the research objectives, the Amgen product(s) and Amgen study/studies in scope, endpoints/outcomes of interest, statistical analysis plan, data requirements, publication plan, and qualifications of the researcher(s). In general, Amgen does not grant external requests for individual patient data for the purpose of re-evaluating safety and efficacy issues already addressed in the product labelling. Requests are reviewed by a committee of internal advisors, and if not approved, may be further arbitrated by a Data Sharing Independent Review Panel. Upon approval, information necessary to address the research question will be provided under the terms of a data sharing agreement. This may include anonymized individual patient data and/or available supporting documents, containing fragments of analysis code where provided in analysis specifications. Further details are available at the link below.
More information

Locations