What Are my Options to Stay Safe at Home: Technology For Aging at Home
COORDINATEs
Technology to Support Decision Making About Aging at Home (COORDINATEs)
1 other identifier
observational
294
3 countries
4
Brief Summary
Most older people want to stay at home as long as possible. Effective self-management for people losing autonomy depends on reliable monitoring of their mobility, health and safety and active implication in decision-making. New technologies have the potential to provide information about changing patterns that reflect changing care needs. This information could help older adults, caregivers and health professionals to participate in decision-making about housing options when a change in living environment needs to be considered.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for all trials
Started Nov 2018
Typical duration for all trials
4 active sites
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
Study Start
First participant enrolled
November 28, 2018
CompletedFirst Submitted
Initial submission to the registry
February 7, 2020
CompletedFirst Posted
Study publicly available on registry
February 13, 2020
CompletedPrimary Completion
Last participant's last visit for primary outcome
August 1, 2021
CompletedStudy Completion
Last participant's last visit for all outcomes
November 1, 2021
CompletedFebruary 17, 2020
February 1, 2020
2.7 years
February 7, 2020
February 13, 2020
Conditions
Keywords
Outcome Measures
Primary Outcomes (3)
Autonomy and mobility assessment using GPS
WP1: 1) Asses autonomy and mobility of older adults with mild cognitive impairment and memory problems living at home (including caregivers), their movement through their homes and neighborhoods (using GPS and walking interview); 2) how GPS data can support ongoing SDM about housing options for older adults.
Participant will wear a GPS for a total of two weeks. As data collection will occur in parallel at all four sites (Quebec, Alberta, Sweden, Netherlands) data collection will happen over a period of 1 year
Iterative assessment to tailor the e-decision support technology
WP2: 1) Group discussion on if and how to incorporate GPS and adaptation of an existing e-platforms to create an adapted e-decision support technology (noted that the discussion focus will depend on result from WP1).
Immediately after group discussion. 3 sequential group discussion are plan to occur, one in each country (Canada, Sweden, Netherlands) data collection will happen over a period of 1 year.
User experience assessment of the newly adapted technology
WP3: 1) Opinion of older adults with mild cognitive impairment, caregivers and health professionals about the adapted technology (noted that the final survey will depend on result from WP1 and WP2).
Immediately after testing the new platform. As data collection will occur in parallel at all four sites (Quebec, Alberta, Sweden, Netherlands), it will happen over a period of 6 months
Secondary Outcomes (2)
Inform SDM processes about housing option
9 months
Open-ended questionnaire of participant global health status and their experience of using the GPS and filling the travel diary
Immediately before and after carrying the GPS at WP1. As data collection will occur in parallel at all four sites (Quebec, Alberta, Sweden, Netherlands) data collection will happen over a period of 1 year
Study Arms (1)
Older adults with mild cognitive impairment
WP1, older adults with cognitive impairment will use a GPS tracker for 2 weeks, during which they are asked 1) to keep a daily diary about their activity (travel diary), 2) take the researcher on a walk that they often do (walking interview), and 3) participate in an in-depth interview after 2 weeks, in which their experience with the GPS ans the travel diary data are discussed. WP2, older adults with mild cognitive impairment, caregivers, health professionals and technology developers will collaborate during group discussion meeting to co-design the e-decision support platform to be adapted. WP3, older adults with mild cognitive impairment, caregivers and health professionals will then be asked to use the adapted e-decision support platform and fill a survey.
Interventions
WP1: GPS tracker for 2 weeks and a daily diary about activity (travel diary).
WP2 and WP3: An e-decision support platform that will foster shared decision making about options to stay safe at home for the older adult.
Eligibility Criteria
Elderly (\>65 years) with mild cognitive impairment or self reported memory problems.
You may qualify if:
- Aged ≥ 65 years
- Living at home
- Diagnosed with mild cognitive impairment or experiencing memory issues
- Able to read, understand and write
- Can provide informed consent
You may not qualify if:
- Older adults who are not able to provide informed consent
- Living in nursing home or hospital
Contact the study team to confirm eligibility.
Sponsors & Collaborators
- CHU de Quebec-Universite Lavallead
- Laval Universitycollaborator
- Dalarna Universitycollaborator
- University of Groningencollaborator
- University of Albertacollaborator
Study Sites (4)
CERSSPL
Québec, Quebec, Canada
University of Alberta
Edmonton, Canada
University of Groningen
Groningen, Netherlands
Dalarna University
Falun, Sweden
Related Publications (6)
Caron CD, Ducharme F, Griffith J. Deciding on institutionalization for a relative with dementia: the most difficult decision for caregivers. Can J Aging. 2006 Summer;25(2):193-205. doi: 10.1353/cja.2006.0033.
PMID: 16821201RESULTGarvelink MM, Emond J, Menear M, Briere N, Freitas A, Boland L, Perez MMB, Blair L, Stacey D, Legare F. Development of a decision guide to support the elderly in decision making about location of care: an iterative, user-centered design. Res Involv Engagem. 2016 Jul 19;2:26. doi: 10.1186/s40900-016-0040-0. eCollection 2016.
PMID: 29062524RESULTPot AM, Willemse BM, Horjus S. A pilot study on the use of tracking technology: feasibility, acceptability, and benefits for people in early stages of dementia and their informal caregivers. Aging Ment Health. 2012;16(1):127-34. doi: 10.1080/13607863.2011.596810. Epub 2011 Jul 25.
PMID: 21780960RESULTGreenhalgh T, Jackson C, Shaw S, Janamian T. Achieving Research Impact Through Co-creation in Community-Based Health Services: Literature Review and Case Study. Milbank Q. 2016 Jun;94(2):392-429. doi: 10.1111/1468-0009.12197.
PMID: 27265562RESULTMeijering L, Weitkamp G. Numbers and narratives: Developing a mixed-methods approach to understand mobility in later life. Soc Sci Med. 2016 Nov;168:200-206. doi: 10.1016/j.socscimed.2016.06.007. Epub 2016 Jun 8.
PMID: 27316320RESULTSturge J, Meijering L, Jones CA, Garvelink M, Caron D, Nordin S, Elf M, Legare F. Technology to Improve Autonomy and Inform Housing Decisions for Older Adults With Memory Problems Who Live at Home in Canada, Sweden, and the Netherlands: Protocol for a Multipronged Mixed Methods Study. JMIR Res Protoc. 2021 Jan 21;10(1):e19244. doi: 10.2196/19244.
PMID: 33475512DERIVED
Related Links
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
France Légaré, PhD
Laval University
Central Study Contacts
Study Design
- Study Type
- observational
- Observational Model
- COHORT
- Time Perspective
- CROSS SECTIONAL
- Sponsor Type
- OTHER
- Responsible Party
- PRINCIPAL INVESTIGATOR
- PI Title
- Principal investigator
Study Record Dates
First Submitted
February 7, 2020
First Posted
February 13, 2020
Study Start
November 28, 2018
Primary Completion
August 1, 2021
Study Completion
November 1, 2021
Last Updated
February 17, 2020
Record last verified: 2020-02
Data Sharing
- IPD Sharing
- Will not share