Key Insights

Highlights

Success Rate

91% trial completion (above average)

Clinical Risk Assessment

Based on trial outcomes

Moderate Risk

Score: 50/100

Termination Rate

2.7%

3 terminated out of 113 trials

Success Rate

91.4%

+4.9% vs benchmark

Late-Stage Pipeline

2%

2 trials in Phase 3/4

Results Transparency

9%

3 of 32 completed with results

Key Signals

3 with results91% success

Data Visualizations

Phase Distribution

48Total
Not Applicable (34)
Early P 1 (1)
P 1 (6)
P 2 (5)
P 3 (2)

Trial Status

Recruiting44
Completed32
Unknown13
Active Not Recruiting12
Not Yet Recruiting4
Enrolling By Invitation4

Trial Success Rate

91.4%

Benchmark: 86.5%

Based on 32 completed trials

Clinical Trials (113)

Showing 20 of 20 trials
NCT02450851RecruitingPrimary

Clinical and Genetic Evaluation of Individuals With Undiagnosed Disorders Through the Undiagnosed Diseases Network

NCT00359580CompletedPrimary

Genetic Studies in the Amish and Mennonites

NCT03967743CompletedPrimary

Application of a Systematic Developmental Assessment to a Novel Population: Infants With Rare Genetic Disorders

NCT02156102CompletedPrimary

Insights Into Microbiome and Environmental Contributions to Sickle Cell Disease and Leg Ulcers Study (INSIGHTS Study)

NCT04586075Recruiting

UW Undiagnosed Genetic Diseases Program

NCT06089954Not ApplicableActive Not RecruitingPrimary

Penn Medicine Biobank Return of Results Program

NCT07039084Not ApplicableRecruitingPrimary

Using a Speech-Generating Device to Support Communication in Rare Genetic Conditions

NCT03612310RecruitingPrimary

Developing Protocols for Modelling of Genetic Diseases Using Induced Pluripotent Stem Cells

NCT07040774RecruitingPrimary

Natural History of Type 1 Interferonopathies: Insights From a European Cohort

NCT05747976Recruiting

Genetic Disorders of Obesity Program Database

NCT05386134RecruitingPrimary

Adaptive Optics Retinal Imaging in Inherited and Acquired Retinal Disorders

NCT06504433Recruiting

The Natural History of Mitochondrial Diseases

NCT05364294Recruiting

Molecular Diagnosis of Systemic Autoinflammatory Diseases

NCT03420274Not ApplicableCompletedPrimary

Ensuring Patients' Informed Access to Noninvasive Prenatal Testing

NCT06369974Phase 1Enrolling By InvitationPrimary

Single Participant Study of an Experimental ASO Treatment for TUBB4A-related Leukodystrophy

NCT03291392Recruiting

CUHK Stroke Biobank

NCT05528744RecruitingPrimary

Delineating the Molecular Spectrum and the Clinical, Imaging and Neuronal Phenotype of Chopra-Amiel-Gordon Syndrome

NCT07365254RecruitingPrimary

Accurate Assessment and Intervention Research on Newborn Whole Genome Sequencing and Genetic Disease Risk

NCT05297812Active Not Recruiting

Alpha-1 Antitrypsin Disease Cohort: Longitudinal Biomarker Study of Disease

NCT05238519Phase 3Active Not Recruiting

Improved Diagnosis of Familial Hypercholesterolemia Across the Northland (ID-FH)

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Research Network

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