Family Centered Services in Cerebral Palsy

NCT06572787 | Completed

• 1 other identifier: HACETTEPEU-SBF-MO-01
• Study Type: observational
• Target: 100
• Locations: 1 country
• Sites: 1

Brief Summary

To examine the family-centered service characteristics of physiotherapy and rehabilitation services received by children with cerebral palsy (CP) and to investigate the affecting factors.

Conditions

Cerebral Palsy

Keywords

Physiotherapy; Rehabilitation; Family Centered Services; Impact Family; Cerebral Palsy

Outcome Measures

Primary Outcomes (1)

• Measure of Processus of Care

  Measure of Processus of Care-20 (MPOC-20) survey was administered to assess parents' perceptions of the family-centered features of physiotherapy and rehabilitation services. The appropriate answers to the questions in the survey are marked with a number from 1 (strongly disagree) to 7 (strongly agree). A value of zero (0) indicated not personally relevant.

  3 months

Secondary Outcomes (2)

• Impact on Family Scale

  3 months

• Nottingham Health Profile

  3 months

Eligibility Criteria

• Age: 2 Years - 18 Years
• Sex: all
• Healthy Volunteers: No
• Age Groups: Child (0-17), Adult (18-64)
• Sampling Method: Probability Sample

Study Population

Children diagnosed with cerebral palsy between the ages of 2 and 18 who have received physiotherapy and rehabilitation services for at least one year and their parents

You may qualify if:

• Having a child aged between 2 and 18 years diagnosed with cerebral palsy
• Receiving physiotherapy and rehabilitation services for at least one year
• The family's consent to participate in the study and their approval for their child to be assessed by the researcher physiotherapist and for their information to be collected within the scope of the study

You may not qualify if:

• Parents over the age of 65
• Parents who do not speak Turkish
• Having another child with a disability

Sponsors & Collaborators

• Hacettepe University: lead

Study Sites (1)

Hacettepe Universty

Ankara, Sıhhiye, 06100, Turkey (Türkiye)

Location

MeSH Terms

Conditions

Cerebral Palsy

Condition Hierarchy (Ancestors)

Brain Damage, Chronic; Brain Diseases; Central Nervous System Diseases; Nervous System Diseases

Study Officials

• Mustafa Öcalan, MSc

  Hacettepe University

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Principal Investigator

Study Record Dates

• First Submitted: August 22, 2024
• First Posted: August 27, 2024
• Study Start: October 20, 2023
• Primary Completion: April 20, 2024
• Study Completion: May 27, 2024
• Last Updated: September 5, 2024

Record last verified: 2024-08

Data Sharing

• IPD Sharing: Will not share

Locations

TU (1)