Parkinson's Foundation Quality Improvement Initiative
PF-QII
1 other identifier
observational
13,000
4 countries
24
Brief Summary
In a recent study it was found that neurologist care for Parkinson's provides a 20% reduction in nursing home placement, hip fracture, and death (Willis 2011). However, as the authors recognized, the investigators don't know what it is about expert care that delivers this benefit. The Parkinson's Foundation's Quality Improvement Initiative was designed to identify the components of great care that yield great outcomes. By capturing demographics, clinical interventions and outcomes over time from multiple centers across the U.S, Canada and internationally, the best care practices from different clinics and different healthcare systems will be analyzed.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for all trials
Started Jul 2009
Longer than P75 for all trials
24 active sites
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
Study Start
First participant enrolled
July 1, 2009
CompletedFirst Submitted
Initial submission to the registry
June 25, 2012
CompletedFirst Posted
Study publicly available on registry
June 27, 2012
CompletedPrimary Completion
Last participant's last visit for primary outcome
September 1, 2022
CompletedStudy Completion
Last participant's last visit for all outcomes
July 1, 2023
CompletedJuly 14, 2023
July 1, 2023
13.2 years
June 25, 2012
July 12, 2023
Conditions
Keywords
Eligibility Criteria
Any person who receives medical care for the diagnosis of idiopathic Parkinson's disease at any of the participating Centers is eligible to participate in the Registry. There are no limitations for participation based on age, disease severity or presence of cognitive impairments.
You may qualify if:
- Patients diagnosed with idiopathic Parkinson's disease receiving medical care for the diagnosis of idiopathic Parkinson's disease at any of the participating Centers.
You may not qualify if:
- Patients who are not willing or won't be able to give written informed consent.
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (24)
Barrow Neurological Institute - Muhammad Ali Parkinson Center
Phoenix, Arizona, 85013, United States
Parkinson's Institute and Clinical Center
Sunnyvale, California, 94085, United States
Georgetown University Hospital
Washington D.C., District of Columbia, 20007, United States
University of Florida Parkinson's Disease and Movement Disorders Center
Gainesville, Florida, 32611, United States
University of Miami Parkinson's Disease and Movement Disorders Center
Miami, Florida, 33136, United States
University of South Florida
Tampa, Florida, 33613, United States
Augusta University
Augusta, Georgia, 30912, United States
Northwestern University Parkinson's Disease and Movement Disorders Center
Chicago, Illinois, 60611, United States
University of Kansas Medical Center Parkinson's Disease and Movement Disorder Center
Kansas City, Kansas, 66160, United States
Johns Hopkins Parkinson's Disease and Movement Disorder Center
Baltimore, Maryland, 21287, United States
Beth Israel Deaconess Medical Center Parkinson's Disease Movement Disorder Center
Boston, Massachusetts, 02114, United States
Struthers Parkinson Center
Golden Valley, Minnesota, 55427, United States
NYU Langone Medical Center
New York, New York, 10016, United States
Mount Sinai School of Medicine Parkinson and movement Disorders Center
New York, New York, 10029, United States
Oregon Health and Science University Parkinson Center
Portland, Oregon, 97239, United States
University of Pennsylvania Parkinson's Disease and Movement Disorder Center
Philadelphia, Pennsylvania, 19107, United States
The Vanderbilt Parkinson Disease Center
Nashville, Tennessee, 37232, United States
Baylor College of Medicine Parkinson Disease Center and Movement Disorders Clinic
Houston, Texas, 77030, United States
University of Alberta
Edmonton, Alberta, Canada
Centre for Movement Disorders
Markham, Ontario, Canada
Toronto Western Hospital Movement Disorders Center
Toronto, Ontario, Canada
McGill University Health Centre
Montreal, Quebec, Canada
Tel Aviv Sourasky Medical Center
Tel Aviv, Israel
Parkinson Center Nijmegen at Radboud University Nijmegen Medical Center
Nijmegen, Netherlands
Related Publications (1)
Okun MS, Siderowf A, Nutt JG, O'Conner GT, Bloem BR, Olmstead EM, Guttman M, Simuni T, Cheng E, Cohen EV, Parashos S, Marsh L, Malaty IA, Giladi N, Schmidt P, Oberdorf J. Piloting the NPF data-driven quality improvement initiative. Parkinsonism Relat Disord. 2010 Sep;16(8):517-21. doi: 10.1016/j.parkreldis.2010.06.005. Epub 2010 Jul 6.
PMID: 20609611BACKGROUND
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- STUDY CHAIR
Thomas Davis, MD
Vanderbilt University Medical Center
- STUDY CHAIR
Adolfo Ramirez-Zamora, MD
University of Florida
- STUDY CHAIR
Kelly Lyons, PhD
University of Kansas Medical Center
Study Design
- Study Type
- observational
- Observational Model
- CASE ONLY
- Time Perspective
- PROSPECTIVE
- Sponsor Type
- OTHER
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
June 25, 2012
First Posted
June 27, 2012
Study Start
July 1, 2009
Primary Completion
September 1, 2022
Study Completion
July 1, 2023
Last Updated
July 14, 2023
Record last verified: 2023-07