NCT00110617

Brief Summary

This study will examine the long-term safety and efficacy of Deferasirox in patients with sickle cell disease and iron overload from repeated blood transfusions.

Trial Health

90
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
212

participants targeted

Target at P75+ for phase_2

Timeline
Completed

Started May 2005

Typical duration for phase_2

Geographic Reach
2 countries

59 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

May 1, 2005

Completed
9 days until next milestone

First Submitted

Initial submission to the registry

May 10, 2005

Completed
1 day until next milestone

First Posted

Study publicly available on registry

May 11, 2005

Completed
2.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

April 1, 2008

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

April 1, 2008

Completed
3.1 years until next milestone

Results Posted

Study results publicly available

May 2, 2011

Completed
Last Updated

May 26, 2011

Status Verified

May 1, 2011

Enrollment Period

2.9 years

First QC Date

May 10, 2005

Results QC Date

January 11, 2011

Last Update Submit

May 23, 2011

Conditions

Keywords

Sickle Cell DiseaseIron Overload from Repeated Blood TransfusionsIron OverloadBlood Transfusions

Outcome Measures

Primary Outcomes (1)

  • The Number of Participants With Adverse Events (AEs) in the First 24 Weeks of Treatment

    The number of participants with Adverse Events (AEs) overall and according to Medical Dictionary for Regulatory Activities (MedDRA) preferred term greater than or equal to 5% participants in any group by treatment in the first 24 weeks.

    24 Weeks

Secondary Outcomes (3)

  • Absolute Change in Serum Ferritin From Baseline to Week 24

    Baseline, 24 Weeks

  • Absolute Change in Serum Ferritin After Start of Treatment With Deferasirox (ICL670) to Week 24 and to Week 52

    Start of Deferasirox (ICL670) treatment, 24 Weeks, 52 Weeks

  • Absolute Change in Serum Ferritin After Start of Treatment With Deferasirox (ICL670) to Week 104

    Start of Deferasirox (ICL670) treatment, 104 Weeks

Study Arms (2)

Deferasirox (ICL670)

EXPERIMENTAL

Deferasirox (ICL670) 20 mg/kg orally once daily for 104 weeks.

Drug: Deferasirox (ICL670)

Deferoxamine (DFO) then ICL670

EXPERIMENTAL

Deferoxamine (DFO) subcutaneously for a weekly dose of 175 mg/kg for 24 weeks then crossed over to receive Deferasirox (ICL670) orally 20 mg/kg for a total of 104 weeks on therapy.

Drug: Deferasirox (ICL670)Drug: Deferoxamine (DFO)

Interventions

Deferasirox was provided in 125 mg, 250 mg, and 500 mg dispersible tablets and was administered orally at an initial dose of 20 mg/kg/day.

Deferasirox (ICL670)Deferoxamine (DFO) then ICL670

Deferoxamine was supplied in vials of 500 mg and 2000 mg administered subcutaneously for a weekly dose of 175 mg/kg.

Deferoxamine (DFO) then ICL670

Eligibility Criteria

Age2 Years+
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)

You may qualify if:

  • Age greater than or equal to 2 years
  • Male or female patients with sickle cell disease (SS, SC, SD, Sβo or Sβ+ thalassemia)
  • Iron overload from repeated blood transfusion, as defined by one of the following:
  • For patients \> 16 years old receiving simple transfusions: lifetime history of receipt of at least 120 ml/kg or 30 adult units of packed red blood cells, OR
  • For patients ≤ 16 years old receiving simple transfusions: lifetime history of receipt of at least 120 ml/kg of packed red blood cells, OR
  • For all patients receiving exchange transfusions in the absence of a previous attempt to achieve negative iron balance: lifetime performance of at least 20 procedures, OR
  • For all patients: liver iron content ≥ 7 mg Fe/g dry weight as measured by biopsy, Magnetic Resonance Imaging (MRI), or magnetic susceptibility performed within 3 months prior to entry into screening
  • For entry into the screening period: serum ferritin of ≥ 1000 µg/mL on at least two occasions during the prior year obtained in the absence of concomitant infection.
  • Body weight \> 10 kg
  • No known allergy or contraindication to the administration of deferoxamine
  • Ability to comply with all study-related procedures, medications, and evaluations
  • Sexually active pre-menopausal female patients must use double-barrier contraception, oral contraceptive plus barrier contraceptive, or must have undergone clinically documented total hysterectomy and/or oophorectomy, tubal ligation or be postmenopausal defined by amenorrhea for at least 12 months.
  • Written informed consent by the patient or for pediatric patient's consent of the patient's legal guardian. The definition of the term 'pediatric' for enrollment and study conduct will be in accordance with the local legislation.

You may not qualify if:

  • Serum creatinine above the upper limit of normal
  • Significant proteinuria
  • History of nephrotic syndrome
  • Alanine aminotransferase (ALT) ≥ 250 U/L at screening
  • Clinical evidence of active hepatitis B or hepatitis C
  • History of HIV
  • Fever or other signs/symptoms of infection within 10 days prior to the screening visit
  • Uncontrolled systemic hypertension
  • History of Myocardial Infarction, Congestive Heart Failure or unstable cardiac disease not controlled by standard medical therapy
  • Clinically relevant cataract or a previous history of clinically relevant ocular toxicity related to iron chelation
  • Presence of a surgical or medical condition that might significantly alter the absorption, distribution, metabolism or excretion of any study drug
  • History of drug or alcohol abuse within the 12 months prior to enrollment
  • Pregnant or breast feeding patients
  • Patients treated with systemic investigational drug within 4 weeks prior or with topical investigational drug 7 days prior to the screening visit
  • Randomization in a previous clinical trial involving ICL670

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (59)

University of Alabama Pediatric Hematology/Oncology

Birmingham, Alabama, 35233, United States

Location

University of Alabama Medical center

Birmingham, Alabama, 35294, United States

Location

University of South Alabama Medical Center

Mobile, Alabama, 36604, United States

Location

University of South Alabama

Mobile, Alabama, 36617, United States

Location

Loma Linda University Medical Center

Loma Linda, California, 92354, United States

Location

Children's Hospital Oakland

Oakland, California, 94609, United States

Location

Center for Cancer and Blood Disorders

Washington D.C., District of Columbia, 20010-2970, United States

Location

Children's National Medical Center

Washington D.C., District of Columbia, 20010, United States

Location

Howard University Hospital

Washington D.C., District of Columbia, 20059, United States

Location

Miami Children's Hospital

Miami, Florida, 33155, United States

Location

Tampa Children's Hospital at St Joseph's

Tampa, Florida, 33607-6387, United States

Location

Tampa Children's Hospital at St. Joseph's

Tampa, Florida, 33607-6387, United States

Location

H. Lee Muffit Cancer Center and Research Institute/James A. Haley Veterans Hospital

Tampa, Florida, 33612, United States

Location

Emory University School of Medicine

Atlanta, Georgia, 30303, United States

Location

Children's Healthcare of Atlanta at Scottish Rite

Atlanta, Georgia, 30342, United States

Location

Adult Sickle Cell Clinic

Augusta, Georgia, 30912-3128, United States

Location

Backus Children's Hospital

Savannah, Georgia, 31403, United States

Location

University of Illinois at Chicago

Chicago, Illinois, 60612, United States

Location

Children's Memorial Hospital

Chicago, Illinois, 60614-3394, United States

Location

Pediatric Sickle Cell Program/James Whitcomb Riley Hospital for Children

Indianapolis, Indiana, 46202, United States

Location

St. Jude Children's Hospital Affiliate

Baton Rouge, Louisiana, 70808, United States

Location

Tulane University Sickle Cell Center

New Orleans, Louisiana, 70112, United States

Location

Children's Hospital

New Orleans, Louisiana, 70118, United States

Location

LSU Health Sciences Center/Carroll W. Feist Professor of Cancer Research

Shreveport, Louisiana, 71130, United States

Location

Brigham and Woman's Hospital/Harvard Medical School

Boston, Massachusetts, 02115, United States

Location

Children's Hospital Boston

Boston, Massachusetts, 02115, United States

Location

Children's Hospital

Boston, Massachusetts, 02115, United States

Location

University of Michigan

Ann Arbor, Michigan, 48109-0238, United States

Location

Karmanos Cancer Institute

Detroit, Michigan, 48201, United States

Location

Washington University School of Medicine

St Louis, Missouri, 63110, United States

Location

SUNY Downstate Medical Center

Brooklyn, New York, 11203, United States

Location

New York Methodist Hospital

Brooklyn, New York, 11215, United States

Location

Weill Medical College of Cornell University

New York, New York, 10021, United States

Location

Columbia University

New York, New York, 10032, United States

Location

Sickle Cell Center, Montefiore Hospital

The Bronx, New York, 10467-2490, United States

Location

Carolinas Medical Transplant Center

Charlotte, North Carolina, 28232, United States

Location

University of Cincinnati

Cincinnati, Ohio, 45219, United States

Location

Children's Hospital Medical Center

Cincinnati, Ohio, 72764, United States

Location

The University of Oklahoma

Oklahoma City, Oklahoma, 73104, United States

Location

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, 19104-4399, United States

Location

Pennsylvania Oncology/Hematology

Philadelphia, Pennsylvania, 19106, United States

Location

Jefferson University

Philadelphia, Pennsylvania, 19107, United States

Location

Drexel University College of Medicine

Philadelphia, Pennsylvania, 19134-1095, United States

Location

Children's Hospital of Pittsburgh

Pittsburgh, Pennsylvania, 15213, United States

Location

Hillman Cancer Center

Pittsburgh, Pennsylvania, 15232, United States

Location

Liberty Hematology Oncology Center

Columbia, South Carolina, 29203, United States

Location

Palmetto Health Clinical Trials

Columbia, South Carolina, 29203, United States

Location

Santee Hematology/Oncology

Sumter, South Carolina, 29150, United States

Location

St Jude's Children's Research Hospital

Memphis, Tennessee, 38105-2794, United States

Location

St. Jude's Children Research Hospital

Memphis, Tennessee, 38105, United States

Location

Cooks Children's Hospital

Fort Worth, Texas, 76104-2724, United States

Location

Texas Children's Hospital/Baylor College of Medicine

Houston, Texas, 77030-2399, United States

Location

Scott and White Memorial Hospital & Clinics

Temple, Texas, 76508, United States

Location

Children's Hospital of the King's Daughter

Norfolk, Virginia, 23507, United States

Location

Medical College of Virginia

Richmond, Virginia, 23298-0306, United States

Location

Virginia Commonwealth University

Richmond, Virginia, 23298-0646, United States

Location

University of Alberta

Edmonton, Alberta, T6G 2H7, Canada

Location

The Ottawa Hospital

Ottawa, Ontario, K1H 8L6, Canada

Location

Hopital Ste-Justine

Montreal, Quebec, H3T 1C5, Canada

Location

Related Links

MeSH Terms

Conditions

Anemia, Sickle CellIron OverloadAnemia, Hemolytic

Interventions

DeferasiroxDeferoxamine

Condition Hierarchy (Ancestors)

Anemia, Hemolytic, CongenitalAnemiaHematologic DiseasesHemic and Lymphatic DiseasesHemoglobinopathiesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesIron Metabolism DisordersMetabolic DiseasesNutritional and Metabolic Diseases

Intervention Hierarchy (Ancestors)

BenzoatesAcids, CarbocyclicCarboxylic AcidsOrganic ChemicalsBenzene DerivativesHydrocarbons, AromaticHydrocarbons, CyclicHydrocarbonsTriazolesAzolesHeterocyclic Compounds, 1-RingHeterocyclic CompoundsHydroxamic AcidsHydroxylaminesAminesHydroxy Acids

Limitations and Caveats

Due to severe good clinical practice violations, data from 9 participants recruited for Center 512 was excluded from the main analysis of the study.

Results Point of Contact

Title
Study Director
Organization
Novartis Pharmaceuticals

Study Officials

  • Novartis Pharmaceuticals

    Novartis Pharmaceuticals

    STUDY DIRECTOR

Publication Agreements

PI is Sponsor Employee
No
Restriction Type
OTHER
Restrictive Agreement
Yes

Study Design

Study Type
interventional
Phase
phase 2
Allocation
RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
INDUSTRY

Study Record Dates

First Submitted

May 10, 2005

First Posted

May 11, 2005

Study Start

May 1, 2005

Primary Completion

April 1, 2008

Study Completion

April 1, 2008

Last Updated

May 26, 2011

Results First Posted

May 2, 2011

Record last verified: 2011-05

Locations