NCT02727270

Brief Summary

The objective of this study is to evaluate the cortisol awakening response with persons with Parkinsons Disease (PD), Huntingtons Disease (HD), and controls. These data are desired so experience can be gained with measuring stress levels subjectively and objectively in persons with PD, HD, and controls.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
131

participants targeted

Target at P50-P75 for all trials

Timeline
Completed

Started Jun 2016

Longer than P75 for all trials

Geographic Reach
1 country

2 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

March 21, 2016

Completed
14 days until next milestone

First Posted

Study publicly available on registry

April 4, 2016

Completed
2 months until next milestone

Study Start

First participant enrolled

June 1, 2016

Completed
7.5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

November 16, 2023

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

November 16, 2023

Completed
Last Updated

December 22, 2023

Status Verified

December 1, 2023

Enrollment Period

7.5 years

First QC Date

March 21, 2016

Last Update Submit

December 16, 2023

Conditions

Keywords

Movement disordersMetabolic StressBasal Ganglia Disorders

Outcome Measures

Primary Outcomes (1)

  • Awakening Salivary Cortisol level (ug/dL) Response

    Salivary Cortisol level (ug/dL) Response is the change in cortisol between awakening and 30 minutes after awakening.

    Collected upon awakening and 30 minutes after awakening

Study Arms (7)

Parkinson's - High Stress *FULL NOT RECRUITING

Parkinson's disease patients with self-reported high strain/stress.

Other: No Intervention - Observational Study

Parkinson's - Low Stress *FULL NOT RECRUITING

Parkinson's disease patients with self-reported low strain/stress.

Other: No Intervention - Observational Study

Controls - High Stress *FULL NOT RECRUITING

Healthy controls (no neurological disease) with self-reported high strain/stress.

Other: No Intervention - Observational Study

Controls - Low Stress *FULL NOT RECRUITING

Healthy controls (no neurological disease) with self-reported low strain/stress.

Other: No Intervention - Observational Study

Huntington's - High Stress *FULL NOT RECRUITING

Huntington's disease patients and/or Huntington's disease gene carriers with self-reported high strain/stress.

Other: No Intervention - Observational Study

Huntington's - Low Stress *FULL NOT RECRUITING

Huntington's disease patients and/or Huntington's disease gene carriers with self-reported low strain/stress.

Other: No Intervention - Observational Study

Parkinson's Disease - ReEnrollment (COVID-19) *FULL NOT RECRUITING

Parkinson's disease patients that had previously completed the study.

Other: No Intervention - Observational Study

Interventions

No Intervention - Observational Study

Controls - High Stress *FULL NOT RECRUITINGControls - Low Stress *FULL NOT RECRUITINGHuntington's - High Stress *FULL NOT RECRUITINGHuntington's - Low Stress *FULL NOT RECRUITINGParkinson's - High Stress *FULL NOT RECRUITINGParkinson's - Low Stress *FULL NOT RECRUITINGParkinson's Disease - ReEnrollment (COVID-19) *FULL NOT RECRUITING

Eligibility Criteria

Age18 Years - 99 Years
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

The investigators plan to enroll seven groups: (1) person with PD and moderate levels of self-reported stress, (2) persons with PD and low levels of self-reported stress, (3) controls and moderate levels of self-reported stress, (4) controls and low levels of self-reported stress, (5) persons with HD and moderate/high levels of self-reported stress, and (6) persons with HD a low levels of self-reported stress, and (7) those that completed the study prior to COVID-19 restrictions in March of 2020.

You may qualify if:

  • No significant neurological disorder
  • PSS score of greater than or equal to 13.
  • HD diagnosis or HD gene carrier
  • a Perceived Stress Scale (PSS) score higher than or equal to 13.
  • HD diagnosis or HD gene carrier
  • PSS score lower than 13
  • PD diagnosis
  • Prior completion of the study.

You may not qualify if:

  • The use of medications known to effect cortisol levels (estrogen, synthetic glucocorticoids, androgens, phenytoin, spironolactone, prednisone, prednisolone, and hydrocortisone).

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (2)

Oregon Health & Science Universtiy

Portland, Oregon, 97239, United States

Location

VA Portland Health Care System

Portland, Oregon, 97239, United States

Location

Related Publications (4)

  • Ceravolo R, Frosini D, Poletti M, Kiferle L, Pagni C, Mazzucchi S, Volterrani D, Bonuccelli U. Mild affective symptoms in de novo Parkinson's disease patients: relationship with dopaminergic dysfunction. Eur J Neurol. 2013 Mar;20(3):480-485. doi: 10.1111/j.1468-1331.2012.03878.x. Epub 2012 Oct 18.

    PMID: 23078376BACKGROUND
  • Hartmann A, Veldhuis JD, Deuschle M, Standhardt H, Heuser I. Twenty-four hour cortisol release profiles in patients with Alzheimer's and Parkinson's disease compared to normal controls: ultradian secretory pulsatility and diurnal variation. Neurobiol Aging. 1997 May-Jun;18(3):285-9. doi: 10.1016/s0197-4580(97)80309-0.

    PMID: 9263193BACKGROUND
  • Marsden CD, Owen DA. Mechanisms underlying emotional variation in parkinsonian tremor. Neurology. 1967 Jul;17(7):711-5. doi: 10.1212/wnl.17.7.711. No abstract available.

    PMID: 6067490BACKGROUND
  • Matousek RH, Dobkin PL, Pruessner J. Cortisol as a marker for improvement in mindfulness-based stress reduction. Complement Ther Clin Pract. 2010 Feb;16(1):13-9. doi: 10.1016/j.ctcp.2009.06.004. Epub 2009 Jul 4.

    PMID: 20129404BACKGROUND

MeSH Terms

Conditions

Parkinson DiseaseHuntington DiseaseMovement DisordersBasal Ganglia Diseases

Condition Hierarchy (Ancestors)

Parkinsonian DisordersBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesSynucleinopathiesNeurodegenerative DiseasesDementiaChoreaDyskinesiasHeredodegenerative Disorders, Nervous SystemGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesCognition DisordersNeurocognitive DisordersMental Disorders

Study Officials

  • Amie L Hiller, MD

    Oregon Health and Science University

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
CASE CONTROL
Time Perspective
CROSS SECTIONAL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Neurologist

Study Record Dates

First Submitted

March 21, 2016

First Posted

April 4, 2016

Study Start

June 1, 2016

Primary Completion

November 16, 2023

Study Completion

November 16, 2023

Last Updated

December 22, 2023

Record last verified: 2023-12

Data Sharing

IPD Sharing
Will share

Individual participant data be available (including data dictionaries). Individual participant data that underlie the results reported the resultant article, after deidentification (text, tables, figures, and appendices). In addition to data, the study protocol and the informed consent form (ICF) will be provided. Data will be available beginning 6 months and ending 2 years following article publication.

Shared Documents
STUDY PROTOCOL, ICF
Time Frame
6 months - 2 years following article publication
Access Criteria
Data will be shared with Investigators whose proposed use of the data has been approved by an independent review committee ("learned intermediary") identified for this purpose. Data will be released to achieve aims in the approved proposal or for individual participant data meta-analysis.
More information

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