NCT03918382

Brief Summary

Weekly electronic reporting of patient-reported outcomes will be tested in a national trial in participants undergoing radiotherapy for head and neck cancer. The study is a national study under the Danish Head and Neck Cancer Group (DAHANCA) and all 6 centers in Denmark will participate. The clinical endpoints will be:

  • Quality of life
  • Objective toxicity score (DAHANCA)
  • Opioid treatment
  • Tube feeding
  • Weight loss
  • Hospitalization
  • Compliance to treatment

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
291

participants targeted

Target at P75+ for not_applicable head-and-neck-cancer

Timeline
Completed

Started Jun 2019

Longer than P75 for not_applicable head-and-neck-cancer

Geographic Reach
1 country

6 active sites

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

April 10, 2019

Completed
7 days until next milestone

First Posted

Study publicly available on registry

April 17, 2019

Completed
2 months until next milestone

Study Start

First participant enrolled

June 13, 2019

Completed
4.7 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

March 1, 2024

Completed
5 months until next milestone

Study Completion

Last participant's last visit for all outcomes

August 1, 2024

Completed
Last Updated

October 27, 2023

Status Verified

October 1, 2023

Enrollment Period

4.7 years

First QC Date

April 10, 2019

Last Update Submit

October 26, 2023

Conditions

Keywords

Patient-Reported OutcomeQuality of lifeElectronic reporting of symptomsRadiotherapy

Outcome Measures

Primary Outcomes (2)

  • Quality of life measured by EORTC QLQ C30

    Registration of differences in quality of life between the two groups in the study. EORTC QLQ-C30(scale range 0-100, a higher score indicating better quality of life) will be used for as quality of life measurement. The scores will be presented graphically in separate figures. Differences between the groups will be tested using t-test and analysis of covariance.

    With in the first 2 months

  • Quality of life (QOL) measured by EuroQol EQ-5D-5L.

    EQ-5D-5L measures individual generic health status using 5 dimensions: mobility, self-care, usual activities, pain/discomfort, and anxiety/depression, and each dimension has 5 levels depending on severity of symptoms (1 no problems, 5 extreme problems) and a VAS (visual analogue scale). The scores can then be converted into a single index number. The index value will be used for calculation of quality-adjusted life years (QALYs) for a health economic analysis of the intervention. The scores will be presented graphically in separate figures. Differences between the groups will be tested using t-test and analysis of covariance.

    With in the first 2 months

Secondary Outcomes (6)

  • DAHANCA toxicity score

    Within the first 4 months

  • Weight loss

    Within the first 4 months

  • Hospitalization due to toxicity expect tube-feeding and patients reported experience

    Within the first 4 months

  • Compliance to cisplatinum

    Within the first 2 months

  • Time to opioid treatment

    Within the first 3 months

  • +1 more secondary outcomes

Study Arms (2)

Control group

NO INTERVENTION

First phase. 97 participants. This group will continue standard procedure regarding side effect registration and handling. When the 97 patients have been included and have finished their radiotherapy the second phase will be initiated.

PRO group

EXPERIMENTAL

Second phase. 194 participants. This group will be assigned to the intervention which is weekly electronic Patient-Reported Outcomes. Patients report the symptoms (PRO) on a tablet before each weekly control visit. The clinician will use the patients PRO answers as part of the consultation. The PRO symptoms consist of head and neck relevant items fra PRO-CTCAE™ (Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events) and EORTC (European Organisation for Research and Treatment of Cancer) item library.

Other: Electronic Patient-Reported Outcome

Interventions

Weekly reporting of patient-reported outcomes on a tablet for closer contact between patient and clinic during radiotherapy.

Also known as: Real-time guidance of patients when symptom reporting, Patient Self-Reporting of Symptoms
PRO group

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Primary or post-operative curative radiotherapy (photons) plus/minus concomitant Cisplatinum for squamous-cell carcinoma of the head and neck (HNSCC)
  • No serious cognitive deficits
  • Read and understand Danish

You may not qualify if:

  • Prior radiotherapy in the same area (head and neck)

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (6)

Aalborg University Hospital

Aalborg, Denmark

RECRUITING

Aarhus University Hospital

Aarhus, Denmark

RECRUITING

Herlev Hospital

Copenhagen, Denmark

RECRUITING

Rigshoapitalet

Copenhagen, Denmark

RECRUITING

Zealand Hospital

Næstved, Denmark

COMPLETED

Odense University Hospital

Odense, Denmark

RECRUITING

Related Links

MeSH Terms

Conditions

Head and Neck NeoplasmsRadiation Injuries

Condition Hierarchy (Ancestors)

Neoplasms by SiteNeoplasmsWounds and Injuries

Study Officials

  • Cecilie Holländer-Mieirtz, MD

    Rigshospitalet, Denmark

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Cecilie Holländer-Mieritz, MD

CONTACT

Helle Pappot, MD, DMSc

CONTACT

Study Design

Study Type
interventional
Phase
not applicable
Allocation
NON RANDOMIZED
Masking
NONE
Purpose
SUPPORTIVE CARE
Intervention Model
SEQUENTIAL
Model Details: A prospective nation-wide, sequential cohort study. * First phase control group. 97 participants. No Intervention: Standard of care.This arm will continue standard procedure regarding side effect registration and handling. * Second phase. PRO group. 194 participants. Intervention: Active use of electronic patient-reported outcomes.This arm will be assigned to intervention by weekly electronic reporting of side effects and quality of life.
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Clinical Oncologist, Consultant, DMSc

Study Record Dates

First Submitted

April 10, 2019

First Posted

April 17, 2019

Study Start

June 13, 2019

Primary Completion

March 1, 2024

Study Completion

August 1, 2024

Last Updated

October 27, 2023

Record last verified: 2023-10

Data Sharing

IPD Sharing
Will not share

Locations