Participatory Video as a Recovery-Oriented Intervention in Early Psychosis

NCT02360566 | Completed

• 1 other identifier: 8211
• Study Type: interventional
• Target: 10
• Locations: 0 countries
• Sites: N/A

Brief Summary

Prior research has shown that people with psychotic illnesses, like schizophrenia, who make sense of and meaningfully integrate their psychotic experiences into their life story are more likely to recover from their illness. This process of developing a coherent narrative seems especially relevant for young people who are experiencing their first episode of psychosis. There is a need for interventions that can help facilitate the formation of recovery-oriented narratives, particularly in the early stage of illness. Participatory video is a group process that involves the facilitated creation of short documentary-style videos in which individuals are supported to reflect on and tell their personal stories. Although it has been used to foster self-identity, self-empowerment and "give voice" to a variety of marginalized and stigmatized populations, its use and evaluation as a clinical intervention has been limited. The purpose of this study is to determine whether the novel use of participatory video facilitate narrative development and promote recovery for individuals with early psychosis is an effective, feasible, and acceptable means of treating youth in the early stages of psychotic illnesses. Although the current study is hypothesis generating in nature, the investigators are expecting that participating in the Participatory Video intervention will result in improvements in narrative development, symptoms, self-perceived recovery, self-esteem, self-stigma, social functioning and hope. Additionally, the investigators expect that Participatory Video intervention will prove to be acceptable to participants and a feasible intervention for early psychotic disorders.

Conditions

Psychotic Disorders; Schizophrenia

Keywords

Psychosis; Schizophrenia; Participatory Video; Narrative

Outcome Measures

Primary Outcomes (16)

• Scale for Assessment of Positive Symptoms (SAPS)

  Baseline, Change from Baseline in SAPS at 6 months, change from baseline in SAPS at 9 months

• Scale for Assessment of Negative Symptoms (SANS)

  Baseline, Change from Baseline in SANS at 6 months, change from baseline in SANS at 9 months

• Rosenberg Self-Esteem Schedule (RSES)

  Baseline, Change from Baseline in RSES at 6 months, change from baseline in RSES at 9 months

• Self-stigma of Mental Illness Scale (SSMIS)

  Baseline, Change from Baseline in SSMIS at 6 months, change from baseline in SSMIS at 9 months

• The Beck Hopelessness Scale (BHS)

  Baseline, Change from Baseline in BHS at 6 months, change from baseline in BHS at 9 months

• Maryland Assessment of Recovery in People with Serious Mental Illness Scale (MARS)

  Baseline, Change from Baseline in MARS at 6 months, change from baseline in MARS at 9 months

• Social Functioning Scale (SFS)

  Baseline, Change from Baseline in SFS at 6 months, change from baseline in SFS at 9 months

• Profile of Mood States (POMS)

  Baseline, Change from Baseline in POMS at 6 months, change from baseline in POMS at 9 months

• Client Satisfaction Questionnaire-8

  at 6 months (only to those in the Participatory Video Intervention Group)

• Scale to Assess Narrative Development (STAND)

  at 6 months

• Metacognition Assessment Scale-Abbreviated (MAS-A)

  at 6 months

• Qualitative Focus Group - Participant descriptions of their experience with Participatory Video and suggestions for how to improve the Participatory Video intervention

  at 6 months (only for those in the Participatory Video intervention group)

• Individual Semi-Structured Interviews - Participant description of their individual experience with the PV intervention group and any changes they feel it may have engendered in their life

  at 9 months (only for those in the Participatory Video-intervention group)

• Recruitment Rates

  baseline

• Consent Rates

  baseline

• Completion Rates

  at 9 months

Study Arms (1)

Participatory Video Intervention Group

EXPERIMENTAL

The Participatory Video intervention consists of 12 semi-structured, 2 hour group workshops over the course of a 6-month time period. Through facilitated discussion, participants will learn how to effectively work collaboratively as a member of the video production team. Together, they will choose what story of their shared experience with psychosis they would like to tell through documentary-video and how they plan to share it. Participants will be trained to operate all equipment required to bring their vision to life. Individuals will also have the opportunity, during the Participatory Video process, to create and share their own video clips, independent of the group, allowing participants to share their own video-narrative with others (friends, family members, public) as a means of engaging in dialogue around their personal experience with psychosis.

Behavioral: Participatory Video Intervention for Early Psychosis

Interventions

Participatory Video Intervention for Early Psychosis BEHAVIORAL

The Participatory Video intervention consists of 12 semi-structured, 2 hour group workshops over the course of a 6-month time period. Through facilitated discussion, participants will learn how to effectively work collaboratively as a member of the video production team. Together, they will choose what story of their shared experience with psychosis they would like to tell through documentary-video and how they plan to share it. Participants will be trained to operate all equipment required to bring their vision to life. Individuals will also have the opportunity, during the Participatory Video process, to create and share their own video clips, independent of the group, allowing participants to share their own video-narrative with others (friends, family members, public) as a means of engaging in dialogue around their personal experience with psychosis.

Participatory Video Intervention Group

Eligibility Criteria

• Age: 16 Years - 25 Years
• Sex: all
• Healthy Volunteers: No
• Age Groups: Child (0-17), Adult (18-64)

You may qualify if:

• Participants will be current outpatients of the Prevention and Early intervention Program for Psychoses (PEPP) at LHSC.
• PEPP only accepts patients with a first onset primary psychotic illness that have not been treated with an antipsychotic for longer than one month.
• Study participants must be within their first 3 years of being accepted into PEPP.
• Participants must be fluent in English, as determined by referring clinicians or researchers (in the case of advertisement referred participants) in order to meaningfully participate in the PV intervention and complete the assessment tools.

You may not qualify if:

• Potential participants that show high levels of disorganized or disruptive behaviour (as determined by a cut off score of 4 or 5 on the Positive Formal
• Thought Disorder or Bizarre Behaviour items of the Scale for the Assessment of Positive Symptoms \[SAPS\]) such that they will not be able to meaningfully participate in the MAC intervention will be excluded from the study.
• Participants must not be simultaneously participating in any other research projects involving active interventions at PEPP.

Sponsors & Collaborators

• London Health Sciences Centre Research Institute OR Lawson Research Institute of St. Joseph's: lead
• ProjectVideo Inc.: collaborator
• London Health Sciences Centre: collaborator
• University of Western Ontario, Canada: collaborator

Related Publications (16)

• France CM, Uhlin BD. Narrative as an outcome domain in psychosis. Psychol Psychother. 2006 Mar;79(Pt 1):53-67. doi: 10.1348/147608305X41001.

  PMID: 16611421 BACKGROUND

• Roe D, Davidson L. Self and narrative in schizophrenia: time to author a new story. Med Humanit. 2005 Dec;31(2):89-94. doi: 10.1136/jmh.2005.000214.

  PMID: 23674667 BACKGROUND

• Chadwick PK. Peer-professional first-person account: schizophrenia from the inside--phenomenology and the integration of causes and meanings. Schizophr Bull. 2007 Jan;33(1):166-73. doi: 10.1093/schbul/sbl034. Epub 2006 Sep 14.

  PMID: 16973785 BACKGROUND

• Lysaker PH, Buck KD, Ringer J. The recovery of metacognitive capacity in schizophrenia across 32 months of individual psychotherapy: A case study. Psychotherapy Research 17(6): 713-720, 2007.

  BACKGROUND

• Windell D, Norman RM. A qualitative analysis of influences on recovery following a first episode of psychosis. Int J Soc Psychiatry. 2013 Aug;59(5):493-500. doi: 10.1177/0020764012443751. Epub 2012 Apr 24.

  PMID: 22532125 BACKGROUND

• McAdams DP, McLean KC. Narrative identity. Current Directions in Psychological Science 22(3): 233-238, 2013.

  BACKGROUND

• Cavelti M, Kvrgic S, Beck EM, Rusch N, Vauth R. Self-stigma and its relationship with insight, demoralization, and clinical outcome among people with schizophrenia spectrum disorders. Compr Psychiatry. 2012 Jul;53(5):468-79. doi: 10.1016/j.comppsych.2011.08.001. Epub 2011 Sep 28.

  PMID: 21956043 BACKGROUND

• Greben M, Schweitzer RD, Bargenquast R. Mechanisms of change in psychotherapy for people diagnosed with schizophrenia: the role of narrative reflexivity in promoting recovery. The Australian Journal of Rehabilitation Counselling 20(1): 1-14, 2014.

  BACKGROUND

• Roe D, Hasson-Ohayon I, Mashiach-Eizenberg M, Derhy O, Lysaker PH, Yanos PT. Narrative enhancement and cognitive therapy (NECT) effectiveness: a quasi-experimental study. J Clin Psychol. 2014 Apr;70(4):303-12. doi: 10.1002/jclp.22050. Epub 2013 Oct 2.

  PMID: 24114797 BACKGROUND

• White SA. (2003). Participatory video: Images that transform and empower. Sage.

  BACKGROUND

• Yang KH. (2012). Reflexivity, participation, and video. The handbook of participatory video, 100-114.

  BACKGROUND

• Shaw J, Robertson C. (1997). Participatory video: a practical approach to using video creatively in group development work. London (ua): Routledge.

  BACKGROUND

• Bery R. (2003). Participatory video that empowers. Participatory video: Images that transform and empower, 102-121.

  BACKGROUND

• Luttrell W, Restler V, Fontaine C. Youth Video-Making. Handbook of Participatory Video, 164, 2012.

  BACKGROUND

• Norman CD, Yip AL. eHealth promotion and social innovation with youth: using social and visual media to engage diverse communities. Stud Health Technol Inform. 2012;172:54-70.

  PMID: 22910502 BACKGROUND

• Lysaker PH, Ringer J, Maxwell C, McGuire A, Lecomte T. Personal narratives and recovery from schizophrenia. Schizophr Res. 2010 Aug;121(1-3):271-6. doi: 10.1016/j.schres.2010.03.003. Epub 2010 Mar 26.

  PMID: 20347269 BACKGROUND

Related Links

• Cannabis and Psychosis

MeSH Terms

Conditions

Psychotic Disorders; Schizophrenia; Narration

Condition Hierarchy (Ancestors)

Schizophrenia Spectrum and Other Psychotic Disorders; Mental Disorders; Communication; Behavior

Study Officials

• Arlene MacDougall, M.Sc., M.D.

  London Health Sciences Centre/University of Western Ontario

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: interventional
• Phase: not applicable
• Allocation: NA
• Masking: NONE
• Purpose: TREATMENT
• Intervention Model: SINGLE GROUP
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Principal Investigator

Study Record Dates

• First Submitted: February 2, 2015
• First Posted: February 10, 2015
• Study Start: January 1, 2016
• Primary Completion: December 1, 2016
• Study Completion: December 1, 2016
• Last Updated: September 11, 2017

Record last verified: 2017-09

Data Sharing

• IPD Sharing: Will not share