How do Patients, Relatives and Healthcare Professionals View Person-centered Rehabilitation.
PECRehab
Development of the PEC-REHAB Instrument: Enhancing and Measuring Person-Centeredness in Rehabilitation Services, a Qualitative Study
1 other identifier
observational
120
0 countries
N/A
Brief Summary
This research project aims to integrate insights from marketing and rehabilitation sciences to investigate Person Centered in rehabilitation. The research objectives are
- 1.to better understand what Person Centered Rehabilitation means in rehabilitation,
- 2.to understand how Person Centered Rehabilitation can be enhanced
- 3.to develop an instrument that can be used as a quality indicator to evaluate and monitor Person Centered Rehabilitation in rehabilitation
- 4.to understand the impact of Person Centered Rehabilitation on key outcomes in rehabilitation.
- 5.We will code the data based on first-order terms.
- 6.we will systematically examine these first-order terms to organize them into second-order theory-centric themes.
- 7.we will investigate whether it is possible to categorize the second-order themes into aggregate dimensions which serve to summarize the key components of the emerging theory
- 8.when we have the full set of first-order terms, second-order themes and aggregate dimensions, we will have all ingredients for building a data structure. The data structure provides a graphical presentation of how we progressed from raw data to themes and dimensions.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P50-P75 for all trials
Started Sep 2025
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
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Study Timeline
Key milestones and dates
First Submitted
Initial submission to the registry
July 7, 2025
CompletedFirst Posted
Study publicly available on registry
July 23, 2025
CompletedStudy Start
First participant enrolled
September 5, 2025
CompletedPrimary Completion
Last participant's last visit for primary outcome
December 31, 2026
ExpectedStudy Completion
Last participant's last visit for all outcomes
December 31, 2026
July 23, 2025
July 1, 2025
1.3 years
July 7, 2025
July 16, 2025
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Definition of Person-centered rehabilitation.
Open-ended responses to the research questions; What is PEC in rehabilitation? No fixed measurement scale is used. Responses are analyzed using the Gioia method, resulting in a data structure based on first-order terms, second-order themes, and aggregate dimensions.
From start study to end of study, an average of 1 year
Secondary Outcomes (2)
What are the dimensions of person-centered rehabilitation
From start study to end of study, an average of 1 year
How can person-centered rehabilitation be enhanced?
From start study to end of study, an average of 1 year
Study Arms (4)
Healthcare professionals
This cohort includes healthcare professionals who are actively working within a rehabilitation center or rehabilitation department. Eligible participants are aged 18 years or older and have provided written informed consent. No active interventions are performed in this study. Participants are invited to take part in a focus group or an in-depth interview to share their experiences and perspectives related to person-centered care in rehabilitation.
Patients and relatives involved in a rehabilitation process
This cohort includes individuals who are currently admitted to a rehabilitation center or rehabilitation department, as well as relatives or close contacts of such patients. Eligible participants are aged 18 years or older and have provided written informed consent. No active interventions are performed in this study. Participants are invited to take part in an in-depth interview to share their experiences and perspectives related to person-centered care in rehabilitation.
Students doing an internship in a rehabilitation department or centre
This cohort includes students linked with an education within a healthcare profession. The students did an actively internship within a rehabilitation center or rehabilitation department. Eligible participants are aged 18 years or older and have provided written informed consent. No active interventions are performed in this study. Participants are invited to take part in a focus group or an in-depth interview to share their experiences and perspectives related to person-centered care in rehabilitation.
Board members, staff members and representatives
This cohort includes board members, staff members and representatives who are actively working within a rehabilitation center or rehabilitation department. Eligible participants are aged 18 years or older and have provided written informed consent. No active interventions are performed in this study. Participants are invited to take part in a focus group or an in-depth interview to share their experiences and perspectives related to person-centered care in rehabilitation.
Interventions
In semi-structured individual interviews, employees of healthcare organisations are asked about their experiences, opinions and knowledge on person-centredness. This makes it possible to gather in-depth insights. This approach will mainly be used when surveying e.g. board members, managers, representatives of patient organisations. In addition, focus groups (6 to 8 people) will be organised. This is especially valuable when surveying doctors, paramedics and nurses. Focus groups make it possible to survey several respondents at the same time, encourage spontaneous conversations and share experiences. The interaction between participants can also ensure that additional perspectives and insights are covered.
The objective is to thoroughly understand what PEC means in rehabilitation. Although PEC can be understood as 'being responsive to the unique wishes and needs of the individual person', there still is a lack of consensus about its exact conceptualization in the rehabilitation context (Yun and Choi 2019). Prior work often only considers PEC in terms of shared decision making and goal setting, while the holistic perspective on the patient as a whole person is largely neglected (Yun and Choi 2019). This qualitative phase thus focuses on understanding PEC, its dimensions and the unique wishes and needs of patients in rehabilitation services. In addition, we gather insights regarding the potential enhancement of PEC in rehabilitation. The interviews are based on the Trajectory Touchpoint Technique (TTT; Sudbury-Riley et al. 2020a; 2020b) which allows us to uncover the unique experiences of respondents (i.e., patients, relatives, informal caregivers). The TTT is especially suited fo
In semi-structured individual interviews, employees of healthcare organisations are asked about their experiences, opinions and knowledge on person-centredness. This makes it possible to gather in-depth insights. This approach will mainly be used when surveying e.g. board members, managers, representatives of patient organisations. In addition, focus groups (6 to 8 people) will be organised. This is especially valuable when surveying doctors, paramedics and nurses. Focus groups make it possible to survey several respondents at the same time, encourage spontaneous conversations and share experiences. The interaction between participants can also ensure that additional perspectives and insights are covered.
In semi-structured individual interviews, students of healthcare organisations are asked about their experiences, opinions and knowledge on person-centredness. The focus groups will be supported by the Lego® Serious Play (LSP) will be used to collect in-depth insights from students. This design allows flexibility in questioning, while still following a consistent structure to explore common themes across focus groups. The use of Lego encourages participants to think in new ways.
Eligibility Criteria
Rehabilitation centers in Flanders
You may qualify if:
- (1) are or were admitted to a rehabilitation centre or is related/ acquainted with someone admitted to a rehabilitation centre
- (2) are older than 18 years
- (3) speak the Dutch language
- (4) suffer from a non-congenital brain injury, neurological or locomotor condition can participate in this study.
You may not qualify if:
- (1) did not sign informed consent
- Healthcare professionals and board members, staff members and representatives
- are employed at a rehabilitation centre
- are older than 18 years
- speak the Dutch language
- (1) did not sign informed consent
- Healthcare students
- did internships in a rehabilitation centre
- are older than 18 years
- speak the Dutch language
- (1) did not sign informed consent
Contact the study team to confirm eligibility.
Sponsors & Collaborators
MeSH Terms
Interventions
Intervention Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Ilse Lamers, PhD
UHasselt
Central Study Contacts
Study Design
- Study Type
- observational
- Observational Model
- OTHER
- Time Perspective
- OTHER
- Sponsor Type
- OTHER
- Responsible Party
- PRINCIPAL INVESTIGATOR
- PI Title
- dr
Study Record Dates
First Submitted
July 7, 2025
First Posted
July 23, 2025
Study Start
September 5, 2025
Primary Completion (Estimated)
December 31, 2026
Study Completion (Estimated)
December 31, 2026
Last Updated
July 23, 2025
Record last verified: 2025-07
Data Sharing
- IPD Sharing
- Will not share
This research is mainly organised in focus groups and interviews. Sharing individual data is therefore very difficult.