Exploring Telehealth to Deliver Me & My Wishes During Coronavirus-19

NCT05037448 | Completed

• 1 other identifier: I00111417
• Study Type: interventional
• Target: 17
• Locations: 1 country
• Sites: 3

Brief Summary

Due to Coronavirus-19, we are exploring the plausibility of delivering the Me \& My Wishes intervention via telehealth.

Conditions

Health Communication

Outcome Measures

Primary Outcomes (2)

• Feasibility of telehealth-delivered Me & My Wishes

  ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better

  baseline

• Feasibility of telehealth-delivered Me & My Wishes

  ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better

  90 days

Study Arms (1)

Telehealth

OTHER

Me \& My Wishes videos communicate residents' preferences via personalized video recorded conversations. Me \& My Wishes are videos of nursing home residents talking about their preferences for care, and include four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts.

Behavioral: Me & My Wishes

Interventions

Me & My Wishes BEHAVIORAL

Me \& My Wishes videos communicate residents' preferences via personalized video recorded conversations. Me \& My Wishes are videos of nursing home residents talking about their preferences for care, and include four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts.

Telehealth

Eligibility Criteria

• Age: 65 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Older Adult (65+)

You may qualify if:

• Identified as having Alzheimer's or related dementia
• Mild to moderate cognitive impairment (BIMS = 8-15, (MDS C0500) (nursing home residents only)
• Makes Self Understood = \<1 (MDS B0700)/present in medical record
• Understood By Others = \<1 (MDS B0800)/present in medical record
• Reside at the facility at least 2 weeks identified as a long-term resident
• Age \>65 years
• Speaks English
• Speaks English
• Willing and able to watch the videos
• Willing to complete short surveys. Being unable to attend care conference to view the video (e.g. due to distance) will not exclude family from participating.
• Speaks English
• Willing to watch the videos
• Willing to complete short surveys

You may not qualify if:

• Limited communication capacity (e.g. aphasia)
• Comatose
• Cognitively intact
• Severe cognitive impairment

Sponsors & Collaborators

• University of Utah: lead
• Brown University: collaborator
• National Institute on Aging (NIA): collaborator

Study Sites (3)

Marquis Forest Grove Post Acute Rehab

Forest Grove, Oregon, 97116, United States

Location

Marquis Wilsonville Assisted Living

Wilsonville, Oregon, 97070, United States

Location

Mission at Maple Springs

Brigham City, Utah, 84032, United States

Location

Study Officials

• Gail Towsley

  University of Utah

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: interventional
• Phase: not applicable
• Allocation: NA
• Masking: NONE
• Purpose: SUPPORTIVE CARE
• Intervention Model: SINGLE GROUP
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Associate Professor

Model Details: The investigators propose to examine the plausibility of delivering Me \& My Wishes using a telehealth platform. A convenience sample of five residents, their family members and long term care staff will be enrolled.

Study Record Dates

• First Submitted: August 24, 2021
• First Posted: September 8, 2021
• Study Start: August 17, 2020
• Primary Completion: February 28, 2021
• Study Completion: February 28, 2021
• Last Updated: September 8, 2021

Record last verified: 2021-03

Data Sharing

• IPD Sharing: Will not share

Locations

US (3)