NCT02966509

Brief Summary

The Engagement of Patients with Advanced Cancer is an intervention that utilizes well-trained lay health coaches to engage patients and their families in goals of care and shared decision-making after a diagnosis of advanced cancer. Although lay health workers have never been tested in this role, we hypothesize that lay health workers can feasibly improve goals of care documentation and help to reduce unwanted healthcare utilization at the end of life for Veterans diagnosed with new advanced stages of cancer and those diagnosed with recurrent disease.

Trial Health

100
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
213

participants targeted

Target at P75+ for not_applicable

Timeline
Completed

Started Aug 2013

Longer than P75 for not_applicable

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

August 1, 2013

Completed
3.2 years until next milestone

First Submitted

Initial submission to the registry

October 10, 2016

Completed
1 month until next milestone

First Posted

Study publicly available on registry

November 17, 2016

Completed
14 days until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2016

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 1, 2016

Completed
1 year until next milestone

Results Posted

Study results publicly available

December 18, 2017

Completed
Last Updated

October 31, 2018

Status Verified

October 1, 2018

Enrollment Period

3.3 years

First QC Date

October 10, 2016

Results QC Date

January 4, 2017

Last Update Submit

October 4, 2018

Conditions

Outcome Measures

Primary Outcomes (1)

  • Number of Participants With Completed Goals of Care Documentation. We Will Evaluate if 75% of Patients in the Intervention Arm Have a Documented Goals of Care Titled Medical Note Within 6 Months of Patient Enrollment in the Study.

    Feasibility is defined as at least 75% of patients in the intervention arm with a documented Goals of Care titled medical note within 6 months of patient enrollment in the study.

    6 months after each patient enrollment

Secondary Outcomes (9)

  • Emergency Department Visit (Chart Review)

    6 months after patient enrollment

  • Emergency Department Visit (Chart Review)

    15 months after patient enrollment

  • Hospitalization Visits (Chart Review)

    6 months after patient enrollment

  • Hospitalization Visits (Chart Review)

    15 months after patient enrollment

  • Hospice Referral (Chart Review)

    6 months after patient enrollment

  • +4 more secondary outcomes

Study Arms (2)

A: Intervention Arm

EXPERIMENTAL

All participants randomized to Arm A will receive the EPAC intervention as well as usual oncologic care.

Behavioral: EPAC

B: Control Group Arm

NO INTERVENTION

All participants randomized to Arm B will receive usual oncologic care.

Interventions

EPACBEHAVIORAL

Each patient will receive a lay health worker who will engage and educate patients on goals of care documentation and will continue to address goals of care for at least 6 months with patients after enrollment in the study.

A: Intervention Arm

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Newly diagnosed stage III or IV cancer
  • Recurrent disease (any stage)
  • Ability to consent to study

You may not qualify if:

  • Patients who are unable to consent to study procedures

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Related Publications (2)

  • Patel MI, Agrawal M, Blayney DW, Bundorf MK, Milstein A. Long-Term Engagement of Patients With Advanced Cancer: Results From the EPAC Randomized Clinical Trial. JAMA Oncol. 2024 Jul 1;10(7):905-911. doi: 10.1001/jamaoncol.2024.1221.

  • Patel MI, Sundaram V, Desai M, Periyakoil VS, Kahn JS, Bhattacharya J, Asch SM, Milstein A, Bundorf MK. Effect of a Lay Health Worker Intervention on Goals-of-Care Documentation and on Health Care Use, Costs, and Satisfaction Among Patients With Cancer: A Randomized Clinical Trial. JAMA Oncol. 2018 Oct 1;4(10):1359-1366. doi: 10.1001/jamaoncol.2018.2446.

MeSH Terms

Conditions

DeathLung NeoplasmsStomach NeoplasmsColonic NeoplasmsGlioblastomaHead and Neck NeoplasmsRectal NeoplasmsMelanomaKidney NeoplasmsProstatic NeoplasmsTesticular NeoplasmsLiver NeoplasmsNeoplasms, Unknown Primary

Interventions

erythromycin propionate-N-acetylcysteinate

Condition Hierarchy (Ancestors)

Pathologic ProcessesPathological Conditions, Signs and SymptomsRespiratory Tract NeoplasmsThoracic NeoplasmsNeoplasms by SiteNeoplasmsLung DiseasesRespiratory Tract DiseasesGastrointestinal NeoplasmsDigestive System NeoplasmsDigestive System DiseasesGastrointestinal DiseasesStomach DiseasesColorectal NeoplasmsIntestinal NeoplasmsColonic DiseasesIntestinal DiseasesAstrocytomaGliomaNeoplasms, NeuroepithelialNeuroectodermal TumorsNeoplasms, Germ Cell and EmbryonalNeoplasms by Histologic TypeNeoplasms, Glandular and EpithelialNeoplasms, Nerve TissueRectal DiseasesNeuroendocrine TumorsNevi and MelanomasSkin NeoplasmsSkin DiseasesSkin and Connective Tissue DiseasesUrologic NeoplasmsUrogenital NeoplasmsFemale Urogenital DiseasesFemale Urogenital Diseases and Pregnancy ComplicationsUrogenital DiseasesKidney DiseasesUrologic DiseasesMale Urogenital DiseasesGenital Neoplasms, MaleGenital Diseases, MaleGenital DiseasesProstatic DiseasesEndocrine Gland NeoplasmsEndocrine System DiseasesTesticular DiseasesGonadal DisordersLiver DiseasesNeoplasm MetastasisNeoplastic Processes

Results Point of Contact

Title
Dr. Manali Patel
Organization
Stanford University and VA Palo Alto Health Care System

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
No

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
INVESTIGATOR
Purpose
HEALTH SERVICES RESEARCH
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Assistant Professor

Study Record Dates

First Submitted

October 10, 2016

First Posted

November 17, 2016

Study Start

August 1, 2013

Primary Completion

December 1, 2016

Study Completion

December 1, 2016

Last Updated

October 31, 2018

Results First Posted

December 18, 2017

Record last verified: 2018-10