NCT04648462

Brief Summary

The first proton therapy treatments in the Netherlands have taken place in 2018. Due to the physical properties of protons, proton therapy has tremendous potential to reduce the radiation dose to the healthy, tumour-surrounding tissues. In turn, this leads to less radiation-induced complications, and a decrease in the formation of secondary tumours. The Netherlands has spearheaded the development of the model-based approach (MBA) for the selection of patients for proton therapy when applied to prevent radiation-induced complications. In MBA, a pre-treatment in-silico planning study is done, comparing proton and photon treatment plans in each individual patient, to determine (1) whether there is a significant difference in dose in the relevant organs at risk (ΔDose), and (2) whether this dose difference translates into an expected clinical benefit in terms of NormalTissue Complication Probabilities (ΔNTCP). To translate ΔDose into ΔNTCP, NTCP-models are used, which are prediction models describing the relation between dose parameters and the likelihood of radiation-induced complications. The Dutch Society for Radiotherapy and Oncology (NVRO) setup the selection criteria for proton therapy in 2015, taking into account toxicity and NTCP. However, NTCP-models can be affected by changes in the irradiation technique. Therefore, it is paramount to continuously update and validate these NTCP-models in subsequent patient cohorts treated with new techniques. In ProTRAIT, a Findable, Accessible, Interoperable and Reusable (FAIR)data infrastructure for both clinical and 3D image and 3D dose information has been developed and deployed for proton therapy in the Netherlands. It allows for a prospective, standardized, multi-centric data from all Dutch proton and a representative group of photon therapy patients.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,500

participants targeted

Target at P75+ for all trials

Timeline
105mo left

Started Jan 2018

Longer than P75 for all trials

Geographic Reach
1 country

3 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress49%
Jan 2018Jan 2035

Study Start

First participant enrolled

January 1, 2018

Completed
2.8 years until next milestone

First Submitted

Initial submission to the registry

November 6, 2020

Completed
25 days until next milestone

First Posted

Study publicly available on registry

December 1, 2020

Completed
9.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

January 1, 2030

Expected
5 years until next milestone

Study Completion

Last participant's last visit for all outcomes

January 1, 2035

Last Updated

November 26, 2024

Status Verified

November 1, 2024

Enrollment Period

12 years

First QC Date

November 6, 2020

Last Update Submit

November 25, 2024

Conditions

Outcome Measures

Primary Outcomes (1)

  • Neurocognitive failure at 5 years

    Time to neurocognitive failure, defined as the time from last radiotherapeutic treatment to the first instance of a measured HVLT-dr of -1.5Z based on the normal data

    5 years after radiotherapy

Secondary Outcomes (5)

  • HVLT- delayed recall decline at 5 years

    5 years after radiotherapy

  • HVLT total recall decline at 5 years

    5 years after radiotherapy

  • TMT a decline at 5 years

    5 years after radiotherapy

  • TMT b decline at 5 years

    5 years after radiotherapy

  • COWA total decline at 5 years

    5 years after radiotherapy

Interventions

The participants are seen at the outpatient clinic by a physician, physician assistant or trial nurse at standard follow-up times at 2.5, 5, 7.5 and 10 years after radiotherapy.

Eligibility Criteria

Age18 Years+
Sexall
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

All neuro-oncological patients treated with proton therapy at one of the three proton centers in the Netherlands

You may qualify if:

  • All brain tumors with a favorable prognosis (median survival \> 10 year)
  • Age ≥ 18 years
  • ECOG performance status 0 - 1 / Karnofsky performance status 80 - 100
  • No - minimal neurocognitive impairment
  • Dosimetrical gain of protontherapy relative to photontherapy (≥5% on supratentorial brain dose or hippocampi)
  • Informed consent

You may not qualify if:

  • Not eligible for chemotherapy
  • Eligible for stereotactic radiotherapy

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (3)

Maastricht Radiation Oncology

Maastricht, Limburg, 6202 AZ, Netherlands

RECRUITING

Holland PTC

Delft, South Holland, 2629 JH, Netherlands

RECRUITING

Universitair Medisch Centrum Groningen

Groningen, 9713 WS, Netherlands

RECRUITING

MeSH Terms

Conditions

AstrocytomaEpendymomaGangliogliomaOligodendrogliomaOptic Nerve GliomaMeningiomaNerve Sheath NeoplasmsAdenomaCraniopharyngiomaHemangiopericytomaGerminomaNeurilemmoma

Condition Hierarchy (Ancestors)

GliomaNeoplasms, NeuroepithelialNeuroectodermal TumorsNeoplasms, Germ Cell and EmbryonalNeoplasms by Histologic TypeNeoplasmsNeoplasms, Glandular and EpithelialNeoplasms, Nerve TissueOptic Nerve NeoplasmsCranial Nerve NeoplasmsNervous System NeoplasmsNeoplasms by SitePeripheral Nervous System NeoplasmsCranial Nerve DiseasesNervous System DiseasesOptic Nerve DiseasesEye DiseasesNeoplasms, Vascular TissueMeningeal NeoplasmsCentral Nervous System NeoplasmsPeripheral Nervous System DiseasesNeuromuscular DiseasesNeuroendocrine TumorsNeuroma

Study Officials

  • Danielle Eekers

    Maastro Clinic, The Netherlands

    PRINCIPAL INVESTIGATOR
  • Danielle Eekers

    Maastro Clinic, The Netherlands

    STUDY CHAIR
  • Hiske van der Weide

    UMC Groningen

    PRINCIPAL INVESTIGATOR
  • M Kramer

    UMC Groningen

    PRINCIPAL INVESTIGATOR
  • Yvonne Klaver

    HollandPTC

    PRINCIPAL INVESTIGATOR
  • M Kroesen

    HollandPTC

    PRINCIPAL INVESTIGATOR
  • A Mendez Romero

    Erasmus Medical Center

    PRINCIPAL INVESTIGATOR
  • J Jaspers

    Erasmus Medical Center

    PRINCIPAL INVESTIGATOR
  • I Coremans

    Leiden University Medical Center

    PRINCIPAL INVESTIGATOR
  • Jaap Zindler

    Medical Center Haaglanden

    PRINCIPAL INVESTIGATOR
  • Inge Compter

    Maastro Clinic, The Netherlands

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Target Duration
5 Years
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

November 6, 2020

First Posted

December 1, 2020

Study Start

January 1, 2018

Primary Completion (Estimated)

January 1, 2030

Study Completion (Estimated)

January 1, 2035

Last Updated

November 26, 2024

Record last verified: 2024-11

Data Sharing

IPD Sharing
Will not share

Locations