NCT05230537

Brief Summary

The purpose of this study is to assess the effect of Iptacopan to prevent conversion of early or intermediate age-related macular degeneration (AMD) eyes to new incomplete retinal pigment epithelium and outer retinal atrophy (iRORA) or late AMD.

Trial Health

78
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
170

participants targeted

Target at P75+ for phase_2

Timeline
3mo left

Started Feb 2022

Typical duration for phase_2

Geographic Reach
4 countries

28 active sites

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress94%
Feb 2022Oct 2026

First Submitted

Initial submission to the registry

January 28, 2022

Completed
12 days until next milestone

First Posted

Study publicly available on registry

February 9, 2022

Completed
8 days until next milestone

Study Start

First participant enrolled

February 17, 2022

Completed
4.6 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

October 1, 2026

Expected
1 day until next milestone

Study Completion

Last participant's last visit for all outcomes

October 2, 2026

Last Updated

July 3, 2025

Status Verified

July 1, 2025

Enrollment Period

4.6 years

First QC Date

January 28, 2022

Last Update Submit

July 2, 2025

Conditions

Keywords

Age-related macular degenerationMacular degenerationvision loss, macula damageretina damagedry macular degenerationwet macular degenerationAMDBest Corrected Visual AcuityNeovascular AMDOCT

Outcome Measures

Primary Outcomes (1)

  • Development of new incomplete retinal pigment epithelium & outer retinal atrophy or late age-related macular degeneration (AMD) in the early/intermediate AMD eye as determined by optical coherence tomography (OCT) & supported by multimodal imaging

    OCT and other imaging will be performed using spectral domain OCT or swept source OCT machines

    Baseline/Day 1 through Month 24

Secondary Outcomes (7)

  • The incidence of ocular and non-ocular adverse events (AEs)

    Baseline/Day 1 through Month 24

  • Change in Early Treatment Diabetic Retinopathy Study (ETDRS) (Standard Luminance) best corrected visual acuity (BCVA) scores in the early/intermediate AMD eye

    Baseline/Day 1 through Month 24

  • Change in ETDRS low luminance visual acuity (LLVA) scores in the early/intermediate AMD eye

    Baseline/Day 1 through Month 24

  • Change in contrast sensitivity (CS) scores in the early/intermediate AMD eye

    Baseline/Day 1 through Month 24

  • Change in Standard luminance manifold contrast vision meter contrast sensitivity (MCVM-CS) scores in the early/intermediate AMD eye

    Baseline/Day 1 through Month 24

  • +2 more secondary outcomes

Study Arms (2)

Iptacopan (LNP023)

EXPERIMENTAL

Iptacopan (LNP023) oral use capsules

Drug: Iptacopan (LNP023)

Placebo

PLACEBO COMPARATOR

Placebo matched to study drug, oral use capsules

Drug: Placebo

Interventions

oral capsules

Iptacopan (LNP023)

oral capsules

Placebo

Eligibility Criteria

Age50 Years - 100 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Male or female participants ≥ 50 years of age
  • Diagnosis of early or intermediate age-related macular degeneration (AMD) in the study eye as determined by the investigator on fundus examination
  • Study eye (early/intermediate AMD eye) must have at least one high risk optical coherence tomography (OCT) feature (as defined by a central reading center).
  • Diagnosis of neovascular AMD (nAMD) in the fellow eye as determined by the investigator.
  • Vaccination against Neisseria meningitidis and Streptococcus pneumoniae infection are required prior to the start of the treatment with LNP023.
  • If not received previously, vaccination against Haemophilius influenzae infection should be given, if available and according to local regulations.

You may not qualify if:

  • History or current diagnosis of ECG abnormalities indicating significant safety risk, such as clinically significant cardiac arrhythmias, e.g., sustained ventricular tachycardia and clinically significant second or third degree atrioventricular block (AV block) without a pacemaker.
  • History of familial long QT syndrome or known family history of Torsades de Pointes
  • History of stroke or myocardial infarction during the 6-month period prior to Baseline/Day 1, any current clinically significant arrhythmias, or any advanced cardiac or severe pulmonary hypertension
  • History of end stage kidney disease requiring dialysis or renal transplant
  • History of malignancy of any organ system
  • History of solid organ or bone marrow transplantation
  • History of recurrent meningitis or history of meningococcal infections despite vaccination
  • History of immunodeficiency diseases, including a positive Human Immunodeficiency Virus test result at Screening
  • Active Hepatitis B (HBV) or Hepatitis C (HCV) infection
  • History of hypersensitivity to any of the study treatments or excipients or to drugs of similar chemical classes or clinically relevant sensitivity to fluorescein dye as assessed by the Investigator.
  • Evidence of cRORA or exMNV in the study eye based on multimodal imaging as determined by the central reading center.
  • Participants who have current active TB as evidenced by clinical, radiographic and laboratory tests.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (28)

Retina Consultants of Orange County

Fullerton, California, 92835, United States

Location

Salehi Retina Institute

Huntington Beach, California, 92647, United States

Location

Martel Eye Medical Group

Rancho Cordova, California, 95670, United States

Location

Retinal Consultants Medical Group Inc

Sacramento, California, 95841, United States

Location

California Retina Consultants

Santa Barbara, California, 93103, United States

Location

Southwest Retina Research Center

Durango, Colorado, 81303, United States

Location

Advanced Research LLC

Deerfield Beach, Florida, 33064, United States

Location

Retina Center Of South Florida

Delray Beach, Florida, 33484, United States

Location

Retina Vitreous Associates of Florida

St. Petersburg, Florida, 33711, United States

Location

Midwest Eye Institute

Indianapolis, Indiana, 46280, United States

Location

Retina Associates New Orleans

New Orleans, Louisiana, 70115 8139, United States

Location

Retina Care Center

Baltimore, Maryland, 21209, United States

Location

Opthamalic Consultants of Boston

Boston, Massachusetts, 02114, United States

Location

Envision Ocular LLC

Bloomfield, New Jersey, 07003, United States

Location

Duke Eye Center

Durham, North Carolina, 27705, United States

Location

Retina Northwest PC

Portland, Oregon, 97210, United States

Location

Charles Retina Institute

Germantown, Tennessee, 38138, United States

Location

Austin Research Center for Retina

Austin, Texas, 78793, United States

Location

Retina Consultants TX Rsrch Ctr

Bellaire, Texas, 77401, United States

Location

Retina Foundation

Dallas, Texas, 75231, United States

Location

Texas Retina Associates

Fort Worth, Texas, 76104, United States

Location

Retina Consultants of Houston PA

Houston, Texas, 77030, United States

Location

Novartis Investigative Site

Harbin, Heilongjiang, 150001, China

Location

Novartis Investigative Site

Tianjin, Tianjin Municipality, 300020, China

Location

Novartis Investigative Site

Shanghai, 200080, China

Location

Emanuelli Research and Development Center LLC

Arecibo, 00612, Puerto Rico

Location

Novartis Investigative Site

London, SE5 9RS, United Kingdom

Location

Novartis Investigative Site

Southampton, SO16 6YD, United Kingdom

Location

Related Publications (1)

  • Tzoumas N, Riding G, Williams MA, Steel DH. Complement inhibitors for age-related macular degeneration. Cochrane Database Syst Rev. 2023 Jun 14;6(6):CD009300. doi: 10.1002/14651858.CD009300.pub3.

MeSH Terms

Conditions

Macular DegenerationVision DisordersGeographic AtrophyWet Macular Degeneration

Interventions

iptacopan

Condition Hierarchy (Ancestors)

Retinal DegenerationRetinal DiseasesEye DiseasesSensation DisordersNeurologic ManifestationsNervous System DiseasesSigns and SymptomsPathological Conditions, Signs and Symptoms

Study Officials

  • Novartis Pharmaceuticals

    Novartis Pharmaceuticals

    STUDY DIRECTOR

Study Design

Study Type
interventional
Phase
phase 2
Allocation
RANDOMIZED
Masking
TRIPLE
Who Masked
PARTICIPANT, INVESTIGATOR, OUTCOMES ASSESSOR
Masking Details
Investigator and Participant
Purpose
TREATMENT
Intervention Model
PARALLEL
Model Details: This is a multicenter, randomized, participant and investigator masked, placebo controlled, proof-of-concept study to assess the safety and efficacy of LNP023 in participants with early to intermediate age-related macular degeneration (e/iAMD) in one eye and neovascular age-related macular degeneration (nAMD) in the other eye.
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

January 28, 2022

First Posted

February 9, 2022

Study Start

February 17, 2022

Primary Completion (Estimated)

October 1, 2026

Study Completion (Estimated)

October 2, 2026

Last Updated

July 3, 2025

Record last verified: 2025-07

Data Sharing

IPD Sharing
Will share

Novartis is committed to sharing with qualified external researchers, access to patient-level data and supporting clinical documents from eligible studies. These requests are reviewed and approved by an independent review panel on the basis of scientific merit. All data provided is anonymized to respect the privacy of patients who have participated in the trial in line with applicable laws and regulations. This trial data availability is according to the criteria and process described on www.clinicalstudydatarequest.com.

More information

Locations