NCT03347240

Brief Summary

The disability inflected by dystonia encouraged the development of many neurosurgical procedures. This is a prospective study included 120 patients suffering from intractable secondary dystonia. They were subjected to different neurosurgical treatments and were assessed through the follow up period

Trial Health

100
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
120

participants targeted

Target at P50-P75 for not_applicable

Timeline
Completed

Started Dec 2013

Typical duration for not_applicable

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

December 1, 2013

Completed
3.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 31, 2016

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 31, 2016

Completed
11 months until next milestone

First Submitted

Initial submission to the registry

November 12, 2017

Completed
8 days until next milestone

First Posted

Study publicly available on registry

November 20, 2017

Completed
Last Updated

November 20, 2017

Status Verified

November 1, 2017

Enrollment Period

3.1 years

First QC Date

November 12, 2017

Last Update Submit

November 15, 2017

Conditions

Outcome Measures

Primary Outcomes (1)

  • Burke-Fahn-Marsden dystonia rating scale

    Dystonia rating scale Higher scores means a worse condition of the disease, while low scores indicate a less involvement of the body

    1 year

Secondary Outcomes (2)

  • Modified Ashworth scale

    1 year

  • Barthel index

    1 year

Study Arms (4)

Brain lesioning group

ACTIVE COMPARATOR

Stereotactic lesioning of the thalamus or gloves pallidus

Procedure: Brain Lesioning

Combined rhizotomy group

ACTIVE COMPARATOR

Combined anterior and posterior lumbosacral rhizotomy

Procedure: Combined anterior and posterior lumbosacral rhizotomy

Deep brain stimulation group

ACTIVE COMPARATOR

Bilateral globus pallidus internus deep brain stimulation

Device: Deep brain stimulation

Intra-thecal Baclofen infusion therapy

ACTIVE COMPARATOR

Intra-thecal infusion pump

Device: Intra-thecal baclofen infusion

Interventions

Stereotactic radiofrequency lesioning of the pallidum or thalamus

Brain lesioning group

Combined anterior and posterior lumbosacral rhizotomy

Combined rhizotomy group

Bilateral DBS

Also known as: DBS
Deep brain stimulation group

Intra-thecal Baclofen infusion

Also known as: ITB
Intra-thecal Baclofen infusion therapy

Eligibility Criteria

Age3 Years - 50 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64)

You may qualify if:

  • secondary dystonia of previous etiologies

You may not qualify if:

  • patients who are not candidate for anaesthesia

Contact the study team to confirm eligibility.

Sponsors & Collaborators

MeSH Terms

Conditions

Dystonic Disorders

Interventions

Deep Brain Stimulation

Condition Hierarchy (Ancestors)

Movement DisordersCentral Nervous System DiseasesNervous System Diseases

Intervention Hierarchy (Ancestors)

Electric Stimulation TherapyTherapeuticsSurgical Procedures, Operative

Study Officials

  • Walid A Abdel Ghany, MD

    Associate professor

    STUDY DIRECTOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
OUTCOMES ASSESSOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Fellow

Study Record Dates

First Submitted

November 12, 2017

First Posted

November 20, 2017

Study Start

December 1, 2013

Primary Completion

December 31, 2016

Study Completion

December 31, 2016

Last Updated

November 20, 2017

Record last verified: 2017-11

Data Sharing

IPD Sharing
Will not share