NCT04863573

Brief Summary

Coronavirus disease 2019 (COVID-19) which is caused by the virus SARS-CoV-2 has resulted in an ongoing global pandemic. It is unclear whether the relatively low number of reported cases of COVID-19 in people with CF (pwCF) is due to enhanced infection prevention practices or whether pwCF have protective genetic/immune factors. This study aims to prospectively assess the proportion of pwCF, including both adults and children with CF who have evidence of SARS-CoV-2 antibodies over a two-year period. This study will also examine whether pwCF who have antibodies for SARS-CoV-2 have a different clinical presentation and what impact this has on their CF disease. The proposed study will recruit pwCF from paediatric and adult CF centres throughout the United Kingdom. Serological testing to detect antibodies will be performed on blood samples taken at month 0, 6, 12, 18 and 24 with additional time-points if bloodwork is available via normal clinical care. Clinical data on, lung function, CF-related medical history, pulmonary exacerbations, antibiotic use, and microbiology and vaccination receipt, will be collected during routine clinical assessments. Associations will be examined between socio-demographic and clinical variables and serologic testing. The effects of SARS-CoV-2 infection on clinical outcomes and analyse end-points will be examined to explore any age-related or gender-based differences, as well as subgroup analysis of outcomes in lung-transplant recipients and pwCF receiving CFTR modulator therapies. As pwCF receive COVID-19 vaccination a comparison of the development and progression of anti-SARS-CoV-2 antibodies in pwCF following natural infection and vaccination SARS-CoV-2 over time will be performed.

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
1,000

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Nov 2021

Typical duration for all trials

Geographic Reach
1 country

11 active sites

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

April 27, 2021

Completed
1 day until next milestone

First Posted

Study publicly available on registry

April 28, 2021

Completed
7 months until next milestone

Study Start

First participant enrolled

November 19, 2021

Completed
2.4 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

May 1, 2024

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

May 1, 2024

Completed
Last Updated

February 1, 2022

Status Verified

January 1, 2022

Enrollment Period

2.4 years

First QC Date

April 27, 2021

Last Update Submit

January 17, 2022

Conditions

Outcome Measures

Primary Outcomes (3)

  • SARS-COV-2 seroprevalence

    proportion of pwCF with at least 1 seropositive result over the study period and the difference in this proportion by age, geographical area and over time.

    3-year period (comprising a 1-year enrollment period and a 2-year follow-up)

  • Association of SARS-CoV-2 seropositivity, clinical symptoms and clinical outcomes in pwCF

    incidence of symptomatic COVID-19 over the study period and severity; proportion of seropositive pwCF with subsequent CF exacerbation compared to pwCF who are seronegative; death rate in pwCF with at least one seropositive result compared to pwCF who are seronegative.

    3-year period (comprising a 1-year enrollment period and a 2-year follow-up)

  • Longitudinal comparison of the detection of anti-SARS-CoV-2 antibodies in pwCF following natural infection and SARS-CoV-2 vaccination.

    Measuring detectable antibody levels for each study participant at baseline and at each study time point including 6,12, 18 and 24 months post enrollment with additional samples if participant has blood drawn for other clinical care reason.

    3-year period (comprising a 1-year enrollment period and a 2-year follow-up)

Secondary Outcomes (1)

  • Serum proteomic and genomic responses of pwCF who are SARS-CoV-2 seropositive and seronegative.

    anticipated 5-10 years

Eligibility Criteria

Sexall
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Consenting people with cystic fibrosis of any age, genotype, transplant status and disease severity will be eligible to participate in the study. The study population is expected to be representative of the general CF population.

You may qualify if:

  • Consenting people with cystic fibrosis of any age, genotype, transplant status and disease severity

You may not qualify if:

  • Refusal to give informed consent
  • Contraindication to venepuncture.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (11)

University Hospital Southampton Nhs Foundation Trust

Southampton, Engladn, SO16 6YD, United Kingdom

NOT YET RECRUITING

University Hospitals Birmingham Nhs Foundation Trust

Birmingham, England, B15 2GW, United Kingdom

NOT YET RECRUITING

Birmingham Women'S and Children'S Nhs Foundation Trust

Birmingham, England, B4 6NH, United Kingdom

NOT YET RECRUITING

Leeds Teaching Hospitals Nhs Trust

Leeds, England, LS9 7TF, United Kingdom

NOT YET RECRUITING

King'S College Hospital Nhs Foundation Trust

London, England, SE5 9RS, United Kingdom

NOT YET RECRUITING

Royal Brompton & Harefield Nhs Foundation Trust

London, England, SW3 6NP, United Kingdom

NOT YET RECRUITING

Nottingham University Hospitals Nhs Trust

Nottingham, England, NG7 2UH, United Kingdom

NOT YET RECRUITING

Queens University Belfast

Belfast, Northern Ireland, United Kingdom

RECRUITING

NHS Greater Glasgow and Clyde

Glasgow, Scotland, G12 0XH, United Kingdom

NOT YET RECRUITING

Cardiff & Vale University Lhb

Cardiff, Wales, CF14 4HH, United Kingdom

NOT YET RECRUITING

Cardiff & Vale University Lhb

Cardiff, Wales, United Kingdom

NOT YET RECRUITING

Biospecimen

Retention: SAMPLES WITH DNA

Blood serum samples will be collected for analysis of COVID-19 antibody levels. For participants who consent to the optional study, a second blood sample will also be drawn into EDTA tubes (plasma)

MeSH Terms

Conditions

COVID-19Cystic Fibrosis

Condition Hierarchy (Ancestors)

Pneumonia, ViralPneumoniaRespiratory Tract InfectionsInfectionsVirus DiseasesCoronavirus InfectionsCoronaviridae InfectionsNidovirales InfectionsRNA Virus InfectionsLung DiseasesRespiratory Tract DiseasesPancreatic DiseasesDigestive System DiseasesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesInfant, Newborn, Diseases

Study Officials

  • Damian Downey

    Queens University Belfast

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Damian Downey

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Clinical Senior Lecturer

Study Record Dates

First Submitted

April 27, 2021

First Posted

April 28, 2021

Study Start

November 19, 2021

Primary Completion

May 1, 2024

Study Completion

May 1, 2024

Last Updated

February 1, 2022

Record last verified: 2022-01

Locations