Breaking Barriers to Research Access

NCT07342335 | Recruiting

• 2 other identifiers: C1337321327
• Study Type: observational
• Target: 300
• Locations: 1 country
• Sites: 1

Brief Summary

There is a need to improve accessibility to research and clinical trials within the NHS. Key groups are consistently under-represented in research: those from minority ethnic backgrounds, those with lower socio-economic status and those with impaired capacity. This leads to inequality of healthcare and an inequality of patient experience. Increasing access to research would not only broaden research opportunities and bridge gaps in health equality; diverse research representation means better understanding of disease mechanisms and greater generalisability of findings across the patient population. There are well described socio-economic issues across the region that this trust serves within Cheshire and Merseyside. This brings health challenges for patients. Clatterbridge Cancer Centre is a large networked cancer centre serving Cheshire and Merseyside using a hub model. Research is a core strategic theme; it is hugely important that it is understood not only the areas and hotspots of cancer across the region, but also that patients with those cancers can access a portfolio of research that serves a distinct patient need. Currently there is a lack of such triangulated information within the Trust, which may mean that patient need remains unmet. Therefore the research is designed to understand any barriers that patients may have in accessing research, in tandem with a demographic review and mapping of patient referral and access to the current trials portfolio. This will lead to a truly patient centred approach in accessing research.

Conditions

Cancer

Keywords

Research Barriers

Outcome Measures

Primary Outcomes (1)

• Research Barrier Perception and Research Facilitator Perception

  The primary outcome measures for the questionnaire portion of the study are the overall scores on Research Barrier Perception (RBP: Questions 7 - 11) and Research Facilitator Perception (RFB: Questions 13 - 17). The predictor variable is deprivation, as measured by the IMD, 2019.

  12 Months

Secondary Outcomes (1)

• Sub-scores of the Research Participation Questionnaire and are Treatment Perception Scores, Practical Consideration Scores Trust scores, Information scores and Impact scores, and their relationship with deprivation

  12 Months

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

A wide range of participants will be approached, in terms of age, location, disease site and demographics to give a fair reflection of the patient population

You may qualify if:

• Adults over 18 years. No upper age limit
• A confirmed diagnosis of cancer
• Patient planned to or is receiving treatment at The Clatterbridge Cancer Centre NHS Foundation Trust
• Able to provide informed consent

You may not qualify if:

• Patients with severe co-morbidities considered by the screening team to interfere with the individual's ability to complete requirements of the study or to provide informed consent.

Sponsors & Collaborators

• The Clatterbridge Cancer Centre NHS Foundation Trust: lead

Study Sites (1)

Clatterbridge Cancer Centre

Liverpool, L7 8YA, United Kingdom

RECRUITING

MeSH Terms

Conditions

Neoplasms

Study Design

• Study Type: observational
• Observational Model: CASE ONLY
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: January 8, 2026
• First Posted: January 15, 2026
• Study Start: November 29, 2024
• Primary Completion: May 31, 2026
• Study Completion (Estimated): November 30, 2026
• Last Updated: April 15, 2026

Record last verified: 2026-01

Data Sharing

• IPD Sharing: Will not share

Locations

GB (1)