NCT01789281

Brief Summary

Study to allow access to everolimus for patients who are on everolimus treatment in a Novartis-sponsored study and are benefiting from the treatment as judged by the investigator

Trial Health

93
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
34

participants targeted

Target at below P25 for phase_4

Timeline
Completed

Started May 2013

Longer than P75 for phase_4

Geographic Reach
9 countries

24 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

February 7, 2013

Completed
5 days until next milestone

First Posted

Study publicly available on registry

February 12, 2013

Completed
3 months until next milestone

Study Start

First participant enrolled

May 14, 2013

Completed
7.3 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

August 28, 2020

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

August 28, 2020

Completed
10 months until next milestone

Results Posted

Study results publicly available

June 11, 2021

Completed
Last Updated

June 11, 2021

Status Verified

May 1, 2021

Enrollment Period

7.3 years

First QC Date

February 7, 2013

Results QC Date

May 17, 2021

Last Update Submit

May 17, 2021

Conditions

Keywords

NeoplasmsCarcinoid tumorNeuroendocrine tumor

Outcome Measures

Primary Outcomes (1)

  • Percentage of Participants With Adverse Events (AEs) and Serious Adverse Events (SAEs)

    Any sign or symptom that occurs during the study treatment plus the 30 days post treatment. All SAEs were captured in safety database from enrollment. Safety data collection was changed in the protocol amendment released in March 2016: AEs and SAEs were captured in the clinical database from protocol amendment release (18 March 2016). Hence, SAEs from both safety database and clinical database are summarized separately.

    SAEs collected in safety database from enrollment to end of treatment (EOT) plus 30 days, up to approximately 7.2 years. AEs/SAEs collected in clinical database from protocol amendment date 18 March 2016 to EOT plus 30 days, up to approximately 4.5 years

Secondary Outcomes (1)

  • Percentage of Patients With Clinical Benefit

    After 3 months from enrollment, every 3 months, until end of treatment, assessed up to 7.2 years

Study Arms (1)

Everolimus

EXPERIMENTAL

Participants who were receiving everolimus in a Novartis-sponsored study, were not progressing on the current study treatment and were unable to access everolimus treatment outside of a clinical trial. Participants receiving everolimus treatment in combination with Sandostatin LAR Depot on the parent protocol were allowed to continue Sandostatin LAR Depot treatment.

Drug: EverolimusDrug: Sandostatin LAR Depot

Interventions

Everolimus was provided by the investigator in 2.5 mg, 5 mg or 10 mg tablets for daily oral administration. The starting dose of everolimus was the same as the last dose that was given in the parent study. Dose modification thereafter was done at the discretion of the Investigator based upon what is in the subject's best interest.

Everolimus

Sandostatin LAR Depot was provided by Novartis or by the investigational site considering local regulations. The dose and frequency of Sandostatin LAR Intramuscular injections was the same as the last dose that was given in the parent study.

Everolimus

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Subject enrolled in a Novartis-sponsored, CD\&MA study receiving everolimus or everolimus plus Sandostatin LAR Depot and fulfilled all their requirements in the parent study
  • Subject benefiting from treatment with everolimus, as determined by the guidelines of the parent protocol.

You may not qualify if:

  • Subject was permanently discontinued from everolimus study treatment in the parent study.
  • Subject was receiving everolimus in combination with an unapproved or experimental treatment

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (24)

Hematology Oncology Services of Arkansas SC

Little Rock, Arkansas, 72205, United States

Location

Rocky Mountain Cancer Centers SC

Greenwood Village, Colorado, United States

Location

Stamford Hospital

Stamford, Connecticut, 06902, United States

Location

H Lee Moffitt Cancer Center and Research Institute SC-2

Tampa, Florida, 33612, United States

Location

Central Indiana Cancer Centers SC

Indianapolis, Indiana, 46227, United States

Location

Crescent City Research Consortium, LLC SC-3

Metairie, Louisiana, 70006, United States

Location

Mayo Clinic SC-2

Rochester, Minnesota, 55905, United States

Location

Washington University School of Medicine Dept of Oncology

St Louis, Missouri, 63110, United States

Location

Nebraska Cancer Specialists Onc Dept

Omaha, Nebraska, 68154, United States

Location

Clinical Research Alliance

Lake Success, New York, 11042, United States

Location

New York University Medical Center SC-4

New York, New York, 10016, United States

Location

Oregon Health and Science University SC-8

Portland, Oregon, 97239, United States

Location

Utah Cancer Specialists Utah Cancer (2)

Salt Lake City, Utah, 84106, United States

Location

Novartis Investigative Site

Prague, Czech Republic, 120 00, Czechia

Location

Novartis Investigative Site

Arezzo, AR, 52100, Italy

Location

Novartis Investigative Site

Milan, MI, 20133, Italy

Location

Novartis Investigative Site

Milan, MI, 20141, Italy

Location

Novartis Investigative Site

Groningen, 9713 GZ, Netherlands

Location

Novartis Investigative Site

Leningrad Region, Russia, 188663, Russia

Location

Novartis Investigative Site

Seoul, 03080, South Korea

Location

Novartis Investigative Site

Seoul, 03722, South Korea

Location

Novartis Investigative Site

Barcelona, Catalonia, 08035, Spain

Location

Novartis Investigative Site

Bangkok, 10700, Thailand

Location

Novartis Investigative Site

Izmir, 35040, Turkey (Türkiye)

Location

MeSH Terms

Conditions

NeoplasmsCarcinoid TumorNeuroendocrine Tumors

Interventions

EverolimusOctreotide

Condition Hierarchy (Ancestors)

Neuroectodermal TumorsNeoplasms, Germ Cell and EmbryonalNeoplasms by Histologic TypeAdenocarcinomaCarcinomaNeoplasms, Glandular and EpithelialNeoplasms, Nerve Tissue

Intervention Hierarchy (Ancestors)

SirolimusMacrolidesLactonesOrganic ChemicalsPeptides, CyclicMacrocyclic CompoundsPolycyclic CompoundsPeptidesAmino Acids, Peptides, and Proteins

Limitations and Caveats

The original protocol was designed to collect only SAEs and protocol defined AESIs in the Safety database. The protocol was amended in 2016 (3 years after study was initiated) to include all AEs (non-SAEs, SAEs, and AESIs) to be collected in the clinical database. At the time of amendment release, 32 of the 34 subjects were enrolled and did not have AEs collected in clinical database before protocol amendment, which also amounts to approximately 50% of SAEs not reported in clinical database.

Results Point of Contact

Title
Study director
Organization
Novartis Pharmaceuticals

Study Officials

  • Novartis Pharmaceuticals

    Novartis Pharmaceuticals

    STUDY DIRECTOR

Publication Agreements

PI is Sponsor Employee
No
Restriction Type
OTHER
Restrictive Agreement
Yes

Study Design

Study Type
interventional
Phase
phase 4
Allocation
NA
Masking
NONE
Purpose
TREATMENT
Intervention Model
SINGLE GROUP
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

February 7, 2013

First Posted

February 12, 2013

Study Start

May 14, 2013

Primary Completion

August 28, 2020

Study Completion

August 28, 2020

Last Updated

June 11, 2021

Results First Posted

June 11, 2021

Record last verified: 2021-05

Data Sharing

IPD Sharing
Will share

The terms and conditions of Novartis' agreements with its investigators may vary. However, Novartis does not prohibit any investigator from publishing. Any publications from a single-site are postponed until the publication of the pooled data (ie, data from all sites) in the clinical trial.

Locations