MyPaTH Story Booth
1 other identifier
observational
2,000
1 country
1
Brief Summary
The MyPaTH Story Booth will use an (audio) "document" approach to elicit in depth experiential knowledge or perspectives from patients and caregivers by recording their personal stories.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for all trials
Started Mar 2016
Longer than P75 for all trials
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
Study Start
First participant enrolled
March 1, 2016
CompletedFirst Submitted
Initial submission to the registry
August 23, 2017
CompletedFirst Posted
Study publicly available on registry
April 11, 2018
CompletedPrimary Completion
Last participant's last visit for primary outcome
June 1, 2030
ExpectedStudy Completion
Last participant's last visit for all outcomes
June 1, 2030
July 24, 2025
July 1, 2025
14.3 years
August 23, 2017
July 21, 2025
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Number of stories collected
The goal of the project is to generate a searchable archive of patient and caregiver narratives
September 2018
Secondary Outcomes (3)
Comparison of approaches to categorize story contents
Cross-sectional analysis of the first 100 stories, September 2018
Number of researchers who access the online story archive
Annually at 2 and 3 years of follow-up the number of researchers who accessed stories will be reviewed.
Number of research teams who engage stakeholders through the project
Annually at 2 and 3 years of follow-up
Eligibility Criteria
Anyone over the age of 18 who can provide informed consent
You may qualify if:
- Over the age of 18
You may not qualify if:
- Researchers will exclude individuals who are not 18 years of age or older and/or do not provide informed consent
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (1)
University of Pittsburgh
Pittsburgh, Pennsylvania, 15213, United States
Related Publications (3)
Hamm M, Wilson JD, Lee YJ, Norman N, Winstanley EL, McTigue KM. Substance use as subtext to health narratives: Identifying opportunities for improving care from community member perspectives. Patient Educ Couns. 2024 Nov;128:108384. doi: 10.1016/j.pec.2024.108384. Epub 2024 Aug 9.
PMID: 39168050BACKGROUNDShah VK, Hamm M, Glynn NW, Rockette-Wagner B, McTigue K. Comparing survey data to qualitative themes in patient stories to help researchers better identify pressing community healthcare needs. J Eval Clin Pract. 2023 Aug;29(5):793-801. doi: 10.1111/jep.13837. Epub 2023 Mar 24.
PMID: 36961380BACKGROUNDMcTigue KM, Fear D, Hunter K, Karanam S, Uhrig J, Alston T, Dillon S, Faust J, Kim J, LaRosa A, Postol B, Umegbolu S, Hamm M. The development of a patient and caregiver narrative archive to support patient-centered research. Eur J Pers Cent Healthc. 2018 Dec;6(4):565-570. doi: 10.5750/ejpch.v6i4.1546
BACKGROUND
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Kathleen M McTigue, MD
University of Pittsburgh
Central Study Contacts
Study Design
- Study Type
- observational
- Observational Model
- OTHER
- Time Perspective
- PROSPECTIVE
- Sponsor Type
- OTHER
- Responsible Party
- PRINCIPAL INVESTIGATOR
- PI Title
- Professor
Study Record Dates
First Submitted
August 23, 2017
First Posted
April 11, 2018
Study Start
March 1, 2016
Primary Completion (Estimated)
June 1, 2030
Study Completion (Estimated)
June 1, 2030
Last Updated
July 24, 2025
Record last verified: 2025-07
Data Sharing
- IPD Sharing
- Will not share