NCT01984788

Brief Summary

The purpose of this study is to determine whether BCX4161 given as a daily oral prophylactic treatment is safe and effective in reducing the number of acute attacks in patients with hereditary angioedema.

Trial Health

90
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
24

participants targeted

Target at below P25 for phase_2

Timeline
Completed

Started Nov 2013

Shorter than P25 for phase_2

Geographic Reach
2 countries

6 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

November 1, 2013

Completed
4 days until next milestone

First Submitted

Initial submission to the registry

November 5, 2013

Completed
10 days until next milestone

First Posted

Study publicly available on registry

November 15, 2013

Completed
6 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

May 1, 2014

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

May 1, 2014

Completed
Last Updated

August 18, 2014

Status Verified

August 1, 2014

Enrollment Period

6 months

First QC Date

November 5, 2013

Last Update Submit

August 14, 2014

Conditions

Keywords

Oral Prophylaxis

Outcome Measures

Primary Outcomes (1)

  • Number of acute angioedema attacks

    Over 28 days of treatment

Secondary Outcomes (4)

  • Incidence and severity of adverse events and laboratory abnormalities

    Over 28 days of treatment

  • Number of attack free days

    Over 28 days of treatment

  • Angioedema Quality of Life scores

    Over 28 days of treatment

  • Angioedema activity scores

    Over 28 days of treatment

Study Arms (2)

BCX4161

ACTIVE COMPARATOR

400 mg TID for 28 days

Drug: BCX4161

Placebo

PLACEBO COMPARATOR

TID for 28 days

Drug: Placebo

Interventions

BCX4161
Placebo

Eligibility Criteria

Age18 Years - 65 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Written informed consent
  • Clinical and laboratory diagnosis of Hereditary Angioedema Type I or II
  • An average angioedema attack frequency of 1/week
  • Acceptable birth control measures

You may not qualify if:

  • Concurrent use of defined treatments for prophylaxis
  • Pregnancy or breast-feeding
  • Clinically significant medical condition, laboratory abnormality or medical history

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (6)

Dr Marcus Maurer

Berlin, Germany

Location

Dr Emel Aygoren-Pursun

Frankfurt, Germany

Location

Dr Petra Staubach

Mainz, Germany

Location

Dr Inmaculada Martinez-Saguer

Mörfelden-Walldorf, Germany

Location

Dr Murat Bas

München, Germany

Location

Dr Hilary Longhurst

London, United Kingdom

Location

Related Publications (1)

  • Beard N, Frese M, Smertina E, Mere P, Katelaris C, Mills K. Interventions for the long-term prevention of hereditary angioedema attacks. Cochrane Database Syst Rev. 2022 Nov 3;11(11):CD013403. doi: 10.1002/14651858.CD013403.pub2.

MeSH Terms

Conditions

Angioedemas, Hereditary

Interventions

avoralstat

Condition Hierarchy (Ancestors)

AngioedemaVascular DiseasesCardiovascular DiseasesHereditary Complement Deficiency DiseasesPrimary Immunodeficiency DiseasesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesUrticariaSkin Diseases, VascularSkin DiseasesSkin and Connective Tissue DiseasesHypersensitivity, ImmediateHypersensitivityImmune System DiseasesImmunologic Deficiency Syndromes

Study Officials

  • Marcus Maurer, MD

    Charite University, Berlin, Germany

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
phase 2
Allocation
RANDOMIZED
Masking
DOUBLE
Who Masked
PARTICIPANT, INVESTIGATOR
Purpose
PREVENTION
Intervention Model
CROSSOVER
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

November 5, 2013

First Posted

November 15, 2013

Study Start

November 1, 2013

Primary Completion

May 1, 2014

Study Completion

May 1, 2014

Last Updated

August 18, 2014

Record last verified: 2014-08

Locations