NCT02581865

Brief Summary

Phase 2, double-blind, placebo-controlled study to assess the safety and efficacy of NBI-98854 administered once daily (qd) for a total of 8 weeks of treatment. This study will enroll approximately 90 male and female subjects clinically diagnosed with Tourette Syndrome.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
124

participants targeted

Target at P75+ for phase_2

Timeline
Completed

Started Nov 2015

Shorter than P25 for phase_2

Geographic Reach
1 country

30 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

October 19, 2015

Completed
2 days until next milestone

First Posted

Study publicly available on registry

October 21, 2015

Completed
11 days until next milestone

Study Start

First participant enrolled

November 1, 2015

Completed
1.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2016

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 1, 2016

Completed
3.4 years until next milestone

Results Posted

Study results publicly available

May 7, 2020

Completed
Last Updated

May 7, 2020

Status Verified

April 1, 2020

Enrollment Period

1.1 years

First QC Date

October 19, 2015

Results QC Date

April 7, 2020

Last Update Submit

April 27, 2020

Conditions

Outcome Measures

Primary Outcomes (1)

  • Change From Baseline to Week 8 in the YGTSS TTS

    The YGTSS is designed to rate the overall severity of motor and phonic tic symptoms across a range of dimensions: number, frequency, intensity, complexity, and interference. The YGTSS was administered by the investigator (or qualified designee) using a computer-based structured clinical interview. The TTS is the sum of the 5 motor tic items and the 5 phonic (vocal) tic items and ranges from 0 to 50, with higher scores representing greater severity

    Baseline, Week 8

Secondary Outcomes (5)

  • Clinical Global Impression of Change Tourette Syndrome (CGI-TS)-Improvement Score at Week 8

    Week 8

  • Change From Baseline to Week 8 in the Clinical Global Impression of Tics (CGI-Tics)-Severity Score

    Baseline, Week 8

  • Change From Baseline to Last Visit in the Rush Video-based Tic Rating Scale (RTRS) Total Score

    Baseline, Week 8

  • Change From Baseline to Week 8 in the YGTSS Global Tic Severity Score

    Baseline, Week 8

  • Change From Baseline to Week 8 in the Premonitory Urge for Tics Scale (PUTS) Total Score

    Baseline, Week 8

Study Arms (3)

Placebo

PLACEBO COMPARATOR

Placebo administered once daily for 8 weeks

Drug: Placebo

Dose Group 1

EXPERIMENTAL

Fixed dose administered once daily for 8 weeks

Drug: NBI-98854

Dose Group 2

EXPERIMENTAL

Fixed dose administered once daily for 8 weeks

Drug: NBI-98854

Interventions

Dose Group 1Dose Group 2
Placebo

Eligibility Criteria

Age18 Years - 64 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64)

You may qualify if:

  • Have a clinical diagnosis of Tourette Syndrome (TS)
  • Have at least moderate tic severity
  • Have TS symptoms that impair school, occupational, and/or social function
  • If using maintenance medication(s) for TS or TS spectrum diagnoses (e.g. obsessive-compulsive disorder \[OCD\], Attention-Deficit Hyperactivity Disorder \[ADHD\]), be on stable doses
  • Be in good general health
  • Have a negative urine drug screen for amphetamines, barbiturates, benzodiazepine, phencyclidine, cocaine, or opiates, and a negative alcohol screen
  • Subjects of childbearing potential who do not practice total abstinence must agree to use hormonal or two forms of nonhormonal contraception (dual contraception) consistently during the screening, treatment and follow-up periods of the study

You may not qualify if:

  • Have an active, clinically significant unstable medical condition within 1 month prior to screening
  • Have a known history of long QT syndrome or cardiac tachy-arrhythmia
  • Have a known history of neuroleptic malignant syndrome
  • Have a cancer diagnosis within 3 years prior to screening (some exceptions allowed)
  • Have an allergy, hypersensitivity, or intolerance to VMAT2 inhibitors
  • Have a known history of substance dependence, substance (drug) or alcohol abuse
  • Have a significant risk of suicidal or violent behavior
  • Are currently pregnant or breastfeeding
  • Have initiated Comprehensive Behavioral Intervention for Tics (CBIT) during the screening period or at baseline or plan to initiate CBIT during the study
  • Have received an investigational drug within 30 days before screening or plan to use an investigational drug (other than NBI-98854) during the study
  • Have a blood loss ≥550 mL or donated blood within 30 days prior to screening

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (30)

Unknown Facility

Long Beach, California, United States

Location

Unknown Facility

National City, California, United States

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Unknown Facility

San Bernardino, California, United States

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Unknown Facility

San Diego, California, United States

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Unknown Facility

Upland, California, United States

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Unknown Facility

Gainesville, Florida, United States

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Unknown Facility

Hialeah, Florida, United States

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Unknown Facility

St. Petersburg, Florida, United States

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Unknown Facility

Tampa, Florida, United States

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Unknown Facility

Atlanta, Georgia, United States

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Unknown Facility

Chicago, Illinois, United States

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Unknown Facility

Boston, Massachusetts, United States

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Natick, Massachusetts, United States

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St Louis, Missouri, United States

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Unknown Facility

Nashua, New Hampshire, United States

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Unknown Facility

Summit, New Jersey, United States

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Unknown Facility

Albany, New York, United States

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Unknown Facility

Manhasset, New York, United States

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Unknown Facility

New York, New York, United States

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Unknown Facility

Staten Island, New York, United States

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Cincinnati, Ohio, United States

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Oklahoma City, Oklahoma, United States

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Norristown, Pennsylvania, United States

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Nashville, Tennessee, United States

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Unknown Facility

Dallas, Texas, United States

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Unknown Facility

Irving, Texas, United States

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Unknown Facility

Orem, Utah, United States

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Unknown Facility

Salt Lake City, Utah, United States

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Unknown Facility

Kirkland, Washington, United States

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Unknown Facility

Spokane, Washington, United States

Location

MeSH Terms

Conditions

Tourette Syndrome

Interventions

valbenazine

Condition Hierarchy (Ancestors)

Basal Ganglia DiseasesBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesTic DisordersMovement DisordersHeredodegenerative Disorders, Nervous SystemNeurodegenerative DiseasesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesNeurodevelopmental DisordersMental Disorders

Results Point of Contact

Title
Neurocrine Medical Information
Organization
Neurocrine Biosciences, Inc.

Publication Agreements

PI is Sponsor Employee
No
Restriction Type
OTHER
Restrictive Agreement
Yes

Study Design

Study Type
interventional
Phase
phase 2
Allocation
RANDOMIZED
Masking
QUADRUPLE
Who Masked
PARTICIPANT, CARE PROVIDER, INVESTIGATOR, OUTCOMES ASSESSOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 19, 2015

First Posted

October 21, 2015

Study Start

November 1, 2015

Primary Completion

December 1, 2016

Study Completion

December 1, 2016

Last Updated

May 7, 2020

Results First Posted

May 7, 2020

Record last verified: 2020-04

Locations