NCT03858777

Brief Summary

Sarcoidosis is a multisystem granulomatous disease of unknown cause that can affect any organ in the body, including the heart. Granulomatous myocarditis can lead to ventricular dysfunction and ventricular arrhythmias causing significant morbidity and mortality. Immunosuppressive therapy (IST) has been shown to reverse active myocarditis and preserve left ventricular (LV) function and in some cases improve LV function. In addition, IST can suppress arrhythmias that develop due to active myocarditis and prevent the formation of scar. The potential role of cardiac biomarkers, including brain natriuretic peptide (BNP), atrial natriuretic peptide (ANP), and cardiac troponins, in detecting active myocarditis is limited and studies have been disappointing. At present, there are no biomarkers to detect active myocarditis and the use of advanced imaging modalities (FDG-PET) for assessing and monitoring active myocarditis is not feasible or practical and is associate with high radiation exposure. As such, a biomarker that is reflective of active myocarditis and that is cardiac specific will assist physicians in assessing the presence of active myocarditis to guide therapeutic decisions and to assess response to therapy which can limit further cardiac damage. Cell free DNA (cfDNA) are fragments of genomic DNA that are released into the circulation from dying or damaged cells. It is a powerful diagnostic tool in cancer, transplant rejection and fetal medicine especially when the genomic source differs from the host. A novel technique that relies on tissue unique CpG methylation patterns can identify the tissue source of cell free DNA in an individual reflecting potential tissue injury. We will be conducting a pilot study to explore the utility of this diagnostic tool to identify granulomatous myocarditis in patients with sarcoidosis.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
120

participants targeted

Target at P50-P75 for not_applicable

Timeline
27mo left

Started May 2019

Longer than P75 for not_applicable

Geographic Reach
1 country

2 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress77%
May 2019Jun 2028

First Submitted

Initial submission to the registry

February 25, 2019

Completed
4 days until next milestone

First Posted

Study publicly available on registry

March 1, 2019

Completed
2 months until next milestone

Study Start

First participant enrolled

May 1, 2019

Completed
8.6 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 15, 2027

Expected
7 months until next milestone

Study Completion

Last participant's last visit for all outcomes

June 30, 2028

Last Updated

January 9, 2026

Status Verified

January 1, 2026

Enrollment Period

8.6 years

First QC Date

February 25, 2019

Last Update Submit

January 7, 2026

Conditions

Keywords

sarcoidosis

Outcome Measures

Primary Outcomes (1)

  • cfDNA level

    cfDNA level

    cfDNA level at baseline and 2 months for sarcoidosis with heart disease compared to cfDNA levels at baseline for healthy controls and sarcoidosis without cardiac disease and cfDNA levels at baseline, 6 and 24 hours for STEMI patients.

Study Arms (4)

Sarcoidosis patients without evidence of active myocarditis

ACTIVE COMPARATOR

A single blood draw.

Diagnostic Test: cell free DNA

Sarcoidosis patients with evidence of active myocarditis

EXPERIMENTAL

Two blood draws 2 months apart.

Diagnostic Test: cell free DNA

Acute ST elevation myocardial infarction (STEMI)

ACTIVE COMPARATOR

Three blood draws, baseline, 6 hours and 24 hours.

Diagnostic Test: cell free DNA

Healthy controls

PLACEBO COMPARATOR

A single blood draw

Diagnostic Test: cell free DNA

Interventions

cell free DNADIAGNOSTIC_TEST

All groups will have blood draws and cfDNA measured

Acute ST elevation myocardial infarction (STEMI)Healthy controlsSarcoidosis patients with evidence of active myocarditisSarcoidosis patients without evidence of active myocarditis

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Diagnosis of sarcoidosis based on the ATS/ERS criteria.
  • Normal 12 lead ECG within the past one year.
  • Non-smoker.
  • No immunosuppressive therapy for at least one year.

You may not qualify if:

  • Known cardiac disease.
  • Active smoker.
  • On immunosuppressive therapy.
  • Sarcoidosis patients with evidence of active myocarditis:
  • Diagnosis of sarcoidosis based on the ATS/ERS criteria.
  • Evidence of active myocarditis based on recent cMRI or cFDG-PET.
  • Non-smoker.
  • Known cardiac disease other than sarcoidosis.
  • Active smoker.
  • On immunosuppressive therapy.
  • Acute ST elevation myocardial infarction (STEMI):
  • Diagnosis STEMI based on 1mm ST elevation in 2 or more contiguous leads.
  • Symptom onset within 12 hours.
  • Undergoing cardiac intervention for acute coronary syndrome.
  • Able to consent for blood draw.
  • +6 more criteria

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (2)

University of Iowa

Iowa City, Iowa, 52242, United States

NOT YET RECRUITING

University of Iowa

Iowa City, Iowa, 52242, United States

RECRUITING

MeSH Terms

Conditions

SarcoidosisST Elevation Myocardial Infarction

Interventions

Noninvasive Prenatal Testing

Condition Hierarchy (Ancestors)

Lymphoproliferative DisordersLymphatic DiseasesHemic and Lymphatic DiseasesHypersensitivity, DelayedHypersensitivityImmune System DiseasesMyocardial InfarctionMyocardial IschemiaHeart DiseasesCardiovascular DiseasesVascular DiseasesInfarctionIschemiaPathologic ProcessesPathological Conditions, Signs and SymptomsNecrosis

Intervention Hierarchy (Ancestors)

Liquid BiopsyBiopsyCytodiagnosisCytological TechniquesClinical Laboratory TechniquesDiagnostic Techniques and ProceduresDiagnosisGenetic TestingSpecimen HandlingPrenatal DiagnosisDiagnostic Techniques, Obstetrical and GynecologicalInvestigative TechniquesGenetic TechniquesGenetic ServicesHealth ServicesHealth Care Facilities Workforce and ServicesDiagnostic ServicesPreventive Health Services

Study Officials

  • Nabeel Hamzeh, MD

    University of Iowa

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Study Design

Study Type
interventional
Phase
not applicable
Allocation
NON RANDOMIZED
Masking
NONE
Purpose
DIAGNOSTIC
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
SPONSOR INVESTIGATOR
PI Title
Associate Professor of Medicine

Study Record Dates

First Submitted

February 25, 2019

First Posted

March 1, 2019

Study Start

May 1, 2019

Primary Completion (Estimated)

December 15, 2027

Study Completion (Estimated)

June 30, 2028

Last Updated

January 9, 2026

Record last verified: 2026-01

Data Sharing

IPD Sharing
Will not share

Locations