NCT00144430

Brief Summary

This is a multicenter trial through the Pediatric Blood and Marrow Transplant Consortium. The Primary hypothesis of this study is that because of its effect as a potent immunosuppressive agent targeting lymphocytes, pentostatin will show a sustained response in pediatric subjects with severe chronic GVHD. Secondary hypotheses include that the infection and toxicity rate of pentostatin in this setting will be acceptable given its lack of severe myelosuppression, and subjects with refractory chronic GVHD will have significant QOL impairment and symptomatology. These may change as subjects are being treated for their chronic GVHD with pentostatin.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
60

participants targeted

Target at P50-P75 for phase_2

Timeline
Completed

Started Jan 2004

Typical duration for phase_2

Geographic Reach
1 country

25 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

January 1, 2004

Completed
1.7 years until next milestone

First Submitted

Initial submission to the registry

August 31, 2005

Completed
5 days until next milestone

First Posted

Study publicly available on registry

September 5, 2005

Completed
2.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

August 1, 2008

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

August 1, 2008

Completed
Last Updated

February 3, 2009

Status Verified

February 1, 2009

Enrollment Period

4.6 years

First QC Date

August 31, 2005

Last Update Submit

February 2, 2009

Conditions

Keywords

chronic graft versus host diseasegrafthosttransplantstem cellpediatricGVH0313leukemia

Outcome Measures

Primary Outcomes (1)

  • To estimate the response rate (CR and PR) of pentostatin when used to treat refractory-chronic GVHD in children.

    To end of study

Secondary Outcomes (3)

  • To gather initial efficacy and safety data in high-risk untreated chronic GVHD in children.

    To end of study

  • To evaluate toxicities of pentostatin when used to treat chronic GVHD in children.

    To end of study

  • To evaluate quality of life (QOL) and symptoms at diagnosis and after therapy with pentostatin in pediatric patients with refractory chronic GVHD.

    To end of study

Interventions

The drug, Pentostatin, is given every 2 weeks. This drug will be given by intravenous (IV) infusion.

Eligibility Criteria

Age1 Month - 21 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64)

You may qualify if:

  • Allogeneic BMT or SCT recipients. Includes cord blood and peripheral blood.
  • Age 0-21 years.
  • FOR REFRACTORY GROUP:
  • Diagnosis of chronic GVHD, confirmed by biopsy of any organ after SCT. Given the variability among centers, biopsy needs to say, at the very least, "consistent with GVHD." If there is a medical contra-indication (such as severe sclerosis with poor wound healing) or the need for an open procedure to obtain a fascial biopsy then a photograph documenting the skin and abnormal ROM studies may be submitted instead. If current GVHD represents the same episode which was previously biopsied, then a new biopsy is not necessary. If the previous biopsy was for an episode that went into remission and this is a new episode of GVHD, then a new biopsy is necessary.
  • To be eligible for this portion of the study, a patient's chronic GVHD can be extensive or limited, as defined below:
  • All subjects with extensive chronic GVHD are eligible. These subjects must meet the following criteria:
  • Generalized skin involvement (\>50% BSA)
  • OR Localized skin involvement and/or liver dysfunction plus at least one of the following:
  • Liver histology showing chronic aggressive hepatitis, bridging necrosis, cirrhosis, or ductopenia.
  • Eye involvement (Schirmer's test with \< 5 mm wetting)
  • Involvement of minor salivary glands or oral mucosa on lip biopsy
  • Involvement of any other target organs
  • OR Involvement of at least 2 target organs.(Target organs are listed below under "Examples of characteristic manifestations)
  • Subjects with limited chronic GVHD (defined as those with skin involvement in less than 50% BSA or isolated organ involvement 51 are also eligible. Examples of these subjects would be those with limited sclerodermatous or fascial skin disease or oral disease that is unresponsive to therapy and may be debilitating to the patient. Subjects with isolated refractory liver chronic GVHD may go on study provided they have liver histology as above.
  • Examples of characteristic manifestations include:
  • +19 more criteria

You may not qualify if:

  • More than two previous regimens to treat chronic GVHD. A regimen for the purpose of this study is defined as an adequate trial of an immunosuppressive or immunosuppressive combination (patient was given drug or drugs for 3 months unless there was clear progression during regimen).
  • Calculated Cr. Clearance\<30 ml/min/1.73m2
  • Active infection not responding to oral or IV antibiotics.
  • Subjects and families unwilling to firmly commit to return for follow-up doses and appointments.
  • Use of any investigational agent in the past 30 days (this does not include the use of licensed agents for indications not listed in the package insert).
  • Pregnancy or nursing mother; Females of child-bearing potential and sexually active males should use effective contraception while on study.
  • Active veno-occlusive disease of the liver.
  • Bronchiolitis obliterans (defined for the purpose of this study by respiratory symptoms such as shortness of breath or cough and FEV1\<50%).
  • Karnofsky performance score less than 40 (or Lansky performance less than 40 in subjects under 16 years of age).

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (25)

Loma Linda University Medical Center

Loma Linda, California, 92350, United States

Location

Pediatric Medical Center for Northern California

Oakland, California, 94609, United States

Location

Nemour's Children's Clinic

Jacksonville, Florida, 32007, United States

Location

University of Miami

Miami, Florida, 33136, United States

Location

All Children's Health System

St. Petersburg, Florida, 33701, United States

Location

Children's Healthcare of Atlanta

Atlanta, Georgia, 30322, United States

Location

Children's Memorial Hospital

Chicago, Illinois, 60614, United States

Location

Riley Hospital for Children

Indianapolis, Indiana, 46202, United States

Location

LSUHSC

New Orleans, Louisiana, 70112, United States

Location

John's Hopkins

Baltimore, Maryland, 21287, United States

Location

University of Michigan

Ann Arbor, Michigan, 48109, United States

Location

DeVos Children's Hospital

Grand Rapids, Michigan, 49503, United States

Location

Children's Mercy Hospital

Kansas City, Missouri, 64108, United States

Location

St. Louis University

St Louis, Missouri, 63104, United States

Location

Hackensack University Medical Center

Hackensack, New Jersey, 07602, United States

Location

Columbia Presbyterian Medical Center

New York, New York, 10032-3702, United States

Location

New York Medical College

Valhalla, New York, 10595, United States

Location

Rainbow Babies and Children's

Cleveland, Ohio, 44106, United States

Location

Columbus Children's Hospital

Columbus, Ohio, 43205, United States

Location

Penn State Milton S. Hershey Medical Center

Hershey, Pennsylvania, 17033, United States

Location

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, 19104, United States

Location

Victor Aquino, MD

Dallas, Texas, 75390, United States

Location

Cook Children's Medical Center

Fort Worth, Texas, 76104, United States

Location

Southwest Texas Methodist Hospital

San Antonio, Texas, 78229, United States

Location

University of Utah

Salt Lake City, Utah, 84132, United States

Location

Related Publications (1)

  • Jacobsohn DA, Gilman AL, Rademaker A, Browning B, Grimley M, Lehmann L, Nemecek ER, Thormann K, Schultz KR, Vogelsang GB. Evaluation of pentostatin in corticosteroid-refractory chronic graft-versus-host disease in children: a Pediatric Blood and Marrow Transplant Consortium study. Blood. 2009 Nov 12;114(20):4354-60. doi: 10.1182/blood-2009-05-224840. Epub 2009 Sep 10.

MeSH Terms

Conditions

Graft vs Host DiseaseBronchiolitis Obliterans SyndromeLeukemia

Interventions

Pentostatin

Condition Hierarchy (Ancestors)

Immune System DiseasesOrganizing PneumoniaBronchiolitis ObliteransBronchiolitisBronchitisBronchial DiseasesRespiratory Tract DiseasesLung Diseases, ObstructiveLung DiseasesNeoplasms by Histologic TypeNeoplasmsHematologic DiseasesHemic and Lymphatic Diseases

Intervention Hierarchy (Ancestors)

CoformycinFormycinsPyrimidine NucleosidesPyrimidinesHeterocyclic Compounds, 1-RingHeterocyclic CompoundsDeoxyribonucleosidesNucleosidesNucleic Acids, Nucleotides, and Nucleosides

Study Officials

  • David Jacobsohn, MD, MSc

    Children's Memorial Hospital, Chicago, IL

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
phase 2
Allocation
NON RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
SINGLE GROUP
Sponsor Type
OTHER

Study Record Dates

First Submitted

August 31, 2005

First Posted

September 5, 2005

Study Start

January 1, 2004

Primary Completion

August 1, 2008

Study Completion

August 1, 2008

Last Updated

February 3, 2009

Record last verified: 2009-02

Locations