NCT04301843

Brief Summary

Difluoromethylornithine (DFMO) will be used in an open label, multicenter, study in combination with etoposide for subjects with relapsed/refractory neuroblastoma.

Trial Health

80
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
131

participants targeted

Target at P75+ for phase_2

Timeline
90mo left

Started Sep 2020

Longer than P75 for phase_2

Geographic Reach
2 countries

31 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress43%
Sep 2020Oct 2033

First Submitted

Initial submission to the registry

March 6, 2020

Completed
4 days until next milestone

First Posted

Study publicly available on registry

March 10, 2020

Completed
7 months until next milestone

Study Start

First participant enrolled

September 25, 2020

Completed
8 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

October 1, 2028

Expected
5 years until next milestone

Study Completion

Last participant's last visit for all outcomes

October 1, 2033

Last Updated

February 3, 2026

Status Verified

January 1, 2026

Enrollment Period

8 years

First QC Date

March 6, 2020

Last Update Submit

January 30, 2026

Conditions

Outcome Measures

Primary Outcomes (1)

  • Number of participants with event free survival (EFS) during study

    To evaluate the efficacy of difluoromethylornithine (DFMO) in combination with etoposide in patients with relapsed/refractory neuroblastoma, based upon: o Event free survival (EFS) from time of enrollment.

    2 years plus 5 years follow up

Secondary Outcomes (3)

  • Length of time that participants experience Overall Survival (OS)

    7 years

  • Determine the Overall Response Rate (ORR) of Participants using INSS Response Evaluation Criteria.

    2 years

  • Number of Participants with Adverse Events as a Measure of Safety and Tolerability

    2 years plus 30 days

Study Arms (1)

Eflornithine (DFMO)

EXPERIMENTAL

In this study subjects will receive six 21-day cycles of Etoposide and DFMO followed by an additional 630 days of DFMO alone. Etoposide will be given at 50 mg/m2/dose PO daily for the first 14 days of each 21 days until 6 cycles of etoposide are completed. DFMO (difluoromethylornithine) will be given at a dose of 1000 mg/m2 BID on each day of study.

Drug: Eflornithine

Interventions

DFMO (difluoromethylornithine) will be given at a dose of 1000 mg/m2 BID on each day of study.

Also known as: DFMO, difluoromethylornithine
Eflornithine (DFMO)

Eligibility Criteria

AgeUp to 31 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64)

You may qualify if:

  • All patients must have a pathologically confirmed diagnosis of neuroblastoma, ≤ 30.99 years of age with history of relapsed/refractory neuroblastoma.
  • All patients must have completed upfront therapy with at least 4 cycles of aggressive multi-drug chemotherapy.
  • Specific Criteria by Arm:
  • Arms 1 and 2:
  • Subjects with no active disease:
  • i. No evidence of residual disease by CT/MRI and MIBG scan (or PET for patients who have a history of MIBG non-avid disease).
  • o Note: Patients with residual masses detected by CT/MRI may be considered in CR if their MIBG is negative or if MIBG positive and evaluated by PET and found to have negative PET scans; biopsy confirmation may be considered if there is still reasonable concern for persistent disease but is not required.
  • ii. No evidence of disease metastatic to bone marrow.
  • Arm 3 \[CLOSED TO ENROLLMENT\]:
  • Measurable or evaluable disease, including at least one of the following:
  • Measurable tumor by CT or MRI; or a positive MIBG and PET; or positive bone marrow biopsy/aspirate in at least one site.
  • Timing from prior therapy: Enrollment (first dose of DFMO) no later than 60 days from last dose of the most recent therapy.
  • Subjects must have fully recovered from the acute toxic effects of all prior anti- cancer chemotherapy and be within the following timelines:
  • Myelosuppressive chemotherapy: Must not have received within 2 weeks of enrollment onto this study (6 weeks if prior nitrosourea).
  • Hematopoietic growth factors: At least 5 days since the completion of therapy with a growth factor.
  • +18 more criteria

You may not qualify if:

  • BSA of \<0.25 m2.
  • Subjects that received DFMO at a dose higher than 1000mg/m2 BID prior to this study are not eligible.
  • Subjects that received a dose of DFMO in combination with etoposide are not eligible.
  • Investigational Drugs: Subjects who are currently receiving another investigational drug are excluded from participation.
  • Anti-cancer Agents: Subjects who are currently receiving other anticancer agents are not eligible. Subjects must have fully recovered from hematological and bone marrow suppression effects of prior chemotherapy.
  • Infection: Subjects who have an uncontrolled infection are not eligible until the infection is judged to be well controlled in the opinion of the investigator.
  • Subjects who, in the opinion of the investigator, may not be able to comply with the safety monitoring requirements of the study, or in whom compliance is likely to be suboptimal, should be excluded.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (31)

University of Alabama/Children's of Alabama

Birmingham, Alabama, 35201, United States

RECRUITING

Arkansas Children's Hospital

Little Rock, Arkansas, 72202, United States

RECRUITING

UCSF Benioff Children's Hospital Oakland

Oakland, California, 94609, United States

RECRUITING

Rady Children's Hospital

San Diego, California, 92123, United States

RECRUITING

Connecticut Children's Hospital

Hartford, Connecticut, 06106, United States

RECRUITING

Arnold Palmer Hospital for Children

Orlando, Florida, 32806, United States

RECRUITING

St. Joseph's Children's Hospital

Tampa, Florida, 33614, United States

RECRUITING

Augusta University Health

Augusta, Georgia, 30912, United States

RECRUITING

University of Iowa

Iowa City, Iowa, 52242, United States

RECRUITING

Norton Children's Research Institute/Affiliated with University of Louisville School of Medicine

Louisville, Kentucky, 40201, United States

RECRUITING

Helen DeVos Children's Hospital

Grand Rapids, Michigan, 49503, United States

RECRUITING

Children's Hospital and Clinics of Minnesota

Minneapolis, Minnesota, 55404, United States

RECRUITING

Children's Mercy Hospitals and Clinics

Kansas City, Missouri, 64108, United States

RECRUITING

Cardinal Glennon Children's Hospital

St Louis, Missouri, 63104, United States

RECRUITING

Hackensack University Medical Center

Hackensack, New Jersey, 07601, United States

RECRUITING

Levine Children's Hospital

Charlotte, North Carolina, 28204, United States

RECRUITING

Cleveland Clinic Children's

Cleveland, Ohio, 44195, United States

RECRUITING

Randall Children's Hospital

Portland, Oregon, 97227, United States

RECRUITING

Penn State Milton S. Hershey Medical Center and Children's Hospital

Hershey, Pennsylvania, 17033, United States

RECRUITING

Hasbro Children's Hospital

Providence, Rhode Island, 02901, United States

RECRUITING

Medical University of South Carolina

Charleston, South Carolina, 29425, United States

RECRUITING

Dell Children's Blood and Cancer Center

Austin, Texas, 78723, United States

RECRUITING

Children's Medical Center Dallas

Dallas, Texas, 75235, United States

RECRUITING

Children's Hospital of The King's Daughters

Norfolk, Virginia, 23507, United States

RECRUITING

Medical College of Wisconsin

Milwaukee, Wisconsin, 53226, United States

RECRUITING

Alberta Children's Hospital

Calgary, Alberta, AB T3B 6A8, Canada

RECRUITING

CancerCare Manitoba

Winnipeg, Manitoba, MB R3E 0V9, Canada

RECRUITING

UHC Sainte-Justine

Montreal, Quebec, QC H3S 2G4, Canada

RECRUITING

Montreal Children's Hospital

Montreal, Quebec, QC H4A 3H9, Canada

RECRUITING

CHUQ

Québec, Quebec, QC G1V 4W6, Canada

RECRUITING

CIUSSS de l'Estrie-CHUS

Sherbrooke, Quebec, QC J1H 5H3, Canada

RECRUITING

Related Links

MeSH Terms

Conditions

Neuroblastoma

Interventions

Eflornithine

Condition Hierarchy (Ancestors)

Neuroectodermal Tumors, Primitive, PeripheralNeuroectodermal Tumors, PrimitiveNeoplasms, NeuroepithelialNeuroectodermal TumorsNeoplasms, Germ Cell and EmbryonalNeoplasms by Histologic TypeNeoplasmsNeoplasms, Glandular and EpithelialNeoplasms, Nerve Tissue

Intervention Hierarchy (Ancestors)

OrnithineAmino Acids, BasicAmino AcidsAmino Acids, Peptides, and ProteinsAmino Acids, Diamino

Study Officials

  • Giselle Sholler, MD

    Beat Childhood Cancer

    STUDY CHAIR

Central Study Contacts

Study Design

Study Type
interventional
Phase
phase 2
Allocation
NA
Masking
NONE
Purpose
TREATMENT
Intervention Model
SINGLE GROUP
Sponsor Type
OTHER
Responsible Party
SPONSOR INVESTIGATOR
PI Title
Chair, Beat Childhood Cancer
Expanded Access
Yes

Study Record Dates

First Submitted

March 6, 2020

First Posted

March 10, 2020

Study Start

September 25, 2020

Primary Completion (Estimated)

October 1, 2028

Study Completion (Estimated)

October 1, 2033

Last Updated

February 3, 2026

Record last verified: 2026-01

Data Sharing

IPD Sharing
Will not share

Locations