Resilience Models in Adolescence and Youth With Cancer in Taiwan

NCT06179914 | Completed

• 1 other identifier: KMUHIRB-SV(I)-20200060
• Study Type: observational
• Target: 223
• Locations: 1 country
• Sites: 1

Brief Summary

Validation of Resilience Models about Cancer in Adolescence and Youth in Taiwan

Conditions

Childhood Cancer; Coping Behavior; Hope; Resilience

Keywords

Resilience; Hope; social support; Coping; adolescent and young adult; uncertainty

Outcome Measures

Primary Outcomes (2)

• Herth Hope Index (HHI)

  Herth Hope Index (HHI) has 12 items. The12 items developed by Herth (1992) measures adults hope and contains three factors: cognitive-temporal (positive and desired outcome in the future), affective-behavioral (a feeling of confident with the reality-based goals and desirable outcomes), and affiliative-contextual (interconnect between self and others)(Herth, 1992). A higher score indicates a higher degree of hope.

  1 year

• Resilience in Illness Scale (HARS)

  HARS is a single factor scale, consisting of 13 items that measure how participants feel or think about managing their health since diagnosis. The internal consistency reliability (0.84 to 0.86) and content validity have been tested by previous qualitative research (Haase \& Marcia, 1994; Haase \& Philips, 2004). Participants are asked to mark how much they agree or disagree with each sentence using response options from 1 (strongly disagree) to 6 (strongly agree) (Haase, et al., 1999). Higher total scores indicate a higher degree of resilience.

  1 year

Secondary Outcomes (9)

• Symptom Distress Scale (SDS)

  1 year

• mishel Uncertainty in Illness Scale - Revised

  1 year

• Jalowiec Coping Scale-Revised

  1 year

• Spiritual Perspective Scale (SPS)

  1 year

• Perceived Social Support (PSS)

  1 year

Study Arms (1)

Adolescence and Youth with cancer

Participants were diagnosed with cancer before 18 years old and aged between 10 and 24 years

Eligibility Criteria

• Age: 10 Years - 24 Years
• Sex: all
• Healthy Volunteers: No
• Age Groups: Child (0-17), Adult (18-64)
• Sampling Method: Non-Probability Sample

Study Population

childhood cancer at age between 10 and 24

You may qualify if:

• Diagnosed with cancer before 18 years old
• Aged between 10 and 24 years
• Received cancer treatment or completed treatment

You may not qualify if:

• Diagnosis of mental problems (developmental delay or psychiatric illness)
• At the end of life

Sponsors & Collaborators

• Kaohsiung Medical University Chung-Ho Memorial Hospital: lead

Study Sites (1)

Kaohsiung Medical University

Kaohsiung City, 80361, Taiwan

Location

Related Publications (11)

• Yu J, Dong H, Song Y, Zhu F. Influencing Factors of Hope Among Chinese Patients With Hematological Malignancies From the Perspective of Positive Psychology: A Cross-sectional Study. Cancer Nurs. 2022 Nov-Dec 01;45(6):465-472. doi: 10.1097/NCC.0000000000001035. Epub 2022 Jan 13.

  PMID: 35025774 RESULT

• Yu J, Song H. Prevalence and risk factors of loneliness among patients with hematological malignancies. Medicine (Baltimore). 2022 Dec 2;101(48):e31900. doi: 10.1097/MD.0000000000031900.

  PMID: 36482642 RESULT

• Borrescio-Higa F, Valdes N. The Psychosocial Burden of Families with Childhood Blood Cancer. Int J Environ Res Public Health. 2022 Jan 5;19(1):599. doi: 10.3390/ijerph19010599.

  PMID: 35010854 RESULT

• Linder LA, Hooke MC. Symptoms in Children Receiving Treatment for Cancer-Part II: Pain, Sadness, and Symptom Clusters. J Pediatr Oncol Nurs. 2019 Jul/Aug;36(4):262-279. doi: 10.1177/1043454219849578.

  PMID: 31307323 RESULT

• Sharp K, Tillery R, Long A, Wang F, Pan H, Phipps S. Trajectories of resilience and posttraumatic stress in childhood cancer: Consistency of child and parent outcomes. Health Psychol. 2022 Apr;41(4):256-267. doi: 10.1037/hea0001132. Epub 2021 Dec 2.

  PMID: 34855418 RESULT

• Rosales P, Evangelista L, Guo Y, Agbayani CG, Kain ZN, Fortier MA. Exploring Differences in Perceived Satisfaction, Resilience, and Achievement Between Hispanic and Non-Hispanic White Childhood Cancer Survivors. J Pediatr Health Care. 2021 Mar-Apr;35(2):196-204. doi: 10.1016/j.pedhc.2020.10.003. Epub 2021 Jan 28.

  PMID: 33516620 RESULT

• Li Y, Ni N, Zhou Z, Dong J, Fu Y, Li J, Luan Z, Peng X. Hope and symptom burden of women with breast cancer undergoing chemotherapy: A cross-sectional study. J Clin Nurs. 2021 Aug;30(15-16):2293-2300. doi: 10.1111/jocn.15759. Epub 2021 Mar 23.

  PMID: 33756013 RESULT

• Taylor EJ, Petersen C, Oyedele O, Haase J. Spirituality and Spiritual Care of Adolescents and Young Adults with Cancer. Semin Oncol Nurs. 2015 Aug;31(3):227-41. doi: 10.1016/j.soncn.2015.06.002. Epub 2015 Jun 6.

  PMID: 26210201 RESULT

• Haase JE. The adolescent resilience model as a guide to interventions. J Pediatr Oncol Nurs. 2004 Sep-Oct;21(5):289-99; discussion 300-4. doi: 10.1177/1043454204267922.

  PMID: 15381798 RESULT

• Decker C, Phillips CR, Haase JE. Information needs of adolescents with cancer. J Pediatr Oncol Nurs. 2004 Nov-Dec;21(6):327-34. doi: 10.1177/1043454204269606.

  PMID: 15475469 RESULT

• Laksmita OD, Chung MH, Liao YM, Haase JE, Chang PC. Predictors of resilience among adolescent disaster survivors: A path analysis. J Adv Nurs. 2020 Aug;76(8):2060-2071. doi: 10.1111/jan.14396. Epub 2020 May 19.

  PMID: 32301129 RESULT

MeSH Terms

Conditions

Neoplasms

Study Design

• Study Type: observational
• Observational Model: CASE ONLY
• Time Perspective: CROSS SECTIONAL
• Target Duration: 1 Day
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: November 23, 2023
• First Posted: December 22, 2023
• Study Start: November 2, 2020
• Primary Completion: September 26, 2022
• Study Completion: September 26, 2022
• Last Updated: December 22, 2023

Record last verified: 2023-11

Data Sharing

• IPD Sharing: Will not share

Locations

TW (1)