NCT06434012

Brief Summary

The Barts Endocarditis Research Registry is being set up to give a unique opportunity to assess the characteristics of Infective Endocarditis (IE) in our population cohort, the current use of imaging techniques, as well as the implementation of the ESC guidelines and its consequence in terms of prognosis. All this will help improve the diagnosis and management of IE. The registry will also form the core of all our subsequent work, including interventional studies. The endocarditis research registry is to record the epidemiological, demographic, microbiological, surgical and outcome data in our cohort of endocarditis patients. This work will underpin all future work in endocarditis by clearly defining our patient cohort and the outcomes from treatment. We have a series of studies planned that we believe will influence the management of endocarditis (we are working up proposals for genomic and therapeutic trials that will subsequently be presented for ethical and hospital approval). The registry will be generic to all our planned studies, and will allow us to capture data to assess treatment effectiveness

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,000

participants targeted

Target at P75+ for all trials

Timeline
36mo left

Started Apr 2019

Longer than P75 for all trials

Geographic Reach
1 country

1 active site

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress70%
Apr 2019Apr 2029

Study Start

First participant enrolled

April 24, 2019

Completed
5.1 years until next milestone

First Submitted

Initial submission to the registry

May 23, 2024

Completed
7 days until next milestone

First Posted

Study publicly available on registry

May 30, 2024

Completed
4.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

April 24, 2029

Expected
6 days until next milestone

Study Completion

Last participant's last visit for all outcomes

April 30, 2029

Last Updated

July 15, 2025

Status Verified

July 1, 2025

Enrollment Period

10 years

First QC Date

May 23, 2024

Last Update Submit

July 10, 2025

Conditions

Outcome Measures

Primary Outcomes (4)

  • To define current mortality rates for patients treated for endocarditis at Barts Heart Centre

    The primary goal of the endocarditis registry is to record the epidemiological, demographic, microbiological, surgical and outcome data in our cohort of endocarditis patients. This work will underpin all future work in endocarditis by clearly defining our patient cohort and the outcomes from treatment.

    10 years

  • To define current morbidity rates for patients treated for endocarditis at Barts Heart Centre

    The primary goal of the endocarditis registry is to record the epidemiological, demographic, microbiological, surgical and outcome data in our cohort of endocarditis patients. This work will underpin all future work in endocarditis by clearly defining our patient cohort and the outcomes from treatment.

    10 years

  • To define current rates of reinfection for patients treated for endocarditis at Barts Heart Centre

    The primary goal of the endocarditis registry is to record the epidemiological, demographic, microbiological, surgical and outcome data in our cohort of endocarditis patients. This work will underpin all future work in endocarditis by clearly defining our patient cohort and the outcomes from treatment.

    10 years

  • To define current rates of relapse for patients treated for endocarditis at Barts Heart Centre

    The primary goal of the endocarditis registry is to record the epidemiological, demographic, microbiological, surgical and outcome data in our cohort of endocarditis patients. This work will underpin all future work in endocarditis by clearly defining our patient cohort and the outcomes from treatment.

    10 years

Secondary Outcomes (4)

  • To collect data regarding infecting organism, valve appearances and pathological markers and investigate their relationship to mortality, morbidity, reinfection and relapse rates

    10 years

  • To collect data regarding infecting organism and investigate its relationship to mortality, morbidity, reinfection and relapse rates

    10 years

  • To collect data regarding valve appearance and investigate its relationship to mortality, morbidity, reinfection and relapse rates

    10 years

  • To collect data regarding pathological markers and investigate its relationship to mortality, morbidity, reinfection and relapse rates

    10 years

Interventions

This is registry for Infective Endocarditis

Eligibility Criteria

Age16 Years+
Sexall
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

There are approximately 150 cases of endocarditis each year treated within the trust and recruitment is expected to be rapid

You may qualify if:

  • Patients aged 16 and over (Patients under 16 years of age are not admitted to Barts Heart Centre)
  • Patients admitted to Barts Heart Centre with confirmed Endocarditis (see above)
  • Patients attending outpatients with confirmed/suspected Endocarditis
  • Patients with possible IE who complete treatment for endocarditis
  • Patients with cardiac device related Endocarditis
  • Patients with the ability to provide informed consent

You may not qualify if:

  • Patients with pacemaker pocket infection with no evidence of pacemaker lead or valve infection
  • Patients who refuse consent to be included in the research database
  • Patients with "rejected" endocarditis

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

St Bartholomews Hospital

London, United Kingdom

RECRUITING

MeSH Terms

Conditions

EndocarditisEndocarditis, Bacterial

Interventions

Registries

Condition Hierarchy (Ancestors)

Heart DiseasesCardiovascular DiseasesBacterial InfectionsBacterial Infections and MycosesInfectionsCardiovascular Infections

Intervention Hierarchy (Ancestors)

Data CollectionEpidemiologic MethodsInvestigative TechniquesRecordsOrganization and AdministrationHealth Services AdministrationHealth Care Evaluation MechanismsQuality of Health CareHealth Care Quality, Access, and EvaluationPublic HealthEnvironment and Public Health

Study Officials

  • Simon Woldman, MSc

    St Bartholomews Hospital

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Innocent Bvekerwa, MSc

CONTACT

Simon Woldman

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
RETROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

May 23, 2024

First Posted

May 30, 2024

Study Start

April 24, 2019

Primary Completion (Estimated)

April 24, 2029

Study Completion (Estimated)

April 30, 2029

Last Updated

July 15, 2025

Record last verified: 2025-07

Locations