NCT03068117

Brief Summary

Patients with malignant pleural mesothelioma (MPM) frequently have significant physical symptoms, with up to 92% of patients complaining of three or more symptoms at presentation. Such symptom scores are similar to those reported in advanced non small cell lung cancer (NSCLC) and have been demonstrated to correlate with interference with activity and worse quality of life (QOL). Several studies have reported that baseline Quality of Life (QOL) is a significant prognostic factor for survival in NSCLC patients. In 2010, a non-blinded randomised controlled trial of 151 patients in the United States (US) demonstrated an improved QOL, fewer depressive symptoms and improved survival with early, regular specialist palliative care team (SPCT) involvement in addition to their routine care. The RESPECT-Meso study will examine the effect on quality of life following early Specialist Palliative Care (SPC) involvement for Regular Early Symptom Control Treatment (RESSCT) in addition to routine care in patients with newly diagnosed MPM in the United Kingdom (UK).

Trial Health

90
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
319

participants targeted

Target at P75+ for not_applicable

Timeline
Completed

Started Apr 2014

Typical duration for not_applicable

Geographic Reach
2 countries

19 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

April 3, 2014

Completed
2.8 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

January 1, 2017

Completed
3 days until next milestone

First Submitted

Initial submission to the registry

January 4, 2017

Completed
2 months until next milestone

First Posted

Study publicly available on registry

March 1, 2017

Completed
1 month until next milestone

Study Completion

Last participant's last visit for all outcomes

April 10, 2017

Completed
Last Updated

June 13, 2019

Status Verified

June 1, 2019

Enrollment Period

2.8 years

First QC Date

January 4, 2017

Last Update Submit

June 12, 2019

Conditions

Keywords

Specialist Palliative CareSymptom ControlEarly ReferralQuality of LifeMalignant Pleural MesotheliomaMesothelioma

Outcome Measures

Primary Outcomes (1)

  • EORTC C-30 Quality of Life

    The primary objective of this randomised controlled study is to assess the impact of regular early specialist symptom control treatment (SSCT) involvement on global quality of life (QOL) in patients recently diagnosed with malignant pleural mesothelioma (MPM) 12 weeks post randomisation as compared to standard care.

    12 weeks

Secondary Outcomes (9)

  • Health Related Quality of Life (HRQoL) in Patients

    Baseline & 24 weeks

  • Health Related Quality of Life (HRQoL) in Patients

    Baseline 12 & 24 weeks

  • Health Related Quality of Life (HRQoL) in Patients

    Baseline, 12 & 24 weeks

  • Patient Mood

    Baseline, 12 & 24 weeks

  • Primary Caregiver Health Related Quality of Life (HRQoL)

    Baseline, 12 & 24 weeks & 24 weeks post mortality of the patient.

  • +4 more secondary outcomes

Study Arms (2)

RESSCT plus Standard Care/Therapy

EXPERIMENTAL

Regular Early Specialist Symptom Control Treatment (RESSCT) and Standard Therapy. Participants will be seen within three weeks of randomisation by the Specialist Palliative Care Team (SPCT), (regardless of, and in addition to, all other treatments being offered). The initial meeting will be an approximately 1 hour consultation with a member of the Specialist Palliative Care team. This may be either a Consultant or Specialist Palliative Care Clinical Nurse Specialist (SPCCNS). Patients will then continue to be seen regularly on at least a 4 weekly basis (regardless of other treatments, interventions and symptoms) by a member of the SPCT, with consultations lasting approximately 30 minutes. These monthly reviews will continue until end of trial (EOT) or patient death.

Other: Regular Early Specialist Symptom Control Treatment (RESSCT)

Standard Care/Therapy

NO INTERVENTION

The standard care/therapy control group will continue to receive all appropriate, standard treatment for Malignant Pleural Mesothelioma (MPM) currently available to them and will be initiated by the patient's General Practitioner (GP), the cancer MDT or lead respiratory physician as required.

Interventions

Participants will be seen within three weeks of randomisation by the Specialist Palliative Care Team (SPCT), (regardless of, and in addition to, all other treatments being offered). The initial meeting will be an approximately 1 hour consultation with a member of the Specialist Palliative Care team. This may be either a Consultant or Specialist Palliative Care Clinical Nurse Specialist (SPCCNS). Patients will then continue to be seen regularly on at least a 4 weekly basis (regardless of other treatments, interventions and symptoms) by a member of the SPCT, with consultations lasting approximately 30 minutes. These monthly reviews will continue until end of trial (EOT) or patient death.

Also known as: Regular Early Specialist Palliative Care
RESSCT plus Standard Care/Therapy

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Histological or cytological confirmation of malignant pleural mesothelioma (MPM)
  • Eastern Cooperative Oncology Group Performance Status (ECOG PS) of 0-1. (Asymptomatic patients score 0; symptomatic but ambulatory patients score 1)
  • The diagnosis of MPM received within the last 6 weeks
  • Ability to provide written informed consent in English and comply with trial procedures

You may not qualify if:

  • Other known malignancy within 5 years (excluding localised squamous cell carcinoma of the skin, cervical intraepithelial neoplasia, grade III and low grade prostate cancer (Gleason score \<5, with no metastases)).
  • Significant morbidity which the lead physician (or MDT) feel will unduly confound or influence QOL.
  • Those patients the MDT judge require referral to the SPCT at the point of diagnosis.
  • Concurrent, or less than 3 months, since participation in another non-mesothelioma clinical trial that may affect QOL.
  • Participation in a concurrent mesothelioma trial, within 12 weeks after randomisation, that may affect QOL.
  • Referral at the time of recruitment for cytoreductive, tumour de-bulking, radical decortication or extrapleural pneumonectomy surgery for MPM. (Video Assisted Thoracoscopic Surgery or 'mini' thoracotomy for pleurodesis and diagnosis attempts are permissible.)
  • Chemotherapy treatment for MPM initiated prior to consent.
  • A significant history of depression / anxiety / psychiatric illness requiring specialist hospital care within the last 12 months.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (19)

Sir Charles Gairdner Hospital

Nedlands, Western Australia, WA 6009, Australia

Location

County Durham and Darlington NHS Foundation Trust

County Durham, Durham, DL3 6HX, United Kingdom

Location

Basildon and Thurrock University Hospitals NHS Foundation Trust - Basildon Hospital

Basildon, Essex, SS16 5NL, United Kingdom

Location

Mid Essex Hospital Services NHS Trust - Broomfield Hospital

Chelmsford, Essex, CM1 7ET, United Kingdom

Location

Hampshire Hospitals NHS Foundation Trust

Basingstoke, Hampshire, RG24 9NA, United Kingdom

Location

Portsmouth Hospitals NHS Trust, Queen Alexandra Hospital

Portsmouth, Hampshire, PO6 3LY, United Kingdom

Location

University Hospital Southampton NHS Foundation Trust

Southampton, Hampshire, SO16 6YD, United Kingdom

Location

Norfolk & Norwich University Hospitals NHS Foundation Trust

Norwich, Norfolk, NR4 7UY, United Kingdom

Location

Sherwood Forest Hospitals NHS Foundation Trust

Nottingham, Nottinghamshire, NG17 4JL, United Kingdom

Location

Nottinghamshire Healthcare NHS Foundation Trust

Nottingham, Nottinghamshire, NG3 6AA, United Kingdom

Location

Taunton and Somerset NHS Foundation Trust - Musgrove Park Hospital

Taunton, Somerset, TA1 5DA, United Kingdom

Location

Ipswich Hospital NHS Trust

Ipswich, Suffolk, IP4 5PD, United Kingdom

Location

Northumbria Healthcare NHS Foundation Trust

North Shields, Tyne and Wear, NE29 8NH, United Kingdom

Location

Great Western Hospital NHS Foundation Trust

Swindon, Wiltshire, SN3 6BB, United Kingdom

Location

North Bristol NHS Trust - Southmead Hospital

Bristol, BS10 5NB, United Kingdom

Location

University Hospital of South Manchester NHS Trust

Manchester, M23 9LT, United Kingdom

Location

Pennine Acute Hospitals NHS Trust

Manchester, M8 5RB, United Kingdom

Location

South Tyneside NHS Foundation Trust

South Shields, NE34 OPL, United Kingdom

Location

The Royal Wolverhampton NHS Trust

Wolverhampton, WV10 0QP, United Kingdom

Location

Related Publications (5)

  • Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010 Aug 19;363(8):733-42. doi: 10.1056/NEJMoa1000678.

    PMID: 20818875BACKGROUND
  • Hollen PJ, Gralla RJ, Liepa AM, Symanowski JT, Rusthoven JJ. Adapting the Lung Cancer Symptom Scale (LCSS) to mesothelioma: using the LCSS-Meso conceptual model for validation. Cancer. 2004 Aug 1;101(3):587-95. doi: 10.1002/cncr.20315.

    PMID: 15274072BACKGROUND
  • Hollen PJ, Gralla RJ, Liepa AM, Symanowski JT, Rusthoven JJ. Measuring quality of life in patients with pleural mesothelioma using a modified version of the Lung Cancer Symptom Scale (LCSS): psychometric properties of the LCSS-Meso. Support Care Cancer. 2006 Jan;14(1):11-21. doi: 10.1007/s00520-005-0837-0. Epub 2005 Jul 6.

    PMID: 15999264BACKGROUND
  • Langendijk H, Aaronson NK, de Jong JM, ten Velde GP, Muller MJ, Wouters M. The prognostic impact of quality of life assessed with the EORTC QLQ-C30 in inoperable non-small cell lung carcinoma treated with radiotherapy. Radiother Oncol. 2000 Apr;55(1):19-25. doi: 10.1016/s0167-8140(00)00158-4.

    PMID: 10788684BACKGROUND
  • Montazeri A, Milroy R, Hole D, McEwen J, Gillis CR. Quality of life in lung cancer patients: as an important prognostic factor. Lung Cancer. 2001 Feb-Mar;31(2-3):233-40. doi: 10.1016/s0169-5002(00)00179-3.

    PMID: 11165402BACKGROUND

MeSH Terms

Conditions

Mesothelioma, MalignantMesothelioma

Condition Hierarchy (Ancestors)

AdenomaNeoplasms, Glandular and EpithelialNeoplasms by Histologic TypeNeoplasmsNeoplasms, MesothelialLung NeoplasmsRespiratory Tract NeoplasmsThoracic NeoplasmsNeoplasms by SitePleural NeoplasmsLung DiseasesRespiratory Tract Diseases

Study Officials

  • Prof Anoop J Chauhan, PhD, FRCP

    Portsmouth Hospitals NHS Trust

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
NONE
Purpose
SUPPORTIVE CARE
Intervention Model
PARALLEL
Sponsor Type
OTHER GOV
Responsible Party
SPONSOR

Study Record Dates

First Submitted

January 4, 2017

First Posted

March 1, 2017

Study Start

April 3, 2014

Primary Completion

January 1, 2017

Study Completion

April 10, 2017

Last Updated

June 13, 2019

Record last verified: 2019-06

Data Sharing

IPD Sharing
Will not share

Locations