NCT02688517

Brief Summary

This research trial studies the use of targeted genomic analysis of blood and tissue samples from patients with cancer. Genomic sequencing is a laboratory method that is used to determine the entire genetic makeup of a specific organism or cell type. Genomic sequencing can be used to find changes in areas of the genome that may be important in the development of cancer. It may also help doctors improve ways to diagnose and treat patients with rare cancers with poor prognosis or lack of effective therapy.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,100

participants targeted

Target at P75+ for all trials

Timeline
49mo left

Started Feb 2013

Longer than P75 for all trials

Geographic Reach
1 country

11 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress77%
Feb 2013May 2030

Study Start

First participant enrolled

February 1, 2013

Completed
3 years until next milestone

First Submitted

Initial submission to the registry

February 17, 2016

Completed
6 days until next milestone

First Posted

Study publicly available on registry

February 23, 2016

Completed
14.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

May 1, 2030

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

May 1, 2030

Last Updated

April 17, 2026

Status Verified

April 1, 2026

Enrollment Period

17.3 years

First QC Date

February 17, 2016

Last Update Submit

April 14, 2026

Conditions

Outcome Measures

Primary Outcomes (2)

  • Frequencies of individual specific mutations and combinations of mutations of related pathway genes

    Descriptive analysis will be used to determine frequencies of specific mutations and to determine the pathways that can be targeted most frequently in patients with rare/poor prognosis cancer.

    Up to 15 years

  • Rate of actionable mutations in rare and/or poor prognosis cancers

    The actual rate of mutations found in this study will be determined to estimate the true underlying mutation rate.

    Up to 15 years

Study Arms (1)

Ancillary-Correlative (genomic analysis)

Previously collected tissue samples are analyzed for the presence of mutations via next generation sequencing. Patients may also undergo collection of blood samples for analysis of circulating cell-free DNA and circulating tumor cells.

Other: Cytology Specimen Collection ProcedureOther: Laboratory Biomarker Analysis

Interventions

Undergo collection of blood samples

Also known as: Cytologic Sampling
Ancillary-Correlative (genomic analysis)

Correlative studies

Ancillary-Correlative (genomic analysis)

Eligibility Criteria

Age1 Year+
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Persons with Cancer

You may qualify if:

  • Karnofsky/Lansky performance score \>= 30
  • A signed written informed consent
  • Evaluation in surgical/medical/radiation oncology/radiology clinic, with a history of biopsy-confirmed diagnosis of cancer of rare histology and/or poor prognosis with standard therapy; priority will be given to rare cancers with poor prognosis and lack of effective standard therapy; study principal investigator (PI) or designee will review and approve each case before enrollment
  • Paraffin blocks of the patient's tumor tissue are available and accessible for analysis

You may not qualify if:

  • Karnofsky/Lansky performance score \< 30
  • Life expectancy \< 3 months

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (11)

Ocean Medical Center

Brick, New Jersey, 08724, United States

COMPLETED

Bayshore Community Hospital

Holmdel, New Jersey, 07733, United States

COMPLETED

RWJBarnabas Health - Jersey City Medical Center, Jersey City

Jersey City, New Jersey, 07302, United States

RECRUITING

Southern Ocean County Medical Center

Manahawkin, New Jersey, 08050, United States

COMPLETED

Morristown Medical Center

Morristown, New Jersey, 07960, United States

COMPLETED

Jersey Shore Medical Center

Neptune City, New Jersey, 07753, United States

COMPLETED

Rutgers Cancer Institute of New Jersey

New Brunswick, New Jersey, 08903, United States

RECRUITING

Riverview Medical Center/Booker Cancer Center

Red Bank, New Jersey, 07701, United States

COMPLETED

Riverview Medical Center

Red Bank, New Jersey, 07701, United States

ACTIVE NOT RECRUITING

Overlook Hospital

Summit, New Jersey, 07902, United States

COMPLETED

University of Wisconsin Hospital and Clinics

Madison, Wisconsin, 53792, United States

WITHDRAWN

MeSH Terms

Conditions

Neoplasms

Study Officials

  • Shridar Ganesan

    Rutgers Cancer Institute of New Jersey

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Clinical Trials Office

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Program Manager

Study Record Dates

First Submitted

February 17, 2016

First Posted

February 23, 2016

Study Start

February 1, 2013

Primary Completion (Estimated)

May 1, 2030

Study Completion (Estimated)

May 1, 2030

Last Updated

April 17, 2026

Record last verified: 2026-04

Data Sharing

IPD Sharing
Will not share

Locations