NCT04283786

Brief Summary

Osteoporosis is a condition where bones become weak and fragile and can easily break. Suffering from one fragility fracture doubles your chance of having another. These fractures can affect a person's life significantly and contribute to significant costs to the UK (United Kingdom) health service. Bisphosphonates are used to treat osteoporosis and help prevent fractures. The most commonly used bisphosphonate treatment is Alendronate, but taking it correctly is complicated and side-effects are common. Therefore only 1 in 4 people continue with Alendronate beyond 2 years. There are different forms of bisphosphonates that can be given in different ways and frequencies and may be more acceptable and tolerated by patients. The study will look at how effective different bisphosphonate regimens are compared to Alendronate at preventing fractures, whether the reduction in fracture risk can be achieved at reasonable financial cost and establish acceptability of different approaches to patients. The study will be completed in 2 stages, Stage 1A and Stage 1B in parallel, followed by Stage 2. Stage 1A will update a systematic review to inform which regimens are most effective at reducing fractures and provide the best value for money. Stage 1B will consist of qualitative, semi-structured interviews from a sample of stakeholders in receipt of or involved in the delivery of different bisphosphonate regimens, in order to identify which bisphosphonate regimens are most acceptable to patients and the barriers to effective compliance and adherence. Stage 2 will use focus groups and workshops with stakeholders and commissioners to discuss uncertainties from Stage 1 and identify the most important outstanding questions for future research.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
100

participants targeted

Target at P50-P75 for all trials

Timeline
Completed

Started Mar 2020

Typical duration for all trials

Geographic Reach
1 country

1 active site

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

February 18, 2020

Completed
7 days until next milestone

First Posted

Study publicly available on registry

February 25, 2020

Completed
10 days until next milestone

Study Start

First participant enrolled

March 6, 2020

Completed
1.3 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

June 30, 2021

Completed
11 months until next milestone

Study Completion

Last participant's last visit for all outcomes

May 31, 2022

Completed
Last Updated

April 25, 2023

Status Verified

April 1, 2023

Enrollment Period

1.3 years

First QC Date

February 18, 2020

Last Update Submit

April 24, 2023

Conditions

Keywords

bisphosphonatessystematic reviewqualitative interviewsosteoporosis

Outcome Measures

Primary Outcomes (1)

  • Views, experiences and preferences of patients, clinicians and researchers regarding different bisphosphonate treatment regimens.

    Collected through conduction and analysis of semi-structured interviews.

    40-50 minutes

Secondary Outcomes (3)

  • Effectiveness of different bisphosphonate regimens in preventing fragility fractures in adults.

    24 months

  • Cost-effectiveness of different bisphosphonate regimens in preventing fragility fractures in adults.

    24 months

  • Prioritised future research questions regarding the effectiveness and adherence profile of different bisphosphonate regimens in preventing fragility fractures in adults.

    2-3 hours

Study Arms (8)

General Practitioner

General Practitioners working within primary care in the UK

Other: Qualitative Interview

Primary Care Patients

Patients cared for in primary care who started on oral bisphosphonates within the last 24 months for prevention of fragility fractures

Other: Qualitative Interview

Secondary Care Clinicians

Clinicians working in secondary care as specialists (e.g. nurses, consultants) involved in the treatment of osteoporosis

Other: Qualitative Interview

Secondary Care Patients

Patients cared for in secondary care receiving hospital based (intravenous) bisphosphonate treatments for prevention of fragility fractures who began treatment within the last 24 months

Other: Qualitative Interview

Clinical Academics

Clinical academics involved in osteoporosis research

Other: Qualitative Interview

Secondary Care Clinicians - Novel Care

Clinicians working in secondary care as specialists (e.g. nurses, consultants) from the osteoporosis service in Nottingham and Sheffield with insight into alternate bisphosphonate treatments

Other: Qualitative Interview

Secondary Care Patients - Novel Care

Patients cared for in secondary care receiving alternative bisphosphonate treatments for prevention of fragility fractures who began treatment within the last 24 months at the osteoporosis service in Nottingham or Sheffield

Other: Qualitative Interview

Commissioners

Commissioners involved in osteoporosis services

Other: Qualitative Interview

Interventions

A single qualitative interview about experiences of bisphosphonate regimens, as well as wider experiences of service quality and delivery.

Clinical AcademicsCommissionersGeneral PractitionerPrimary Care PatientsSecondary Care CliniciansSecondary Care Clinicians - Novel CareSecondary Care PatientsSecondary Care Patients - Novel Care

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Patients and stakeholders in receipt of or involved in the delivery of bisphosphonate treatment for the prevention of fragility fractures.

You may qualify if:

  • Adults over the age of 18 with the ability to give informed consent and represent one of the following stakeholder groups:
  • GPs
  • Patients who started on oral bisphosphonates within the last 24 months for prevention of fragility fractures
  • Secondary care specialist clinicians (nurses, consultants) involved in the treatment of osteoporosis.
  • Patients receiving hospital based (intravenous) bisphosphonate treatments for prevention of fragility fractures who began treatment within the last 24 months
  • Clinical academics involved in osteoporosis research
  • Specialist clinicians (nurses, consultants) from the osteoporosis service in Nottingham and Sheffield with insight into alternate bisphosphonate treatments
  • Patients receiving alternate bisphosphonate treatments for prevention of fragility fractures who began treatment within the last 24 months
  • Commissioners involved in osteoporosis services

You may not qualify if:

  • Patients who take bisphosphonate medicines for reasons other than osteoporosis or osteopenia, including patients with an active cancer, primary hyperparathyroidism and Paget's disease.
  • Are unable to give informed consent
  • Considered to be near to end of life.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Nottingham University Hospitals Trust, Queens Medical Centre

Nottingham, Nottinghamshire, NG7 2UH, United Kingdom

Location

MeSH Terms

Conditions

Osteoporosis

Condition Hierarchy (Ancestors)

Bone Diseases, MetabolicBone DiseasesMusculoskeletal DiseasesMetabolic DiseasesNutritional and Metabolic Diseases

Study Officials

  • Opinder Sahota, Professor

    Nottingham University Hospitals NHS Trust

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
CROSS SECTIONAL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

February 18, 2020

First Posted

February 25, 2020

Study Start

March 6, 2020

Primary Completion

June 30, 2021

Study Completion

May 31, 2022

Last Updated

April 25, 2023

Record last verified: 2023-04

Data Sharing

IPD Sharing
Will not share

The datasets (whole transcripts) generated during and/or analysed during the current study are not expected to be made available due to participant confidentiality. Some anonymised statements may be available within the published results.

Locations