NCT00675025

Brief Summary

The purpose of this study is to determine the safety of donepezil hydrochloride (Aricept) in children with Down syndrome who have finished the preceding 10-week, double-blind study of donepezil hydrochloride. Medical tests for drug safety will be conducted at each clinic visit.

Trial Health

57
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
117

participants targeted

Target at P50-P75 for phase_2

Timeline
Completed

Started Apr 2008

Shorter than P25 for phase_2

Geographic Reach
1 country

31 active sites

Status
terminated

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

April 4, 2008

Completed
1 month until next milestone

First Submitted

Initial submission to the registry

May 7, 2008

Completed
1 day until next milestone

First Posted

Study publicly available on registry

May 8, 2008

Completed
6 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

November 13, 2008

Completed
1 month until next milestone

Study Completion

Last participant's last visit for all outcomes

December 15, 2008

Completed
12.3 years until next milestone

Results Posted

Study results publicly available

March 29, 2021

Completed
Last Updated

March 29, 2021

Status Verified

March 1, 2021

Enrollment Period

7 months

First QC Date

May 7, 2008

Results QC Date

March 29, 2013

Last Update Submit

March 26, 2021

Conditions

Outcome Measures

Primary Outcomes (1)

  • Change From Visit 1 (Baseline) to Visit 4 or Early Termination in the Vineland Adaptive Behavior Scales, 2nd Edition, Parent/Caregiver Rating Form (VABS-II/PCRF) Sum of the 9 Sub-domain V-scores

    VABS-II/PCRF assessed participant's adaptive behaviors on 3 domains (each has 3 sub-domains): Communication (receptive, expressive, written), Daily Living Skills (personal, domestic, community), Socialization (interpersonal relationships, play a leisure time, coping skills). Parent/caregiver rated participant's behavior for sub-domains from 0 (never present) to 2 (always present). Raw scores from sub-domains converted into standardized score(V-scale scores) ranged:1-24 for each sub-domain, mean=15,standard deviation(SD)=3,higher scores=higher level of adaptive functioning and were summed to obtain V-scale composite score ranged 9-216, mean=100,SD=15,higher scores=higher level of adaptive functioning, positive change=improvement in adaptive functioning. Composite and individual analyses, both raw and standardized scores, were not performed due to lack of significant differences between donepezil and placebo in parent study.

    Visit 1 (baseline); Early Termination Visit (Week 36)

Study Arms (1)

Prior Donepezil-DB

EXPERIMENTAL

All participants started with a dose of 2.5 mg/day (2.5 mL/day). Dose escalations occurred in 2.5 mg/day increments every 2 weeks (steady state levels assumed to have been reached) to a maximum dose of 10 mg/day, according to the participant's weight schedule and the Investigator's judgment of safety and tolerability. Re-titration was done to maintain the blinding of the double-blind study (E2020-A001-219). Doses could be decreased due to tolerability and could be increased or decreased to maintain a maximum dose of 0.1 to 0.2 mg/kg/day based on the participant's weight at clinic visits during the study duration.

Drug: Donepezil hydrochloride (Aricept)

Interventions

Liquid form Aricept - 5 mg/5 mL donepezil hydrochloride.

Also known as: Aricept
Prior Donepezil-DB

Eligibility Criteria

Age10 Years - 17 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17)

You may qualify if:

  • Diagnosis of Down syndrome (established during study E2020-A001-220).
  • Completion of study E2020-A001-219 (NCT00570128 \[also known as A2501059\]) with no ongoing seroius adverse events and no severe drug reactions.

You may not qualify if:

  • Weight less than 20 kg.
  • Clinically significant conditions affecting absorption, distribution or metabolism of the study medication.
  • No reliable parent or caregiver, or unwillingness or inability of parent or caregiver to fulfill the requirements of the study.
  • Females of childbearing potential who are not practicing an effective means of birth control.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (31)

Phoenix Children's Hospital

Phoenix, Arizona, 85016, United States

Location

Child Neurology Associates, PC

Little Rock, Arkansas, 72205, United States

Location

Midwest Children's Health Research Institute

Los Angeles, California, 90048, United States

Location

Children's Hospital and Research Center at Oakland

Oakland, California, 94609, United States

Location

University of California, Irvine Medical Center

Orange, California, 92868, United States

Location

UCSD Pediatric Pharmacology Research Unit

San Diego, California, 92123, United States

Location

Rocky Mountain Pediatrics, P.C.

Lakewood, Colorado, 80214, United States

Location

Neufeld Medical Group, Inc.

Fort Myers, Florida, 33912, United States

Location

Miami Children's Hospital

Miami, Florida, 33155-3009, United States

Location

Miami Children's Hospital - Medical Genetics and Neuro-Developmental Center

Miami, Florida, 33155, United States

Location

Phoenix Children's Hospital

Miami, Florida, 33155, United States

Location

Clinical Studies Centers, LLC

St. Petersburg, Florida, 33709, United States

Location

Northwest Clinical Research Center

West Palm Beach, Florida, 33407, United States

Location

Road Runner Research

Atlanta, Georgia, 30342, United States

Location

Hurley Medical Center

Flint, Michigan, 48503, United States

Location

Saint Mary's Health Care

Grand Rapids, Michigan, 49503, United States

Location

Washington University School of Medicine

Grand Rapids, Michigan, 49503, United States

Location

Regions Hospital

Saint Paul, Minnesota, 55101-2595, United States

Location

Northwest Clinical Research Center

St Louis, Missouri, 63110, United States

Location

Meridien Research

Lincoln, Nebraska, 68504, United States

Location

Clinical Research Center of New Jersey

Voorhees Township, New Jersey, 08043, United States

Location

Division of Genetics and Developmental Behavior

Durham, North Carolina, 27710, United States

Location

Metrohealth Medical Center

Cleveland, Ohio, 44109, United States

Location

Valko and Associates

Toledo, Ohio, 43606, United States

Location

Office of Lazlo Mate

Tulsa, Oklahoma, 74104, United States

Location

Medical Univ of South Carolina

Charleston, South Carolina, 29425, United States

Location

Vanderbilt Children's Hospital

Nashville, Tennessee, 37232-9225, United States

Location

Down Syndrome Clinic of Houston

Houston, Texas, 77030, United States

Location

Alamo City Clinical Research, LLC

San Antonio, Texas, 78258, United States

Location

Community Research Foundation

San Antonio, Texas, 78258, United States

Location

Neuropsychiatric Research Center of Southwest Florida

Bellevue, Washington, 98004, United States

Location

MeSH Terms

Conditions

Down Syndrome

Interventions

Donepezil

Condition Hierarchy (Ancestors)

Intellectual DisabilityNeurobehavioral ManifestationsNeurologic ManifestationsNervous System DiseasesAbnormalities, MultipleCongenital AbnormalitiesCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesChromosome DisordersGenetic Diseases, Inborn

Intervention Hierarchy (Ancestors)

IndansIndenesPolycyclic Aromatic HydrocarbonsHydrocarbons, AromaticHydrocarbons, CyclicHydrocarbonsOrganic ChemicalsPiperidinesHeterocyclic Compounds, 1-RingHeterocyclic CompoundsPolycyclic Compounds

Limitations and Caveats

This was an open-label trial that was terminated early by the Sponsor.

Results Point of Contact

Title
Eisai Medical Services
Organization
Eisai Inc

Publication Agreements

PI is Sponsor Employee
No
Restriction Type
OTHER
Restrictive Agreement
Yes

Study Design

Study Type
interventional
Phase
phase 2
Allocation
NA
Masking
NONE
Purpose
TREATMENT
Intervention Model
SINGLE GROUP
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

May 7, 2008

First Posted

May 8, 2008

Study Start

April 4, 2008

Primary Completion

November 13, 2008

Study Completion

December 15, 2008

Last Updated

March 29, 2021

Results First Posted

March 29, 2021

Record last verified: 2021-03

Locations