NCT01776346

Brief Summary

The ultimate goal of the Barrett's Esophagus Patient Registry is to help develop more effective targeted screening strategies and treatment options for Barrett's esophagus and esophageal adenocarcinoma (EAC). We plan to do by developing a registry that will serve as a platform. Examples of analyses could include identifying genetic determinants and biomarkers that predict BE, progression of BE to EAC, as well as the response to therapies.

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
750

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Jan 2011

Longer than P75 for all trials

Geographic Reach
1 country

1 active site

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

January 1, 2011

Completed
2.1 years until next milestone

First Submitted

Initial submission to the registry

January 22, 2013

Completed
6 days until next milestone

First Posted

Study publicly available on registry

January 28, 2013

Completed
8.8 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2021

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 1, 2021

Completed
Last Updated

January 28, 2013

Status Verified

January 1, 2013

Enrollment Period

10.9 years

First QC Date

January 22, 2013

Last Update Submit

January 23, 2013

Conditions

Outcome Measures

Primary Outcomes (1)

  • Progression to esophageal adenocarcinoma

    5 years (on average although follow-up will continue)

Secondary Outcomes (2)

  • Identify and validate genetic determinants that predict progression of BE to EAC and predict response to BE therapy

    5 years on average

  • Evaluate the natural history of BE with and without treatment based on clinical, functional and economic outcomes of the cases

    5 years on average

Study Arms (2)

Barrett's Esophagus/Esophageal Adenocarcinoma

Patients who have Barrett's esophagus or esophageal adenocarcinoma.

Healthy control

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Patients who have been seen at Massachusetts General Hospital.

You may qualify if:

  • Barrett's (BE): Patients who have Barrett's esophagus (all stages: Barrett's metaplasia, low-grade dysplasia, high-grade dysplasia) based upon standard endoscopic and histologic criteria.
  • Adenocarcinoma (EAC): Patients who have esophageal adenocarcinoma.
  • The control cohort will include patients ages 18 and older with no prior history of BE and EAC. These may include patients who are being seen or have been previously seen at MGH GI Associates for conditions including gastroesophageal reflux disease, peptic esophagitis, eosinophilic esophagitis, esophageal motility disorders such as achalasia and nutcracker esophagus.

You may not qualify if:

  • Inability or unwillingness to provide blood samples.
  • History of known bleeding disorders.
  • Currently awaiting organ transplantation.
  • Having an acute or severe chronic illness such as congestive heart failure or any other condition that would prohibit performing the endoscopy.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Massachusetts General Hospital

Boston, Massachusetts, 02114, United States

RECRUITING

Biospecimen

Retention: SAMPLES WITH DNA

Serum (from whole blood), plasma (from whole blood), tissue

MeSH Terms

Conditions

Barrett EsophagusAdenocarcinoma Of EsophagusGastroesophageal Reflux

Condition Hierarchy (Ancestors)

Precancerous ConditionsNeoplasmsEsophageal DiseasesGastrointestinal DiseasesDigestive System DiseasesEsophageal Motility DisordersDeglutition Disorders

Central Study Contacts

Katherine Perzan, BA

CONTACT

Study Design

Study Type
observational
Observational Model
CASE CONTROL
Time Perspective
PROSPECTIVE
Target Duration
5 Years
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Principal Investigator; MD, MPH

Study Record Dates

First Submitted

January 22, 2013

First Posted

January 28, 2013

Study Start

January 1, 2011

Primary Completion

December 1, 2021

Study Completion

December 1, 2021

Last Updated

January 28, 2013

Record last verified: 2013-01

Locations