NCT04468919

Brief Summary

This project adds to non-invasive BCIs for communication for adults with severe speech and physical impairments due to neurodegenerative diseases. Researchers will optimize \& adapt BCI signal acquisition, signal processing, natural language processing, \& clinical implementation. BCI-FIT relies on active inference and transfer learning to customize a completely adaptive intent estimation classifier to each user's multi-modality signals simultaneously. 3 specific aims are: 1. develop \& evaluate methods for on-line \& robust adaptation of multi-modal signal models to infer user intent; 2. develop \& evaluate methods for efficient user intent inference through active querying, and 3. integrate partner \& environment-supported language interaction \& letter/word supplementation as input modality. The same 4 dependent variables are measured in each SA: typing speed, typing accuracy, information transfer rate (ITR), \& user experience (UX) feedback. Four alternating-treatments single case experimental research designs will test hypotheses about optimizing user performance and technology performance for each aim.Tasks include copy-spelling with BCI-FIT to explore the effects of multi-modal access method configurations (SA1.3a), adaptive signal modeling (SA1.3b), \& active querying (SA2.2), and story retell to examine the effects of language model enhancements. Five people with SSPI will be recruited for each study. Control participants will be recruited for experiments in SA2.2 and SA3.4. Study hypotheses are: (SA1.3a) A customized BCI-FIT configuration based on multi-modal input will improve typing accuracy on a copy-spelling task compared to the standard P300 matrix speller. (SA1.3b) Adaptive signal modeling will allow people with SSPI to typing accurately during a copy-spelling task with BCI-FIT without training a new model before each use. (SA2.2) Either of two methods of adaptive querying will improve BCI-FIT typing accuracy for users with mediocre AUC scores. (SA3.4) Language model enhancements, including a combination of partner and environmental input and word completion during typing, will improve typing performance with BCI-FIT, as measured by ITR during a story-retell task. Optimized recommendations for a multi-modal BCI for each end user will be established, based on an innovative combination of clinical expertise, user feedback, customized multi-modal sensor fusion, and reinforcement learning.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
55

participants targeted

Target at P25-P50 for not_applicable

Timeline
Completed

Started Jul 2022

Typical duration for not_applicable

Geographic Reach
1 country

1 active site

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

July 8, 2020

Completed
5 days until next milestone

First Posted

Study publicly available on registry

July 13, 2020

Completed
2 years until next milestone

Study Start

First participant enrolled

July 15, 2022

Completed
2.8 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

May 5, 2025

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

May 5, 2025

Completed
Last Updated

May 16, 2025

Status Verified

March 1, 2025

Enrollment Period

2.8 years

First QC Date

July 8, 2020

Last Update Submit

May 13, 2025

Conditions

Keywords

brain-computer interface

Outcome Measures

Primary Outcomes (4)

  • Typing Accuracy

    Correct character selections divided by the total character selections in a copy spelling task.

    12 data collection sessions over 12 weeks (1 session/week) to assess change

  • Typing Speed

    Correct character selections per minute in a copy spelling task.

    12 data collection sessions over 12 weeks (1 session/week) to assess change

  • Information transfer rate

    Time-averaged mutual information between intended and typed symbols from the alphabet, computed using probability distributions in accordance with a language model

    12 data collection sessions over 12 weeks (1 session/week) to assess change

  • User experience

    Responses to 10 items on the NASA TLX questionnaire about comfort, workload and satisfaction using the brain-computer interface system during all typing tasks

    12 data collection sessions over 12 weeks (1 session/week) to assess change

Study Arms (4)

BCI-FIT multi-modal configuration

EXPERIMENTAL

For this single case research design with alternating treatments without baseline, 5 participants with severe speech and physical impairment will complete copy spelling tasks with a standard P300 matrix speller layout and with the multi-modal configurations optimized from the BCI-FIT algorithms. Outcome measures are typing accuracy, typing speed and user experience.

Behavioral: BCI-FIT multi-modal access

Adaptive signal modeling

EXPERIMENTAL

For this single case research design with alternating treatments without baseline, 5 participants with severe speech and physical impairment will complete copy spelling tasks with 3 signal adaptive modeling configurations. Outcome measures are typing accuracy, typing speed and user experience.

Behavioral: BCI-FIT adaptive signal modeling

Active querying techniques

EXPERIMENTAL

For this single case research design with alternating treatments without baseline, 5 control volunteers and 5 participants with severe speech and physical impairment who have AUC scores between 70-80% will complete copy spelling tasks with BCI-FIT active querying technique on and with BCI-FIT active querying technique off. Outcome measures are typing accuracy, typing speed and user experience.

Behavioral: BCI-FIT active querying

Language modeling

EXPERIMENTAL

For this single case research design with alternating treatments, 5 control volunteers and 5 participants with severe speech and physical impairment, each with a control partner for partner input will complete a story retell task with BCI-FIT language modeling features on and with BCI-FIT language modeling features off. Outcome measures are information transfer rate and user experience.

Behavioral: BCI-FIT language modeling

Interventions

Adding a personalized multi-modal access protocol to customize a BCI-FIT access method configuration for each individual end user, based on a combination of user characteristics, clinical expertise, user feedback, and system performance data in the software.

BCI-FIT multi-modal configuration

Adding a BCI-FIT adaptive signal modeling that employs transfer learning and on-line model adaptation techniques with noisy labels in the software of this brain-computer interface to eliminate the need for data collection exclusively for model calibration, as well as to address model drift issues associated with drowsiness, fatigue, and other human and environmental factors.

Adaptive signal modeling

Adding BCI-FIT active querying techniques which are software-based optimal action control policies in the brain-computer interface developed with active and reinforcement learning techniques in order to perform efficient user intent inference to improve the entire speed-accuracy trade-off curve for alternative communication.

Active querying techniques

Adding vocabulary and location information (called partner and environmental input) to the language models in the brain-computer interface from a user's communication partner.

Language modeling

Eligibility Criteria

Age18 Years - 89 Years
Sexall(Gender-based eligibility)
Gender Eligibility DetailsParticipant eligibility is based on self-representation of gender identity.
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Controls
  • Able to read and communicate in English
  • Capable of participating in study visits lasting 1-3 hours
  • Adequate visuospatial skills to select letters, words, or icons to copy or generate messages
  • Live within a 2-hour drive of OHSU or is willing to travel to OHSU
  • Participants with severe speech and physical impairment:
  • Adults between 18-89 years of age
  • SSPI that may result from a variety of degenerative or neurodevelopmental conditions, including but not limited to: Duchenne muscular dystrophy, Rett Syndrome, ALS, brainstem CVA, SCI, and Parkinson-plus disorders (MSA, PSP)
  • Able to read and communicate in English with speech or AAC device
  • Capable of participating in study visits lasting 1-3 hours
  • Adequate visuospatial skills to select letters, words or icons to copy or generate basic messages
  • Life expectancy greater than 6 months
  • Able to give informed consent or assent according to IRB approved policy

You may not qualify if:

  • Participants with severe speech and physical impairment:
  • Unstable medical conditions (fluctuating health status resulting in multiple hospitalizations within a 6 week interval)
  • Unable to tolerate weekly data collection visits
  • Photosensitive seizure disorder
  • Presence of implanted hydrocephalus shunt, cochlear implant or deep brain stimulator
  • High risk of skin breakdown from contact with data acquisition hardware.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Oregon Health & Science University

Portland, Oregon, 97239, United States

Location

Related Publications (1)

  • Peters B, Celik B, Gaines D, Galvin-McLaughlin D, Imbiriba T, Kinsella M, Klee D, Lawhead M, Memmott T, Smedemark-Margulies N, Wiedrick J, Erdogmus D, Oken B, Vertanen K, Fried-Oken M. RSVP keyboard with inquiry preview: mixed performance and user experience with an adaptive, multimodal typing interface combining EEG and switch input. J Neural Eng. 2025 Feb 4;22(1):10.1088/1741-2552/ada8e0. doi: 10.1088/1741-2552/ada8e0.

MeSH Terms

Conditions

Amyotrophic Lateral SclerosisBrain Stem InfarctionsMuscular DystrophiesParkinson DiseaseParkinsonian DisordersMultiple System AtrophySpinal Cord InjuriesLocked-In Syndrome

Condition Hierarchy (Ancestors)

Spinal Cord DiseasesCentral Nervous System DiseasesNervous System DiseasesMotor Neuron DiseaseNeurodegenerative DiseasesTDP-43 ProteinopathiesNeuromuscular DiseasesProteostasis DeficienciesMetabolic DiseasesNutritional and Metabolic DiseasesBrain InfarctionBrain IschemiaCerebrovascular DisordersBrain DiseasesStrokeVascular DiseasesCardiovascular DiseasesInfarctionIschemiaPathologic ProcessesPathological Conditions, Signs and SymptomsNecrosisMuscular Disorders, AtrophicMuscular DiseasesMusculoskeletal DiseasesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesBasal Ganglia DiseasesMovement DisordersSynucleinopathiesPrimary DysautonomiasAutonomic Nervous System DiseasesTrauma, Nervous SystemWounds and InjuriesQuadriplegiaParalysisNeurologic ManifestationsSigns and Symptoms

Study Officials

  • Melanie Fried-Oken, PhD

    Oregon Health and Science University

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
NONE
Masking Details
In single case research design, each participant is their own control. The proposed intervention is behavioral and study personnel are aware of each data collection condition.
Purpose
BASIC SCIENCE
Intervention Model
SEQUENTIAL
Model Details: Single case research design with: Alternating treatments without baseline for experiments 1.3a, 2.2; Alternating treatments without baseline for experiments 1.3b and 3.4
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Professor

Study Record Dates

First Submitted

July 8, 2020

First Posted

July 13, 2020

Study Start

July 15, 2022

Primary Completion

May 5, 2025

Study Completion

May 5, 2025

Last Updated

May 16, 2025

Record last verified: 2025-03

Data Sharing

IPD Sharing
Will share

Three types of information will be available to other researchers. 1. The Python code (called BciPy) that runs the BCI-FIT system is open sourced and available to other laboratories that are building and implementing non-invasive brain-computer interfaces. 2. The datasets of neurophysiological data (EEG, EOG, EMG) collected during use of BciPy in different experimental configurations will be made available. All data are de-identified and maintained in an OHSU-secure BOX folder, an OHSU REDCap database and OHSU approved and compliant human subjects research repository. 3. The typing speed, typing accuracy and user experience data from the four single case research studies will be de-identified and stored in an OHSU REDCap database and OHSU approved and compliant human subjects research repository.

Shared Documents
ANALYTIC CODE
Time Frame
A bcipy.github.io website will be built to share the BCI Python code that is used to collect data and run the brain-computer interface. It is expected that the website will be available in June, 2021 until June, 2025 (during years 2-5 of this award).
Access Criteria
Other researchers will have access to neurophysiologic data and outcomes data from the different experimental arms under a data-sharing agreement that provides for: (1) a commitment to using the data only for research purposes and not to identify any individual participant; (2) a commitment to securing the data using appropriate computer technology; and (3) a commitment to destroying or returning the data after analyses are completed.

Locations