Perception of Palliative Care Encounter

NCT02558257 | Completed

• 2 other identifiers: 2015-0578NCI-2017-01598
• Study Type: observational
• Target: 209
• Locations: 1 country
• Sites: 1

Brief Summary

Objectives: Primary Objective The primary objective is to determine patients' perceptions of the timeliness of their referral to an outpatient palliative care clinic. The secondary objectives are to determine:

1. 1.The factors and variables associated with perception of timeliness such as age, gender, and symptom distress
2. 2.The patients' perceptions of the physical environment of the outpatient clinic at UT MD Anderson Cancer Center (UTMDACC) such as lighting, music, and lack of a waiting room; and
3. 3.If there is an association between level of distress (physical, psychological, and spiritual distress as measured by Edmonton Symptom Assessment Scale (ESAS) and the usefulness of the referral to palliative care center.

Conditions

Advanced Cancers

Keywords

Advanced Cancers; Survey; Questionnaire

Outcome Measures

Primary Outcomes (1)

• Participants' Perceptions of Timeliness of Referral to an Outpatient Palliative Care Clinic

  Percentage of respondents who report that their referral to supportive care was late (including "late" and "too late") estimated with a standard error not larger than 0.04.

  1 day

Study Arms (1)

Palliative Care Survey

Initial consultation visit followed by phone survey within 1 week +/- 4 days of initial consultation.

Behavioral: Survey

Interventions

Survey BEHAVIORAL

Participants complete palliative care survey within 1 week +/- 4 days of initial consultation via phone survey conducted by Research nurse/assistant.

Also known as: Questionnaire

Palliative Care Survey

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Participants who have undergone a consultation with a supportive Care doctor in the Supportive Care Center at The University of Texas MD Anderson Cancer Center in Houston, Texas.

You may qualify if:

• Have advanced cancer, defined as locally advanced, metastatic or incurable disease
• \>/=18 years of age
• Seen at UTMDACC outpatient Supportive Care Center for consultation
• Provided informed consent

You may not qualify if:

• Memorial Delirium Assessment Scale (MDAS) \>/= 13.
• Inability to read and speak English

Sponsors & Collaborators

• M.D. Anderson Cancer Center: lead

Study Sites (1)

University of Texas MD Anderson Cancer Center

Houston, Texas, 77030, United States

Location

Related Links

• University of Texas MD Anderson Cancer Center Website

MeSH Terms

Interventions

Surveys and Questionnaires

Intervention Hierarchy (Ancestors)

Data Collection; Epidemiologic Methods; Investigative Techniques; Health Care Evaluation Mechanisms; Quality of Health Care; Health Care Quality, Access, and Evaluation; Public Health; Environment and Public Health

Study Officials

• Angelique N. Wong, MD

  M.D. Anderson Cancer Center

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: September 22, 2015
• First Posted: September 23, 2015
• Study Start: August 16, 2015
• Primary Completion: April 7, 2021
• Study Completion: April 7, 2021
• Last Updated: April 14, 2021

Record last verified: 2021-04

Locations

US (1)