NCT02951598

Brief Summary

The purpose of this study is to learn about health care use, costs, and clinical outcomes over time for amyloid positive participants with early stages of AD in the United States. This study is for research purposes only, and is not intended to treat any medical condition. No study therapy(ies) for AD will be administered.

Trial Health

55
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
1,400

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Oct 2016

Longer than P75 for all trials

Geographic Reach
1 country

77 active sites

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

October 28, 2016

Completed
1 day until next milestone

Study Start

First participant enrolled

October 29, 2016

Completed
3 days until next milestone

First Posted

Study publicly available on registry

November 1, 2016

Completed
4.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

January 30, 2021

Completed
5.2 years until next milestone

Study Completion

Last participant's last visit for all outcomes

April 28, 2026

Completed
Last Updated

October 24, 2025

Status Verified

October 1, 2025

Enrollment Period

4.3 years

First QC Date

October 28, 2016

Last Update Submit

October 22, 2025

Conditions

Outcome Measures

Primary Outcomes (1)

  • Mean Economic Cost Associated with Amyloid Positive AD

    Baseline through Study Completion (36 Months)

Secondary Outcomes (12)

  • Healthcare Resource Use by AD Cohort

    Baseline through Study Completion (36 Months)

  • Mean Economic Cost by AD Cohort

    Baseline through 24 Months

  • Bath Assessment of Subjective Quality of Life in Dementia (BASQID)

    Baseline, End of Study (36 Months)

  • Mini-Mental State Examination (MMSE)

    Baseline, End of Study (36 Months)

  • Alzheimer's Disease Assessment Scale - Cognitive Subscale (ADAS-Cog14)

    Baseline, End of Study (36 Months)

  • +7 more secondary outcomes

Study Arms (4)

MCI (Amyloid Positive)

Participants with mild cognitive impairment (MCI) due to AD who tested amyloid positive were observed for up to 36 months. No therapeutic investigational drug intended to treat AD was administered.

Drug: Florbetapir F 18 PET Scan

Mild AD Dementia (Amyloid Positive)

Participants with mild AD dementia who tested amyloid positive were observed for up to 36 months. No therapeutic investigational drug intended to treat AD was administered.

Drug: Florbetapir F 18 PET Scan

MCI (Amyloid Negative)

Participants with MCI who tested amyloid negative. These participants were not eligible to participate in the 36 month prospective portion of the study.

Drug: Florbetapir F 18 PET Scan

Mild Dementia (Amyloid Negative)

Participants with mild dementia who tested amyloid negative. These participants were not eligible to participate in the 36 month prospective portion of the study.

Drug: Florbetapir F 18 PET Scan

Interventions

Florbetapir F 18 positron emission tomography (PET) scan performed at baseline to confirm amyloid status. Participants who previously tested amyloid positive were exempt. No therapeutic investigational drug(s) intended to treat AD will be administered.

Also known as: LY3078786
MCI (Amyloid Negative)MCI (Amyloid Positive)Mild AD Dementia (Amyloid Positive)Mild Dementia (Amyloid Negative)

Eligibility Criteria

Age55 Years - 85 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Presents within normal course of outpatient care for whom the physician deems to meet clinical criteria for MCI due to AD or mild AD dementia.
  • Fully informed written consent of the participant (or his/her legal representative).
  • Study partner who has frequent contact with the participant is willing to accompany the participant at the study observations.
  • Fully informed written consent of the study partner; this person must be willing to serve as study partner for at least 6 months of the year.
  • Able to communicate in English and/or US Spanish.
  • Able to provide evidence of amyloid testing.
  • Has an Mini-Mental State Examination (MMSE) score of 20 or greater.

You may not qualify if:

  • Are currently enrolled in any other clinical trial involving an investigational product or any other type of medical research judged not to be scientifically or medically compatible with this study at baseline.
  • Are investigator site personnel directly affiliated with this study and/or their immediate families. Immediate family is defined as a spouse, parent, child, or sibling, whether biological or legally adopted.
  • Lack of evidence of amyloid positivity through pre-study test. Note: After baseline assessment, participants with amyloid negativity identified as part of the study will not continue in post-baseline assessments.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (77)

California Pharmaceutical Research Institute

Anaheim, California, 92804, United States

Location

Advanced Research Center

Anaheim, California, 92805, United States

Location

Sun Valley Research Center

Imperial, California, 92251, United States

Location

Global Clinical Trials

Irvine, California, 92614, United States

Location

Irvine Clinical Research Center

Irvine, California, 92614, United States

Location

Alliance Research Centers

Laguna Hills, California, 92653, United States

Location

Pacific Clinical Studies, Inc

Los Alamitos, California, 90720, United States

Location

California Neurological Services, Inc.

Panorama City, California, 91402, United States

Location

Havana Research Institute

Pasadena, California, 91105, United States

Location

Clinical Innovations, Inc.

Riverside, California, 92506, United States

Location

Breakthrough Clinical Trials

San Bernardino, California, 92408, United States

Location

HB Clinical Trials

Santa Ana, California, 92704, United States

Location

Ventura Clinical Trials

Ventura, California, 93003, United States

Location

Colorado Neurological Institute

Englewood, Colorado, 80113, United States

Location

Coastal Connecticut Research, LLC

New London, Connecticut, 06320, United States

Location

JEM Research Institute

Atlantis, Florida, 33462, United States

Location

Visionary Investigators Network

Aventura, Florida, 33180, United States

Location

Research Alliance

Clearwater, Florida, 33756, United States

Location

Clinical Research of South Florida

Coral Gables, Florida, 33134, United States

Location

Infinite Clinical Research

Doral, Florida, 33126, United States

Location

International Research Partners, LLC.

Doral, Florida, 33166, United States

Location

Sarkis Clinical Trials

Gainesville, Florida, 32607, United States

Location

Indago Research & Health Center, Inc.

Hialeah, Florida, 33012, United States

Location

New Life Medical Research Center, Inc

Hialeah, Florida, 33012, United States

Location

Galiz Research

Hialeah, Florida, 33016, United States

Location

South Florida Clinical Trials

Hialeah, Florida, 33016, United States

Location

Van Buren Medical

Hollywood, Florida, 33020, United States

Location

Clinical Research of Homestead

Homestead, Florida, 33030, United States

Location

Jacksonville Center for Clinical Research

Jacksonville, Florida, 32216, United States

Location

Universal Neurological Care

Jacksonville, Florida, 32216, United States

Location

Sunrise Medical Research

Lauderdale Lakes, Florida, 33319, United States

Location

Biomed Research Institute

Miami, Florida, 33126, United States

Location

Miami Jewish Health Systems

Miami, Florida, 33137, United States

Location

Florida International Research Center

Miami, Florida, 33173, United States

Location

The Neurology Research Group, LLC

Miami, Florida, 33176, United States

Location

L&C Professional Medical Research Institute

Miami, Florida, 33186, United States

Location

Genoma Research Group, Inc.

Miami, Florida, 66135, United States

Location

Empire Clinical Research

Miami Lakes, Florida, 33018, United States

Location

Medical Research Group of Central Florida

Orange City, Florida, 32763, United States

Location

Combined Research Orlando Phase I-IV LLC

Orlando, Florida, 32807, United States

Location

Suncoast Neuroscience Associates

St. Petersburg, Florida, 33713, United States

Location

Stedman Clinical Trials

Tampa, Florida, 33613, United States

Location

Asclepes Research Centers Florida

Weeki Wachee, Florida, 34607, United States

Location

Doctors Clinical Research

Atlanta, Georgia, 30312, United States

Location

American Health Network

Franklin, Indiana, 46131, United States

Location

American Research, LLC

Jeffersonville, Indiana, 47130, United States

Location

Heartland Research Associates

Newton, Kansas, 67114, United States

Location

Baptist Health Medical Group

Lexington, Kentucky, 40503, United States

Location

NeuroMedical Clinic of Central Louisiana

Alexandria, Louisiana, 71301, United States

Location

St. Agnes Medical Group

Catonsville, Maryland, 21228, United States

Location

Hattiesburg Clinic

Hattiesburg, Mississippi, 39401, United States

Location

University of Mississippi Medical Center

Jackson, Mississippi, 39216, United States

Location

Psych Care Consultants Research

St Louis, Missouri, 63128, United States

Location

Pyramid Clinical Research

Monroe, New Jersey, 08831, United States

Location

Healthwise Medical Associates, PC

Brooklyn, New York, 11206, United States

Location

Integrative Clinical Trials, LLC

Brooklyn, New York, 11229, United States

Location

Adirondack Medical Center

Lake Placid, New York, 12946, United States

Location

Mid Hudson Medical Research, PLLC

New Windsor, New York, 12553, United States

Location

Onsite Clinical Solutions, LLC

Charlotte, North Carolina, 28203, United States

Location

Onsite Clinical Solutions, LLC

Charlotte, North Carolina, 28226, United States

Location

Alzheimer's Memory Center

Charlotte, North Carolina, 28270, United States

Location

Coastal Carolina Healthcare, P.A.

New Bern, North Carolina, 28562, United States

Location

Dayton Center for Neurological Disorders

Centerville, Ohio, 45459, United States

Location

Christ Hospital

Cincinnati, Ohio, 45219, United States

Location

Family Practice Center of Wooster

Wooster, Ohio, 44691, United States

Location

Lynn Health Science Institute

Oklahoma City, Oklahoma, 73112, United States

Location

Thomas Jefferson University

Philadelphia, Pennsylvania, 19107, United States

Location

Wesley Neurology Clinic

Cordova, Tennessee, 38018, United States

Location

Clinical Research Solutions, P.C.

Knoxville, Tennessee, 37920, United States

Location

Lakeside Life Center

Carrollton, Texas, 75010, United States

Location

Univ Of Texas Southwestern at Dallas Childrens Med Ctr

Dallas, Texas, 75390, United States

Location

The Clinical Research Group

Frisco, Texas, 75035, United States

Location

Dallas Clinical Research

Greenville, Texas, 75401, United States

Location

Highlands Medical Associates, P.A.

Highlands, Texas, 77562, United States

Location

University Hills Clinical Research

Irving, Texas, 75062, United States

Location

North Pointe Psychiatry

Lewisville, Texas, 75057, United States

Location

Premier Clinical Research

Spokane, Washington, 99202, United States

Location

Related Publications (1)

  • Robinson RL, Rentz DM, Bruemmer V, Scott Andrews J, Zagar A, Kim Y, Schwartz RL, Ye W, Fillit HM. Observation of Patient and Caregiver Burden Associated with Early Alzheimer's Disease in the United States: Design and Baseline Findings of the GERAS-US Cohort Study1. J Alzheimers Dis. 2019;72(1):279-292. doi: 10.3233/JAD-190430.

MeSH Terms

Conditions

Alzheimer DiseaseCognitive Dysfunction

Condition Hierarchy (Ancestors)

DementiaBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesTauopathiesNeurodegenerative DiseasesNeurocognitive DisordersMental DisordersCognition Disorders

Study Officials

  • Call 1-877-CTLILLY (1-877-285-4559) or 1-317-615-4559 Mon - Fri 9 AM - 5 PM Eastern time (UTC/GMT - 5 hours, EST)

    Eli Lilly and Company

    STUDY DIRECTOR

Study Design

Study Type
observational
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 28, 2016

First Posted

November 1, 2016

Study Start

October 29, 2016

Primary Completion

January 30, 2021

Study Completion

April 28, 2026

Last Updated

October 24, 2025

Record last verified: 2025-10

Data Sharing

IPD Sharing
Will share

Lilly provides access to the individual patient data from studies on approved medicines and indications as defined by the sponsor specific information on ClinicalStudyDataRequest.com. This access is provided in a timely fashion after the primary publication is accepted. Researchers need to have an approved research proposal submitted through ClinicalStudyDataRequest.com. Access to the data will be provided in a secure data sharing environment after signing a data sharing agreement.

Locations