NCT07344012

Brief Summary

The aim is to describe the parental project, spontaneous pregnancies and pregnancies resulting from egg donation or adoption in women diagnosed with Turner syndrome treated at Strasbourg University Hospitals.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
93

participants targeted

Target at P50-P75 for all trials

Timeline
18mo left

Started Nov 2025

Geographic Reach
1 country

1 active site

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

Study Progress23%
Nov 2025Nov 2027

Study Start

First participant enrolled

November 18, 2025

Completed
2 months until next milestone

First Submitted

Initial submission to the registry

January 7, 2026

Completed
8 days until next milestone

First Posted

Study publicly available on registry

January 15, 2026

Completed
1.8 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

November 1, 2027

Expected
17 days until next milestone

Study Completion

Last participant's last visit for all outcomes

November 18, 2027

Last Updated

January 15, 2026

Status Verified

January 1, 2026

Enrollment Period

2 years

First QC Date

January 7, 2026

Last Update Submit

January 7, 2026

Conditions

Turner Syndrome

Keywords

Turner Syndrome

Outcome Measures

Primary Outcomes (1)

  • Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents

    Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents: Example: If 10 women try to have a child and 3 succeed, the success rate is 30%.

    Up to 24 months

Eligibility Criteria

Age18 Years - 40 Years
Sexfemale
Healthy VolunteersNo
Age GroupsAdult (18-64)
Sampling MethodNon-Probability Sample
Study Population

Adult women having presented with Turner syndrome confirmed by karyotyping and having expressed a desire to become a parent during consultation

You may qualify if:

  • Adult women (≥18 years old)
  • Treated at Strasbourg University Hospitals for a parental project during the period from January 1, 2009, to December 31, 2019
  • Having presented with Turner syndrome confirmed by karyotyping
  • Having expressed a desire to become a parent during consultation

You may not qualify if:

  • No desire to become a parent or missing data
  • Missing data

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Service d'Endocrinologie, Diabétologie, Nutrition - CHU de Strasbourg - France

Strasbourg, 67091, France

RECRUITING

MeSH Terms

Conditions

Turner Syndrome

Condition Hierarchy (Ancestors)

Gonadal DysgenesisDisorders of Sex DevelopmentUrogenital AbnormalitiesFemale Urogenital DiseasesFemale Urogenital Diseases and Pregnancy ComplicationsUrogenital DiseasesSex Chromosome Disorders of Sex DevelopmentMale Urogenital DiseasesHeart Defects, CongenitalCardiovascular AbnormalitiesCardiovascular DiseasesHeart DiseasesCongenital AbnormalitiesCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesSex Chromosome DisordersChromosome DisordersGenetic Diseases, InbornGonadal DisordersEndocrine System Diseases

Central Study Contacts

Thibault BAHOUGNE, MD

CONTACT

33 3.88.12.78.99thibault.bahougne@chru-strasbourg.fr

Study Design

Study Type
observational
Observational Model
CASE ONLY
Time Perspective
RETROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

January 7, 2026

First Posted

January 15, 2026

Study Start

November 18, 2025

Primary Completion (Estimated)

November 1, 2027

Study Completion (Estimated)

November 18, 2027

Last Updated

January 15, 2026

Record last verified: 2026-01

Locations

FR(1)