NCT02492607

Brief Summary

A substantial number of DCIS lesions will never form a health hazard, particularly if it concerns slow-growing low-risk DCIS (grade I and II). This implies that many women might be unnecessarily going through intensive treatment resulting in a decrease in quality of life and an increase in health care costs, without any survival benefit. The LORD (LOw Risk DCIS) study is a non-randomized, international, multicenter, phase III non-inferiority trial, and aims to determine whether screen-detected low-risk DCIS can safely be managed by an active surveillance strategy or that the conventional treatment, being either WLE alone, WLE + RT, or mastectomy, and possibly HT, should remain the standard of care.

Trial Health

75
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
2,500

participants targeted

Target at P75+ for not_applicable

Timeline
95mo left

Started Feb 2017

Longer than P75 for not_applicable

Geographic Reach
1 country

60 active sites

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress54%
Feb 2017Feb 2034

First Submitted

Initial submission to the registry

June 24, 2015

Completed
14 days until next milestone

First Posted

Study publicly available on registry

July 8, 2015

Completed
1.6 years until next milestone

Study Start

First participant enrolled

February 13, 2017

Completed
17 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

February 1, 2034

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

February 1, 2034

Last Updated

January 26, 2026

Status Verified

January 1, 2025

Enrollment Period

17 years

First QC Date

June 24, 2015

Last Update Submit

January 23, 2026

Conditions

Keywords

WomenDCIS grade I and IIActive surveillanceStandard treatment

Outcome Measures

Primary Outcomes (1)

  • Ipsilateral invasive breast cancer-free rate at 10 years

    Ipsilateral invasive breast cancer-free rate at 10 years (both therapeutic policies

    10 years from inclusion

Secondary Outcomes (12)

  • Rate of invasive disease at the final pathology specimen (standard arm only)

    from inclusion till time of invasive disease during 10 years at minimum

  • Rate of grade III DCIS at the final pathology specimen (standard arm only)

    from inclusion till time of invasive disease during 10 years at minimum

  • Biopsy rate for ipsilateral breast during follow-up

    from inclusion to the time of death, during 10 years at minimum

  • Masectomy rate for ipsilateral breast

    from inclusion to the time of ipsilateral breast cancer or death, during 10 years at minimum

  • Time to ipsilateral grade III DCIS

    from inclusion to the development of a new ipsilateral DCIS of grade III, up to 10 years

  • +7 more secondary outcomes

Study Arms (2)

Standard treatment

ACTIVE COMPARATOR

Standard treatment according to local policy. This can be either wide local excision only, wide local excision and radiotherapy, or mastectomy. Hormonal therapy is also allowed. Follow-up:by annual digital mammography for a period of 5 years and a digital mammography at 7 and 10 years.

Other: Standard treatmentRadiation: radiotherapy

Active surveillance

EXPERIMENTAL

Active surveillance : monitoring by annual digital mammography for a period of 5 years and a digital mammography at 7 and 10 years.

Device: digital mammography

Interventions

wide local excision only or wide local excision and radiotherapy or mastectomy. +/- hormonal therapy

Standard treatment

annual mammography

Also known as: Active surveillance
Active surveillance
radiotherapyRADIATION

according local policy

Standard treatment

Eligibility Criteria

Age45 Years+
Sexfemale
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Written informed consent according to ICH GCP, and national andlocal regulations
  • Women ≥ 45 years old, any menopausal status
  • Unilateral DCIS grade I or II of any size
  • American Society of Anesthesiologists (ASA) score 1-2 or 3, only if able to undergo surgery and yearly mammography
  • Lesions of type 'calcifications only', detected by population-based or opportunistic screening mammography
  • Within twelve weeks of detection, stereotactic biopsy has to be performed from the area of the calcifications. Preferably vacuum assisted biopsies. Alternatively, at least six 12 G needle biopsies (or the equivalent of six 12 G needles) may be used. ) . Whatever needle size is applied, it is essential to confirm that the biopsies contain representative calcifications via biopsy radiography, microscopy, or both.
  • Estrogen receptor ≥ 80% positive and HER2 negative: 0 or 1+ or 2+ with negative ISH), analysed centrally by pathology at NKI-AVL
  • In case of an extended lesion (\> 5 cm): biopsies were taken from the center and the periphery of the lesion, or from two peripheral parts of the lesion
  • In case of multiple lesions with calcifications biopsies have been taken from two, but not more, groups of calcifications
  • Marker placement at biopsy site (s) in the breast
  • FFPE tissue blocks from the biopsy and, if applicable, from the resection specimen, are available for translational research purposes. If no FFPE tissue blocks can be submitted, 10 unstained slides of 4-5 micrometer thickness from the lesion(s) are acceptable
  • Good correlation between pathological and radiological findings i.e. both findings confirm low-risk DCIS and no suspicion of high- grade DCIS or invasive breast cancer

You may not qualify if:

  • Estrogen receptor negative: \<80% or HER2 positive: 3+, or 2+ with positive ISH
  • Presence of either mass, increased focal density or architectural distortion around the calcifications on mammography (suspicious for invasive disease)
  • Presence of Paget's disease, invasive breast cancer, or pleomorphic LCIS; Lobular neoplasia, referring to atypical lobular hyperplasia (ALH) and/or classic Lobular Carcinoma In Situ according to the WHO Classification of Tumours of the Breast, is no reason to exclude, whereas pleomorphic LCIS is
  • Symptomatic DCIS e.g. DCIS detected by palpation or bloody nipple discharge
  • Synchronous invasive carcinoma in the contralateral breast
  • Prior history of invasive breast cancer or DCIS, prior surgery because of benign breast lesion (s) is allowed
  • Prior history of other malignancy (except non-melanoma skin cancer and carcinoma in situ of the cervix) unless patient is discharged from follow-up for at least five years.
  • Serious disease that precludes definitive surgical treatment (e.g cardiovascular/ pulmonary/ renal disease)
  • Individual with a family member with a known gene mutation associated with increased risk of breast cancer, unless study participant is a proven non-carrier of mutation
  • Pregnancy or breast-feeding. Contraceptive measures during the trial are mandatory for those patients that will participate in standard treatment arm and adequate counseling should be provided by the treating physician. The duration of contraception will be specified by the treating physician according to patient and treatment characteristics, standard clinical practice and national regulations
  • Any psychological, familial, sociological or geographical condition potentially hampering compliance with the study protocol and follow-up schedule; those conditions should be discussed with the patient before registration in the trial

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (60)

Jeroen Bosch Ziekenhuis

's-Hertogenbosch, Netherlands

Location

Noordwest Ziekenhuisgroep- site Alkmaar

Alkmaar, Netherlands

Location

Flevoziekenhuis

Almere Stad, Netherlands

Location

Onze Lieve Vrouwe Gasthuis

Amsterdam, Netherlands

Location

The Netherlands Cancer Institute-Antoni Van Leeuwenhoekziekenhuis

Amsterdam, Netherlands

Location

Rijnstate Ziekenhuis

Arnhem, Netherlands

Location

Wilhelmina Ziekenhuis Assen

Assen, Netherlands

Location

Rode Kruis Ziekenhuis

Beverwijk, Netherlands

Location

Alexander Monro Ziekenhuis

Bilthoven, Netherlands

Location

Amphia Ziekenhuis

Breda, Netherlands

Location

Reinier de Graaf Gasthuis

Delft, Netherlands

Location

Deventer Ziekenhuis

Deventer, Netherlands

Location

Slingeland Ziekenhuis

Doetinchem, Netherlands

Location

Albert Schweitzer Ziekenhuis

Dordrecht, Netherlands

Location

Ziekenhuis Gelderse Vallei

Ede, Netherlands

Location

Catharina Ziekenhuis

Eindhoven, Netherlands

Location

Maxima Medisch Centrum

Eindhoven, Netherlands

Location

Medisch Spectrum Twente Ariensplain

Enschede, Netherlands

Location

Groene Hart Ziekenhuis

Gouda, Netherlands

Location

Martini Ziekenhuis

Groningen, Netherlands

Location

Universitair Medisch Centrum Groningen

Groningen, Netherlands

Location

Spaarne Gasthuis

Haarlem, Netherlands

Location

Saxenburgh Medisch Centrum

Hardenberg, Netherlands

Location

Ziekenhuis St. Jansdal

Harderwijk, Netherlands

Location

Tjongerschans Ziekenhuis

Heerenveen, Netherlands

Location

Zuyderland Medisch Centrum

Heerlen, Netherlands

Location

Ziekenhuisgroep Twente

Hengelo, Netherlands

Location

Ter Gooi

Hilversum, Netherlands

Location

Spaarne ziekenhuis

Hoofddorp, Netherlands

Location

Treant Zorggroep Bethesda

Hoogeveen, Netherlands

Location

Dijklander

Hoorn, Netherlands

Location

Medisch Centrum Leeuwarden

Leeuwarden, Netherlands

Location

Leids Universitair Medisch Centrum

Leiden, Netherlands

Location

Alrijne Ziekenhuis

Leiderdorp, Netherlands

Location

Haaglanden MC Antoniushove

Leidschendam, Netherlands

Location

Academisch Ziekenhuis Maastricht

Maastricht, Netherlands

Location

St. Antonius Ziekenhuis

Nieuwegein, Netherlands

Location

Canisius-Wilhelmina Ziekenhuis

Nijmegen, Netherlands

Location

Dijklander

Purmerend, Netherlands

Location

Erasmus Medisch Centrum

Rotterdam, Netherlands

Location

Maasstad Ziekenhuis

Rotterdam, Netherlands

Location

Franciscus Gasthuis en Vlietland

Schiedam, Netherlands

Location

Zuyderland Ziekenhuis

Sittard, Netherlands

Location

Antonius Ziekenhuis

Sneek, Netherlands

Location

Zorgsaam Zeeuws-Vlaanderen

Terneuzen, Netherlands

Location

Zorgsaam Ziekenhuis

Terneuzen, Netherlands

Location

HagaZiekenhuis

The Hague, Netherlands

Location

Ziekenhuis Rivierenland

Tiel, Netherlands

Location

St. Elisabeth Ziekenhuis

Tilburg, Netherlands

Location

Bernhoven Ziekenhuis

Uden, Netherlands

Location

Diakonessenhuis

Utrecht, Netherlands

Location

Universitair Medisch Centrum Utrecht

Utrecht, Netherlands

Location

Maxima Medisch Centrum - Locatie Veldhoven

Veldhoven, Netherlands

Location

VieCuri - Medisch Centrum voor Noord-Limburg - Locatie Venlo

Venlo, Netherlands

Location

St Jans Gasthuis

Weert, Netherlands

Location

Streekziekenhuis Koningin Beatrix

Winterswijk, Netherlands

Location

Zaans Medisch Centrum

Zaandam, Netherlands

Location

Haga ziekenhuis loc Zoetermeer

Zoetermeer, Netherlands

Location

Gelre ziekenhuizen

Zutphen, Netherlands

Location

Isala Klinieken

Zwolle, Netherlands

Location

Related Publications (1)

  • Elshof LE, Tryfonidis K, Slaets L, van Leeuwen-Stok AE, Skinner VP, Dif N, Pijnappel RM, Bijker N, Rutgers EJ, Wesseling J. Feasibility of a prospective, randomised, open-label, international multicentre, phase III, non-inferiority trial to assess the safety of active surveillance for low risk ductal carcinoma in situ - The LORD study. Eur J Cancer. 2015 Aug;51(12):1497-510. doi: 10.1016/j.ejca.2015.05.008. Epub 2015 May 26.

    PMID: 26025767BACKGROUND

MeSH Terms

Conditions

Carcinoma, Intraductal, Noninfiltrating

Interventions

MammographyObservationRadiotherapy

Condition Hierarchy (Ancestors)

AdenocarcinomaCarcinomaNeoplasms, Glandular and EpithelialNeoplasms by Histologic TypeNeoplasmsBreast Carcinoma In SituCarcinoma in SituNeoplasms, Ductal, Lobular, and Medullary

Intervention Hierarchy (Ancestors)

RadiographyDiagnostic ImagingDiagnostic Techniques and ProceduresDiagnosisMethodsInvestigative TechniquesTherapeutics

Study Officials

  • Jelle Wesseling, PhD

    The Netherlands Cancer Institute

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
NON RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

June 24, 2015

First Posted

July 8, 2015

Study Start

February 13, 2017

Primary Completion (Estimated)

February 1, 2034

Study Completion (Estimated)

February 1, 2034

Last Updated

January 26, 2026

Record last verified: 2025-01

Data Sharing

IPD Sharing
Will not share

Locations