NCT02130362

Brief Summary

This is a registry study to evaluate the long-term safety and effectiveness of adalimumab in pediatric patients with moderately to severely active CD who are treated as recommended in the local product label.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Strong global presence with extensive site network
Enrollment
1,446

participants targeted

Target at P75+ for all trials

Timeline
54mo left

Started Aug 2014

Longer than P75 for all trials

Geographic Reach
21 countries

125 active sites

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress73%
Aug 2014Nov 2030

First Submitted

Initial submission to the registry

May 1, 2014

Completed
4 days until next milestone

First Posted

Study publicly available on registry

May 5, 2014

Completed
4 months until next milestone

Study Start

First participant enrolled

August 28, 2014

Completed
16.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

November 1, 2030

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

November 1, 2030

Last Updated

July 16, 2025

Status Verified

July 1, 2025

Enrollment Period

16.2 years

First QC Date

May 1, 2014

Last Update Submit

July 14, 2025

Conditions

Keywords

Crohn's DiseaseRegistryAdalimumabCrohn'sInflammatory Bowel DiseasesGastrointestinal Diseases

Outcome Measures

Primary Outcomes (9)

  • Number of treatment-emergent AESI per 100 PYs of infections and malignancies

    Up to 10 years

  • Percentage of subjects with SAEs

    Up to 10 years

  • Number of treatment-emergent other AESI per 100 PYs

    Up to 5 years

  • Percentage of subjects with other AESI

    Percentages of subjects with AESIs other than infections and malignancies

    Up to 5 years

  • Number of subjects with Adverse Events of Special Interest (AESI) of infections, malignancies, and pregnancies

    Up to 10 years

  • Number of subjects with other AESI

    Number of subjects with AESIs other than infections and malignancies

    Up to 5 years

  • Number of treatment-emergent SAEs per 100 patient years (PYs)

    Up to 10 years

  • Number of subjects with Serious Adverse Events (SAEs)

    Up to 10 years

  • Percentage of subjects with AESI of infections, malignancies, and pregnancies

    Up to 10 years

Secondary Outcomes (5)

  • Short Pediatric Crohn's Disease Activity Index (sh-PCDAI)

    Up to 5 years

  • Short Quality of Life in Inflammatory Bowel Disease Questionnaire (SIBDQ)

    Up to 5 years

  • Work Productivity and Activity Impairment (WPAI) questionnaire

    Up to 5 years

  • Physician's Global Assessment of Disease Activity (PGA)

    Up to 5 years

  • IMPACT III

    Up to 5 years

Study Arms (2)

Immunosuppressant Therapy

Pediatric patients who are being prescribed and treated with immunosuppressant therapy

Adalimumab (Humira) Treatment

Pediatric patients who are prescribed and treated with adalimumab

Eligibility Criteria

Age6 Years - 17 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17)
Sampling MethodProbability Sample
Study Population

Pediatric patients with moderately to severely active Crohn's Disease (CD) who have been prescribed HUMIRA according to the local label and pediatric patients being prescribed and treated with IMM (azathioprine, 6-mercaptopurine, or methotrexate). Patients being prescribed and treated with immunosuppressant therapy with no concurrent biologic use will be enrolled as a reference group.

You may qualify if:

  • For a patient enrolling into the HUMIRA treatment group; A pediatric patient between the ages of 6 and 17 years inclusive at the time of enrollment, diagnosed with moderately to severely active CD who has been prescribed Humira therapy according to the routine clinical practice.
  • For a patient enrolling into the immunosuppressant therapy treatment group; A pediatric patient between the ages of 6 and 17 years inclusive at the time of enrollment, diagnosed with moderately to severely active CD who has been prescribed azathioprine, 6-mercaptopurine or methotrexate.
  • Parent or guardian; or patient (if 18 years of age or older at enrollment and rolling over from an AbbVie-sponsored investigational Pediatric CD investigation trial) has voluntarily signed and dated an Authorization for Use/Disclosure of Data (AUDD)/informed consent form (ICF) after the nature of the registry has been explained and the patient, patient's parent or legal guardian has had the opportunity to ask questions.

You may not qualify if:

  • Patients should not be enrolled into the registry if they are currently being treated with any investigational agents or are receiving any investigational procedures.
  • Patients should not be enrolled into the immunosuppressant therapy treatment group if they require ongoing treatment with approved biologic agents including HUMIRA.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (148)

Univ Alabama, Birmingham CCC /ID# 146060

Birmingham, Alabama, 35294-3300, United States

Location

University of South Alabama /ID# 137255

Mobile, Alabama, 36617, United States

Location

Phoenix Children's Hospital /ID# 141336

Phoenix, Arizona, 85016-7710, United States

Location

Children's Hospital Los Angeles /ID# 141551

Los Angeles, California, 90027, United States

Location

Private practice: Dr. Shervin Rabizadeh /ID# 137269

Los Angeles, California, 90048, United States

Location

Rady Children's Hospital San Diego /ID# 140883

San Diego, California, 92123, United States

Location

Univ California, San Francisco /ID# 141312

San Francisco, California, 94143-2204, United States

Location

Children's Hospital Colorado - Aurora /ID# 137261

Aurora, Colorado, 80045, United States

Location

Connecticut Children's Medical Center - Hartford /ID# 137265

Hartford, Connecticut, 06106, United States

Location

Yale University School of Medicine /ID# 137257

New Haven, Connecticut, 06510, United States

Location

Nemours Children's Health System /ID# 148498

Jacksonville, Florida, 32207, United States

Location

University of Miami /ID# 140893

Miami, Florida, 33136, United States

Location

Winship Cancer Institute of Emory University /ID# 144274

Atlanta, Georgia, 30322, United States

Location

Children's Ctr Digestive, US /ID# 144625

Atlanta, Georgia, 30342, United States

Location

Children's Hospital New Orleans /ID# 144477

New Orleans, Louisiana, 70118, United States

Location

Maine Medical Partners /ID# 147685

Portland, Maine, 04102, United States

Location

Tufts Medical Center /ID# 143581

Boston, Massachusetts, 02111-1552, United States

Location

Massachusetts General Hospital /ID# 141552

Boston, Massachusetts, 02114, United States

Location

Boston Children's Hospital /ID# 164102

Boston, Massachusetts, 02115, United States

Location

Duplicate_UMass Chan Medical School /ID# 148325

Worcester, Massachusetts, 01655, United States

Location

M Health Fairview University of Minnesota Medical Center - East Bank /ID# 137238

Minneapolis, Minnesota, 55455, United States

Location

Mayo Clinic - Rochester /ID# 149245

Rochester, Minnesota, 55905-0001, United States

Location

Univ of Mississippi Med Ctr,US /ID# 137239

Jackson, Mississippi, 39216-4643, United States

Location

Goryeb Children's Hospital /ID# 144275

Morristown, New Jersey, 07960, United States

Location

Women and Childrens Hosp /ID# 143778

Buffalo, New York, 14222, United States

Location

CCMC - Steven and Alexandra Cohen Children's Medical Center of New York /ID# 137266

New Hyde Park, New York, 11042-2057, United States

Location

Columbia Univ Medical Center /ID# 144440

New York, New York, 10032-3725, United States

Location

Columbia Univ Medical Center /ID# 144475

New York, New York, 10032-3725, United States

Location

Univ Med Ctr at Stony Brook /ID# 140913

Stony Brook, New York, 11794, United States

Location

SUNY Upstate Medical University /ID# 148437

Syracuse, New York, 13210, United States

Location

Univ NC Chapel Hill /ID# 137236

Chapel Hill, North Carolina, 27514-4220, United States

Location

Duke Cancer Center /ID# 137268

Durham, North Carolina, 27710-3000, United States

Location

Children's Hospital Oklahoma /ID# 144047

Oklahoma City, Oklahoma, 73104, United States

Location

Geisinger Medical Center /ID# 149910

Danville, Pennsylvania, 17822, United States

Location

Penn State Child Hosp.Hersh,PA /ID# 144476

Hershey, Pennsylvania, 17033, United States

Location

Duplicate_Medical University of South Carolina /ID# 144473

Charleston, South Carolina, 29425, United States

Location

Children's Medical Center /ID# 149256

Dallas, Texas, 75235, United States

Location

Cook Children's Med. Center /ID# 144474

Fort Worth, Texas, 76104, United States

Location

Texas Children's Hospital /ID# 148211

Houston, Texas, 77030-2608, United States

Location

University Of Vermont Medical /ID# 137263

Burlington, Vermont, 05405, United States

Location

Pediatric Specialty of VA /ID# 142831

Fairfax, Virginia, 22031, United States

Location

Duplicate_Swedish Medical Center /ID# 137258

Seattle, Washington, 98104, United States

Location

Seattle Children's Hospital /ID# 140879

Seattle, Washington, 98105, United States

Location

MultiCare Institute for Research & Innovation /ID# 152120

Tacoma, Washington, 98405, United States

Location

Children's Hospital Wisconsin - Milwaukee Campus /ID# 137259

Milwaukee, Wisconsin, 53226, United States

Location

University Clinical Center Tuzla /ID# 130638

Tuzla, Tuzlanski, 75000, Bosnia and Herzegovina

Location

SHAT Hematologic Diseases /ID# 143572

Sofia, 1797, Bulgaria

Location

Alberta Health Services /ID# 128717

Edmonton, Alberta, T6G 1C9, Canada

Location

Duplicate_University of Manitoba / Health Scuience Centre / John Buhler Research /ID# 141310

Winnipeg, Manitoba, R3E 3P4, Canada

Location

IWK Health Center /ID# 127912

Halifax, Nova Scotia, B3K 6R8, Canada

Location

The Univ of Western Ontario /ID# 137962

London, Ontario, N6A 5K8, Canada

Location

Hospital for Sick Children /ID# 127910

Toronto, Ontario, M5G 1X8, Canada

Location

Klinicki bolnicki centar Sestre milosrdnice /ID# 128256

Zagreb, City of Zagreb, 10000, Croatia

Location

Zadar General Hospital /ID# 129830

Zadar, 23000, Croatia

Location

Fakultní nemocnice Hradec Králové - Sokolská /ID# 128521

Hradec Králové, Hradec Kralove, 500 05, Czechia

Location

Fakultni Nemocnice Ostrava /ID# 127913

Ostrava, Ostrava-mesto, 708 52, Czechia

Location

Fakultni nemocnice Olomouc /ID# 127437

Olomouc, 779 00, Czechia

Location

Fakultni nemocnice Kralovske Vinohrady /ID# 127697

Prague, 100 34, Czechia

Location

Krajska zdravotni a.s. Masarykova nemocnice v Usti nad Labem o.z. /ID# 129829

Ústí nad Labem, 401 13, Czechia

Location

Kobenhavns Universitet - Hvidovre Hospital (HH) /ID# 146013

Hvidovre, Capital Region, 2650, Denmark

Location

Tallinn Children's Hospital /ID# 126974

Tallinn, Harju, 13419, Estonia

Location

Children's Clinic Of Tartu Uni /ID# 146017

Tartu, Tartu, 51014, Estonia

Location

Duplicate_Hôpital Pierre Wertheimer /ID# 128193

Bron, Rhone, 69677, France

Location

AP-HP - Hopital Necker /ID# 147702

Paris, 75015, France

Location

Universitaetsklinikum Ulm /ID# 148444

Ulm, Baden-Wurttemberg, 89081, Germany

Location

Duplicate_Universitaetsklinikum Erlangen /ID# 137274

Erlangen, Bavaria, 91054, Germany

Location

Duplicate_Universitaetsklinikum Muenster /ID# 148441

Munster, Lower Saxony, 48149, Germany

Location

Christliches Kinderhospital Osnabrueck /ID# 136629

Osnabrück, Lower Saxony, 49074, Germany

Location

Universitaetsklinikum Aachen /ID# 126591

Aachen, North Rhine-Westphalia, 52074, Germany

Location

Duplicate_Universitaetsklinikum Carl Gustav Carus an der TU Dresden /ID# 127696

Dresden, Saxony, 01307, Germany

Location

Froehlich Gemeinschaftspraxis /ID# 127975

Forchheim, 91301, Germany

Location

Duplicate_Universitaetsklinikum Freiburg /ID# 130010

Freiburg im Breisgau, 79106, Germany

Location

Kinderarztpraxis Neuhausen /ID# 144402

Munich, 80634, Germany

Location

Universitaetsklinikum Regensburg /ID# 137140

Regensburg, 93042, Germany

Location

Agia Sofia Hospital /ID# 134349

Athens, Attica, 11527, Greece

Location

General Hospital of Chest Diseases of Athens SOTIRIA /ID# 147690

Athens, Attica, 11527, Greece

Location

Iatriko Kentro Athinon /ID# 130639

Marousi, Attica, 15125, Greece

Location

Venizeleio General Hospital /ID# 147335

Heraklion, 71409, Greece

Location

General Hospital of Thessaloniki Gennimatas /Id# 163658

Thessaloniki, 54635, Greece

Location

Our Lady's Hospital /ID# 127438

Manorhamilton, Leitrim, Ireland

Location

Schneider Children's Medical Center /ID# 152683

Petah Tikva, Central District, 4920235, Israel

Location

Duplicate_Kaplan Medical Center /ID# 152945

Rehovot, Central District, 7661041, Israel

Location

Yitzhak Shamir Medical Center /ID# 157182

Ẕerifin, Central District, 70300, Israel

Location

Shaare Zedek Medical Center /ID# 144277

Jerusalem, Jerusalem, 91031, Israel

Location

Edmond And Lily Safra Children /ID# 148730

Ramat Gan, Tel Aviv, 5262100, Israel

Location

Duplicate_Ha'Emek Medical Center /ID# 156316

Afula, 18341, Israel

Location

Rambam Health Care Campus /ID# 162061

Haifa, 3109601, Israel

Location

The Lady Davis Carmel Medical Center /ID# 151519

Haifa, 34362, Israel

Location

ASST Fatebenefratelli Sacco - Ospedale Fatebenefratelli e Oftalmico /ID# 144279

Milan, Milano, 20122, Italy

Location

Azienda Ospedaliero-Universitaria Policlinico Umberto I /ID# 141962

Rome, Roma, 00161, Italy

Location

Ospedale Maggiore Carlo Alberto Pizzardi /ID# 147347

Bologna, 40133, Italy

Location

Duplicate_A.O.U. Policlinico G. Martino /ID# 141683

Messina, 98125, Italy

Location

ASST Fatebenefratelli Sacco/Ospedale dei Bambini Vittore Buzzi /ID# 141679

Milan, 20154, Italy

Location

Duplicate_Universita di Napoli Federico II /ID# 144280

Naples, 80131, Italy

Location

Duplicate_POLICLINICO PAOLO GIACCONE /ID# 138410

Palermo, 90127, Italy

Location

Azienda Ospedaliera Ospedali Riuniti Villa Sofia Cervello /ID# 152684

Palermo, 90146, Italy

Location

Azienda Ospedaliero-Universitaria di Parma /ID# 147441

Parma, 43126, Italy

Location

Azienda Usl Di Pescara - Presidio Ospedaliero Di Pescara /ID# 141307

Pescara, 65124, Italy

Location

Hospital of Lithuanian University of Health Sciences Kaunas Clinics /ID# 127809

Kaunas, 50161, Lithuania

Location

Vilnius University Hospital Santaros Klinikos /ID# 127810

Vilnius, 08661, Lithuania

Location

Duplicate_Academisch Medisch Centrum /ID# 141843

Amsterdam, North Holland, 1105 AZ, Netherlands

Location

Duplicate_Erasmus Medisch Centrum /ID# 141841

Rotterdam, South Holland, 3015 GD, Netherlands

Location

2CA-Braga, Hospital de Braga /ID# 138269

Braga, 4710-243, Portugal

Location

Unidade Local de Saude Sao Joao, EPE /ID# 138146

Porto, 4200-319, Portugal

Location

Ctr. Gastroenterologia Ped Oes /ID# 140875

Mayagüez, 00680, Puerto Rico

Location

San Jorge Children Hospital /ID# 138067

San Juan, 00912-3310, Puerto Rico

Location

Spitalul Clinic de Urgenta pentru Copii- Pediatrie II-Nefrologie Pediatrica /ID# 131297

Cluj-Napoca, Cluj, 400177, Romania

Location

Spitalul Clinic de Urgenta pentru Copii ?Louis Turcanu? /ID# 130251

Timișoara, Timiș County, 500063, Romania

Location

Spitalul Clinic de Urgenta Pentru Copii Grigore Alexandrescu /Id# 130358

Bucharest, 011743, Romania

Location

Spitalul Clinic Judetean de Urgenta Targu Mures /ID# 137014

Târgu Mureş, 540136, Romania

Location

Complejo Hospitalario Universitario A Coruña /ID# 137235

A Coruña, A Coruna, 15006, Spain

Location

Hospital Arquitecto Marcide - Complejo Hospitalario Universitario de Ferrol /ID# 138462

Ferrol, A Coruna, 15405, Spain

Location

Complejo Hospitalario Universitario de Santiago (CHUS) /ID# 141667

Santiago de Compostela, A Coruna, 15706, Spain

Location

Hospital Universitari Son Espases /ID# 147446

Palma de Mallorca, Balearic Islands, 07120, Spain

Location

Hospital Universitario Germans Trias i Pujol /ID# 139400

Badalona, Barcelona, 08916, Spain

Location

Hospital Sant Joan de Deu /ID# 152059

Esplugues de Llobregat, Barcelona, 08950, Spain

Location

Consorci Corporacio Sanitaria Parc Tauli Sabadell /ID# 149029

Sabadell, Barcelona, 08208, Spain

Location

Hospital Universitario Severo Ochoa /ID# 141545

Leganés, Madrid, 28911, Spain

Location

Hospital Universitario Puerta de Hierro - Majadahonda /ID# 157872

Majadahonda, Madrid, 28222, Spain

Location

Hospital Clinico Universitario Virgen de la Arrixaca /ID# 138460

El Palmar, Murcia, 30120, Spain

Location

Hospital Universitario Central de Asturias /ID# 163053

Oviedo, Principality of Asturias, 33011, Spain

Location

OSI Ezkerraldea-Enkarterri-Cruces /ID# 141781

Barakaldo, Vizcaya, 48903, Spain

Location

Hospital Universitario Vall d'Hebron /ID# 141778

Barcelona, 08035, Spain

Location

Hospital Universitario Vall d'Hebron /ID# 146015

Barcelona, 08035, Spain

Location

Hospital General de Granollers /ID# 140882

Barcelona, 08042, Spain

Location

Hospital Universitario de Girona Doctor Josep Trueta /ID# 147572

Girona, 17007, Spain

Location

Hospital Infantil Universitario Nino Jesus /ID# 165738

Madrid, 28009, Spain

Location

Hospital Universitario 12 de Octubre /ID# 136998

Madrid, 28041, Spain

Location

Hospital Universitario La Paz /ID# 161152

Madrid, 28046, Spain

Location

Hospital Regional Universitario de Malaga /ID# 144289

Málaga, 29011, Spain

Location

Compl Hospital Univer de Vigo /ID# 136999

Pontevedra, 36312, Spain

Location

Hospital Universitario Dr. Peset /ID# 159484

Valencia, 46017, Spain

Location

Hospital Universitario y Politecnico La Fe /ID# 141847

Valencia, 46026, Spain

Location

Karolinska University Hospital Solna /ID# 129045

Solna, Stockholm County, 171 64, Sweden

Location

Sodersjukhuset /ID# 152685

Stockholm, Stockholm County, 118 83, Sweden

Location

University Hospital of Derby and Burton NHS Foundation Trust /ID# 131592

Derby, Derbyshire, DE22 3NE, United Kingdom

Location

Sheffield Children's Hospital NHS Foundation Trust /ID# 130370

Sheffield, England, S10 2TH, United Kingdom

Location

Disc_Barts Health NHS Trust - The Royal London Hospital /ID# 128471

London, Greater London, E1 2ES, United Kingdom

Location

University Hospital Southampton NHS Foundation Trust /ID# 147538

Southampton, Hampshire, SO16 6YD, United Kingdom

Location

Duplicate_NHS Greater Glasgow and Clyde /ID# 127436

Glasgow, Scotland, G12 0XH, United Kingdom

Location

St Helier Hospital /ID# 150097

Carshalton, Surrey, SM5 1AA, United Kingdom

Location

NHS Grampian /ID# 131296

Aberdeen, AB15 6RE, United Kingdom

Location

Birmingham Women's and Children's NHS Foundation Trust /ID# 136631

Birmingham, B4 6NH, United Kingdom

Location

Duplicate_Cambridge University Hospitals NHS Foundation Trust /ID# 143779

Cambridge, CB2 0QQ, United Kingdom

Location

Alder Hey Children's Hospital /ID# 138013

Liverpool, L12 2AP, United Kingdom

Location

Manchester University NHS Foundation Trust /ID# 128476

Manchester, M9 2AA, United Kingdom

Location

Duplicate_The Newcastle Upon Tyne Hospitals NHS Foundation Trust /ID# 147438

Newcastle upon Tyne, NE7 7DN, United Kingdom

Location

St George's University Hospitals NHS Foundation Trust /ID# 131590

Tooting, SW17 0QT, United Kingdom

Location

Related Links

MeSH Terms

Conditions

Crohn DiseaseInflammatory Bowel DiseasesGastrointestinal Diseases

Condition Hierarchy (Ancestors)

GastroenteritisDigestive System DiseasesIntestinal Diseases

Study Officials

  • ABBVIE INC.

    AbbVie

    STUDY DIRECTOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

May 1, 2014

First Posted

May 5, 2014

Study Start

August 28, 2014

Primary Completion (Estimated)

November 1, 2030

Study Completion (Estimated)

November 1, 2030

Last Updated

July 16, 2025

Record last verified: 2025-07

Locations