NCT00735488|CompletedDMC
Sickle Cell Anemia Screening and Prevention in Northern Israel
Summary of the Data From the Prevention Programme for Hemoglobinopathies in Northern Israel
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Summary of the Data From the Prevention Programme for Hemoglobinopathies in Northern Israel
Sponsor study identifier
observational
69
1 country
1
Study Start
May 2008
Date type not reportedThis date has not been verified as actual or estimated.
Primary Completion
March 2009
Actual (reported)Study Completion
March 2009
Actual (reported)Since 1987, a screening for β Thalassemia in pregnant women is carried on in northern Israel, and from 1999 all the samples were tested also for Hgb S, Hgb C, Hgb D, Hgb O Arab and others. In this study, the investigators intend to summarize the results of this preventive program aiming to detect couples at risk for having offspring with Thalassemia or SCA, the compliance regard to genetic counseling and prenatal diagnosis and the incidence of new affected babies born.
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
March 2009
Actual (reported)Click on a node to explore related trials.
Some registry-reported names shown below are not yet linked in this graph.
Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
May 2008
Date type not reportedThis date has not been verified as actual or estimated.
August 14, 2008
Actual (reported)August 15, 2008
Actual (reported)March 2009
Actual (reported)March 2009
Actual (reported)Number of carriers detected
End of study
Couples referred for prenatal diagnosis
End of study
Thalassemia Minor carriers
Sickle cell carriers
Summary of data
Registry-reported names are shown in full. Names without a link have not yet been matched to a Syfrah profile.
The program for prevention of hemoglobinopathies in Northern Israel, instituted since 1987, covered the northern part of Israel, including the Jezreel valley, the Nazareth area, the upper Galilee, the Hula valley and the northern part of the seashore region7. The overall population in this region is about a million inhabitants with about 50 % of Arab population, and a significant percentage of them from Bedouin origin, a population that at least partially is of African origin.
Contact the study team to confirm eligibility.
Pediatric Hematology Unit - Ha'Emek Medical Center
Afula, Afula, 18101, Israel
Ariel Koren, MD
Pediatric Hematology Unit - Ha'Emek Medical Center - Afula - 18101 - Israel
69 participants (actual enrollment reported by the registry).
First Submitted
August 14, 2008
First Posted
August 15, 2008
Study Start
May 2008
Date type not reportedThis date has not been verified as actual or estimated.
Blood Transfusions in Thalassemia Patients, Complications and Adverse Effects
Primary Completion
March 2009
Actual (reported)Study Completion
March 2009
Actual (reported)Last Updated
September 1, 2015
Record last verified: 2015-08
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Source: ClinicalTrials.gov.
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